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LUPUS UK

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New experiences of diagnosis video for World Lupus Day

This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the...

This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann s...

Debbie_kinsey

Administrator•9 hours ago

1 Reply

Allergic disorders in Systemic Lupus -this is an online publication hopefully all is able to read it

https://pubmed.ncbi.nlm.nih.gov/8369810/

KnitSewPurl

•13 hours ago

13 Replies

Research on Hydroxycloriquine and Eyes

I saw this research and thought it was helpful so wanted to share: https://www.medpagetoday.com/rheumatology/generalrheumatology/110041

I saw this research and thought it was helpful so wanted to share: https://www...

ShannonB

•15 hours ago

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Article: Exciting time for biological use in Lupus

https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=emai

https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-...

VeeWat

•16 hours ago

2 Replies

Atarax 25mg...has anyone used it?

It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it...

It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep...

AnonLupi

•1 day ago

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New lifestyle. Use up all your energy having a great day, do nothing for a couple of days, then repeat

Does anyone choose to live like this instead of hiding away from the light and conserving energy?

Does anyone choose to live like this instead of hiding away from the light and c...

IsleofWight1

•1 day ago

16 Replies

Help - trouble with diagnosis

Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female,...

Hi there, Looking for some help/guidance here as im at a bit of a loss with wh...

Severusisismydog

•1 day ago

3 Replies

Living with lupus in 2024 survey - closing soon!

Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should...

Lupus Europe is conducting a survey to gather insights into the experiences of i...

nakita_cambow

Moderator•1 day ago

2 Replies

Update

Update to previous post - https://healthunlocked.com/lupusuk/posts/150804233/notes-for-upcoming-gp-appointment Had my appointment this morning, I'd already...

Update to previous post - https://healthunlocked.com/lupusuk/posts/150804233/not...

Wispymisty

•2 days ago

4 Replies

Lupus Tumidus

Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with...

Hi All - After months of burning and itching skin, intermittent exhaustion, irri...

TumidusG

•2 days ago

3 Replies

Sympathy & cleaning tips required.....

On Friday 3rd May we said goodbye to Millie our 15 Yr old spaniel. She got me through so much over the years from the death of my OH in 2009 to becoming...

On Friday 3rd May we said goodbye to Millie our 15 Yr old spaniel. She got me th...

Spanielmadlady

•2 days ago

29 Replies

Feeling lonely and fobbed off! What are these symptoms??

Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later,...

Hello, this is my first time posting so please bear with me.I am a 40 year old f...

Starshine83

•2 days ago

17 Replies

Reassurance, please. Urgent.

Yesterday morning I was so happy. With a good friend I was going for a decent walk: great company, beautiful surroundings, some longed for warm, dry weather...

Yesterday morning I was so happy. With a good friend I was going for a decent ...

IsleofWight1

•2 days ago

40 Replies

Do you have lupus or another autoimmune condition?

There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their...

There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune ...

nakita_cambow

Moderator•2 days ago

1 Reply

Is it discoid lupus?

Hi fellow lupus warriors I posted a few weeks ago about an ulcer on my leg that wouldn't heal. After oral antibiotics that had no effect, the Dr found a...

Hi fellow lupus warriors I posted a few weeks ago about an ulcer on my leg that...

lupus_paradise

•4 days ago

3 Replies

A small journey... and a tip to share

Hello, my first time to post here. I am a 55y old male, doing rounds with various consultants to see why I have random joint pains primarily. I also have...

Hello, my first time to post here. I am a 55y old male, doing rounds with vario...

ns01

•5 days ago

4 Replies

Never ending circle

Morning everyone, just looking for advice and to vent a little. I have posted a few times about my journey but finally thought I had got some answers. Quick...

Morning everyone, just looking for advice and to vent a little. I have posted a ...

Mctd

•6 days ago

17 Replies

Golden Cuties

Hello EveryoneJust thought i'd pop up to show you these special golden cuties. Nine year old Retriever Trigger has fathered more than 300 puppies. This latest...

Hello EveryoneJust thought i'd pop up to show you these special golden cuties. N...

misty14

•6 days ago

25 Replies

reaction to Spikevax XBB 1.5Moderna

Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints,...

