Golden Cuties

[misty14]

Hello EveryoneJust thought i'd pop up to show you these special golden cuties. Nine year old Retriever Trigger has fathered more than 300 puppies. This latest litter of 6 will be trained to be Guide Dogs for the Blind. Just amazing and Trigger is right to feel very pleased with his achievements isn't he?. His face says it all.

I hope you can all enjoy this warmer weather for the Bank Holiday but keep safe in the sun.

Take Care

MistyXx

P.s, i'm still waiting for foot op date and foot is very painful. Also ,waiting for gastroscopy date but am eating better and starting to put on weight. Famotidine and esomeprazole is helping with the pain.

Have a new diagnosis of Osteo Arthritis which is making me feel very old and past it!!.

I so appreciate all your support and i hope your not struggling too much yourselves with long waits. Xx

[ExtremeDuvetDaze]

Wow 300 pups that’s quite an achievement ! Golden retreivers are lovely dogs and don’t those puppies look super cute, I’d love one if I had the energy 🥰

Sorry you’re still suffering with that awful foot pain lovely, I’m pleased to hear you’re starting to put a bit of weight on, that’s good news. Oh dear and now osteo arthritis to add to the mix, I’ve had it for a few years now in my hands, hip and spine, I hope it’s not too painful for you 😞🤞

chat soon… hope you can have a nice bank holiday, it’s lovely to have a bit of sunshine and a whole day with no rain, long may it last 🤞🤞

Big hugs 🥰🌸💕💕💕🐾🐕🐕🐕🐶xxx

[misty14 in reply to ExtremeDuvetDaze]

Thanx so much EDD for your lovely messages. I thought you'd love the pups, i love retrievers too, they're such gentle dogs, perfect to be Guide Dogs. If you look at cjtigger's reply, she has put another pic of one of Trigger's pups called Indy as she fundraises for them. Isn't that lovely and the pic is super cute!. Its tough when fatigue is such a big symptom as it is for you and i. Its very demoralising and debillitating, specially as we want to do more and can't.

How did you manage having your covid jab?. Hope you were ok. I dread having mine on tuesday but know i must. Mum was very poorly after hers but dad ok. I did get the go ahead from Rheumy dept to have the shingles jab so thats booked for later this month.

I will pop up again during the week. Well done for getting the steroids down to 6mg. Do hope you don't pay too high a price for it. Its good your reductions are monthly. Take care and a big hug. Xx🐕💕🐕🤞🌺

[ExtremeDuvetDaze in reply to misty14]

Yes the fatigue is so hard, it’s been pretty bad since my Covid jab on Monday although I felt a bit brighter on Wednesday, I started feeling yukky again Thursday like a ‘neuro’ flare, I don’t know if it’s the jab or reducing to 6mg but it’s been a real struggle the last few days. I’m sorry your mum didn’t do so well after her jab either, I hope she’s improving, I understand you must be anxious about having it, I really hope you’ll be ok🙏🤞. I’m glad to hear you can have the shingles jab, I had no problems with that one.

Aww what a gorgeous puppy, they are the best family dogs aren’t they ! 🐾❤️

Good luck for Tuesday Misty, will be thinking of you 🤞😘💕🐾❤️❤️

[misty14 in reply to ExtremeDuvetDaze]

It could well be either the jab or reducing the steroids EDD. You gave yourself a double whammy there!!. I do hope it doesn't develop into a neuro flare, will keep my 🤞for you. If your symptoms worsen it might be worth gojng back to 7mg just to settle it before reducing again. Thanx for your good wishes for mine on tuesday. Its the fatigue that the jab seems to worsen specially as if we need that?!!. Mum said she was specially rough for 4 days and now feels better but is still more tired, thanx for askjng.

Ahhh!, glad you saw the other puppy pic!!. They're just adorable and i'd have one too if i could walk it!!. Pics will have to suffice won't they?.

I'll let you know how i get on. Thinking of you too and i hope you are better soon, lovely. Big hug. Xx🌺💕

[ExtremeDuvetDaze in reply to misty14]

Thanks Misty🙏 good advice, I’ll see how I go. I had a letter from the neuro specialist and I wasn’t happy, I’ve written to him! I’ll fill you in soon.

Glad your mum is feeling better.

I think we need lap dogs, ones that don’t need walking 😂

Chat soon lovely, hope you have a relaxing bank holiday. Big hugs 😘🐶💐💕xxx

[Cjtigger]

Hi Misty14

So sorry to read your still waiting for your foot op.

One of the things I am doing to help me cope with my problems is I fundraise for Guide Dogs. We have just named our 10 puppy and she is from Triggers last litter. She is called Indy.

Light blue background golden puppy with paw on navy blue cloth.

[misty14 in reply to Cjtigger]

Thanx so much for replying cjtigger and bringing my pic to life!. Its wonderful that you fundraise for Guide Dogs and have shared the really cute pic of Indy one of Trigger's litter. She's adorable!. Did you see the Guide Dog training program last year on Ch5. It was so good and interesting!. I so understand how important it is to do something different other than medical stuff all the time. I used to volunteer for Cats Protection and enjoyed it. I had to stop when my health worsened so I hope that doesnt happen to you.

Do hope your as well as you can be . Xx🐕💕🐕🤞🐕💕🐕🤞💕🐕💕🤞💕🐕💕🤞

[Eddie66]

Thank you for sharing xxx

[misty14 in reply to Eddie66]

Glad you liked them Eddie. Xx

[Lucylou72]

Little beauties and I love triggers big beaming smile 😁

[misty14 in reply to Lucylou72]

They are adorable lucylou aren't they and i loved Trigger's big smile too.?. So glad you did. 🙂 If you look at cjtigger's reply on this thread there's another gorgeous pic of Indy, another puppy of Trigger's. He's been a very busy lad.

Keep well. Xx🐕💕🐕🤞🐕💕🐕🤞🐕💕

[CecilyParsley]

Absolutely gorgeous.Way to go Trigger !!

I am glad to hear that you are able to eat more but so sorry that you are still waiting for your gastroscopy and worse still your foot op. I truly hope that it happens soon for you, you have suffered long enough.

Sorry about the osteo arthritis it us so painful I know .

I hope that you are having a relaxing weekend lovely? Xxx

[misty14 in reply to CecilyParsley]

Thanx so much cecily for your lovely message. Trigger certainly is a superstar for making such a difference. At least i know now with having the OA confirmed why my feet are so disfigured. We've got a lot of it in our family so it was almost inevitable i'd have it sometime.

How did your urogynae appt go?. I do hope it was helpful.

Keeping 🤞i hear soon. It will all happen eventually. Hope you Have a better week yourself. Xx🐕💕🐕🤞🐕💕🐕🤞🐕💕🐕

[CecilyParsley in reply to misty14]

Urogynaecwas appalling. My appointment was for 10.40 and Inwentnin at 1.15, no apology. I was seen by the registrar who kept running next door to consult with the Consultant. I won’t bore you with the details but basically, nothing they can do it is a nerve entrapment she says. No advice given about the genital sores or my bladder voiding. Advised to see the Urologist and speak to them then go back to the private pain consultant. I did tell her politely but firmly that I have worked hard all my life until I got sick and the private Consultant charged £140-£200 a session and the nerve b lockers are £500 a time. I asked why I had to pay to get relief from pain. She said she would refer me to the anaesthetist . My BP set the alarms off at a whopping 193/200 . I felt as if my head was coming off. Then she just discharged me.

She had hurt me badly with her examination, my heart was racing and I could hear whooshing in my ears and I was sweating profusely. As I left a nurse called me in and said the Consultant wanted me to have info about pelvic plugs. I said she has not seen me. I have poor balance and numb fingers. In fairness she said have a look at bladder support pessaries.

I am on my last week of a six week course of steroids next week and I am stronger but not right. At least I can stand unaided and walk short distances now, the lumps in my neck have gone down and the ulcers have healed so I am very grateful. Thanks for asking . I really appreciate it xxc

[misty14 in reply to CecilyParsley]

Oh cecily, i am very sorry you had another really apalling appointment, being treated so badly. Its so rude not to apologise for running so late!. Common curtesy that we've lost. I'm sorry too that she hurt you badly and didn't offer very much except the urologist and pain clinic. You must feel like a parcel being passed round these different depts!. I don't suppose urology will be any nicer , hopefully the anethetist will as they're specially chosen for pain clinics. I'm very sorry you have a nerve entrapment problem like i do and isn't the pain apalling?. I'm so lucky with my pain consultant being so willing to help .i wouldn't have coped for years with the pain on top of everything else and i wouldn't manage now!. Nerve blocks and injections keep me going!. Good for you saying about the cost of private and how you can't afford it. Just hope the wait isn't too long until you see somebody. 🤞

What would we do without steroids?. Have no life at all. I'm glad the short course has given you good benefit and i hope it lasts for you. You really do deserve a break too from years of pain and misery.

Will keep my 🤞 for us both. Have another better week lovely and take care. Xx

[CecilyParsley in reply to misty14]

Thank you, it sucks doesn’t it? I have this autonomic reaction every time I get the burning up inside.i sweat and my heart rate soars and I cannot keep still or sleep. The last time I slept was Friday night. I am like a zombie. I do it fancy vaginal nerve blocks but I am prepared to try it. You are right we all deserve a break Misty, so many of us are struggling currently.

My husband said that he was shutting me out with his headphones because he was fed up of hearing about my health issues. It hurt me so much because I have no one else. Thank God we have this safe space to talk about it. Bottling it up is toxic I think.