Just want to share that I had the above covid booster on Thursday (2nd May) and ...

Larks0ng

•6 days ago

8 Replies

Traitement

Bonjour â tous,Je suis atteinte d'une connectivité mixte à dominante lupique. Je vis en France et je me demandais si les traitements étaient identiques au...

Bonjour â tous,Je suis atteinte d'une connectivité mixte à dominante lupique. Je...

Pastel63

•6 days ago

4 Replies

methylprednisolone iv

Hello all, I've been having a very bad flare for a while. I already take hydroxychloroquine and methotrexate injections. My consultant has suggested...

Hello all, I've been having a very bad flare for a while. I already take hydroxy...

Kath1

•7 days ago

3 Replies

Methotrexate and a head cold

Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.

Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do ...

pattypatchwork

•7 days ago

4 Replies

Decipher this cholesterol reading please

I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio ,...

I know there are plenty of knowledgeable people reading these posts so can you d...

IsleofWight1

•8 days ago

9 Replies

Steroids 30mg

Hey friends, I’m going through rough time. I have a chest infection which happened very quickly the doctor gave me antibiotics and steroids (prednisone). I...

Hey friends, I’m going through rough time. I have a chest infection which happen...

LittleGamer

•8 days ago

23 Replies

Internal tremor (buzz/jangles)

Hi everyone - wondering if this is something others here experience - or whether it's just me? I frequently have a weird internal buzzy feeling to the point...

Hi everyone - wondering if this is something others here experience - or whether...

Wispymisty

•9 days ago

79 Replies

hydroxychloroquine?

hi been told by my rheumatologist I need to start taking hydroxychloroquine and wear SPF50 daily. I haven’t officially been diagnosed with lupus but I assuming...

hi been told by my rheumatologist I need to start taking hydroxychloroquine and ...

Severancered9

•9 days ago

15 Replies

Need to vent to people who will get it.

As the title says. I'm struggling right now and just wanna cry, but can't because I'm on holiday and it's my birthday and I should be having a wonderful time....

As the title says. I'm struggling right now and just wanna cry, but can't becaus...

Diagnosis_Collector

•10 days ago

11 Replies

consultants with interest in lupus in Glasgow

hi Im looking for advice. I had a relapse after a few years and had a consultation with a new consultant as all my old ones had retired. I was pretty much...

hi Im looking for advice. I had a relapse after a few years and had a consultat...

jptwechar

•10 days ago

7 Replies

Updated Lupus and the Skin booklet available now

We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. You...

We are proud to launch an updated version of our Lupus and the Skin information ...

Debbie_kinsey

Administrator•10 days ago

1 Reply

Brain fog, speech delay

Hi I have Lupus and APS and I work 4 days per week. I am finding work harder and harder as time goes on. Yesterday by late afternoon I was so fatigued and...

Hi I have Lupus and APS and I work 4 days per week. I am finding work harder...

Bobbydoodle

•11 days ago

5 Replies

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

New experiences of diagnosis video for World Lupus Day

Allergic disorders in Systemic Lupus -this is an online publication hopefully all is able to read it

Research on Hydroxycloriquine and Eyes

Article: Exciting time for biological use in Lupus

Atarax 25mg...has anyone used it?

New lifestyle. Use up all your energy having a great day, do nothing for a couple of days, then repeat

Help - trouble with diagnosis

Living with lupus in 2024 survey - closing soon!

Update

Lupus Tumidus

Sympathy & cleaning tips required.....

Feeling lonely and fobbed off! What are these symptoms??

Reassurance, please. Urgent.

Do you have lupus or another autoimmune condition?

Is it discoid lupus?

A small journey... and a tip to share

Never ending circle

Golden Cuties

reaction to Spikevax XBB 1.5Moderna

Traitement

methylprednisolone iv

Methotrexate and a head cold

Decipher this cholesterol reading please

Steroids 30mg

Internal tremor (buzz/jangles)

hydroxychloroquine?

Need to vent to people who will get it.

consultants with interest in lupus in Glasgow

Updated Lupus and the Skin booklet available now

Brain fog, speech delay

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