I hope you hear soon lovely. Lots of love xxx

[misty14 in reply to CecilyParsley]

That's just awful cecily, you can't live with that and function. Do the steroids make any difference to it. I'm very fortunate that my autonomic system is not affected!. I just have the damaged nerve pain which is enough to cope with!!. Touch wood it stays that way!. . As you know kay is our go to expert on here for it!. I just hope you get to the anaethetist quickly. 🤞

As to partners or family members switching off like that!!. Yes, it is very hurtful but sometimes understsndable as it can be too much for them too ,although they don't have the physical suffering!. I hope he doesn't do it too often. You are so right , we're so lucky to have the forum where we all understand what we're all having to cope with. Bottling emotions is very bad if done regularly over years.

I hope i can update soon with foot op date. Its definitely worsened recently. I hope they write so i can tell them as i'm still waiting. Hope you have a better week lovely. Xx🐕💕🐕🤞💕🐕

[CecilyParsley in reply to misty14]

Thanks Misty re my husband yes he shuts me out all the time. I went to pottery a few weeks ago and fell backwards out of my wheelchair. The ladies there have become real friends and they cried with me. I was so relieved that they see me as I feel invisible most of the time. It doesn’t help things.

The hot poker pain used to happen about every few months, now it is weekly lasting 3 or 4 days so I don’t sleep. Then it us catch up. I have spoken to Kay about it previously. The ~gynaecologist said oh it is like a panic attack 😧🤬stupid woman. I suspect the wait will be lengthy to see the anaesthetist which is soul destroying if I am honest.

Let’s hope we both have good news soon . We certainly need some xxx

[misty14 in reply to CecilyParsley]

That's really hard cecily so thank goodness your going to pottery still and have made new friends there. We can be very invisible when in a wheelchair and treated very badly. I hope you weren't injured but its also loss of dignity isn't it?. I'm so fortunate not to need one yet. I stay on my feet with sticks but its not easy on bad days. I'm really sorry how the red hot poker pain has worsened to be so frequent. Its realky taken over your life badly so i hope the wait isn't too long. They are certainly soul destroying when we've waited so long. I'm finding that with my foot. Its specially hard when we've been constantly ill with no breaks!!. Its hard on us patients and also our nearest and dearest!!.

You've brought me luck cecily as So funny, i've just had a text from the hospital do i still want my appt/procedure as i'm on a waiting list?. . I've been able to say its worsened and yes i do so 🤞i might hear something. Pre-op will have to be re-done next month if they don't hurry up!!.

TAKE CARE, lovely. Keeping 🤞for you. Xx🐕💕🐕🤞🐕💕🐕🤞💕🐕

[CecilyParsley]

I bruised my ribs as well as my hip, thankfully my head missed the concrete base of the wheel by inches. I have to take my wheelchair to pottery as her stools are so low I couldn’t get down let alone get back up. At least with it I can sit comfortably for two hours. It is a real burden though to have to take it and my lifting cushion every tine I go but needs must.

Oh I am so pleased that you have had a phone call. Crossing everything for you Misty that you get a date for your op. Ironically I have a pre op anaesthetist appointment for my first knee op. Sadly it is a waste of time as I am too heavy now and been told that I would die on the table. If I don’t attend they will take me off the list and I need to be on it, lose weight and get the autonomic system under control. If they take he off it will be re referral and a two year wait. I have already waited 8 years and never been well enough to get it done. Hopefully the anaesthetist will say we will see you in six months or a year to see how you do 🙏🏻 xxx

[misty14 in reply to CecilyParsley]

That is ironic having a pre-op anaethetist appt for your knee. Cecily. When is it?. They might be more willing to do it as you've just come thru an op ok with a GA?!. Never say never and as you rightly say you must go to keep yourself on the list. 🤞they will re-assess you in 6 -12 months time. It so depends on each individual dr's personality. They're specially chosen for the Pain Clinic!!. Keeping 🤞for us both and an accident free pottery class. You were so lucky , tipping over like that. Xx🐕💕🐕🙏🤞

[CecilyParsley in reply to misty14]

Yes I was lucky. Hilariously the potter was more worried that I might have knocked sone pots over 😂😂. I didn’t thankfully.

I think we have to have a sense of humour when we have a chronic illness don’t we? Xxx

[misty14 in reply to CecilyParsley]

Charming Potter!!.🤣 Definitely cecily , a sense of humour is vital. Its the only way to cope. I have found not talking too much about my health has helped me keep friends. Just stating facts and moving on!!. Another reason the forum is such a great place for us . Keeping 🤞 lovely. Xx🐕💕🐕

[CecilyParsley in reply to misty14]

Thank you Misty. I hope for good news for you soon 🙏🏻 xxx

[misty14 in reply to CecilyParsley]

Thank you too. Xx💕🤞💕🤞💕🤞💕

[Pumpkin2009]

Loved the labs! So cute! I hope you get the foot op soon. I'm not sure what I last said, but have some diagnoses. I have dysautonomia and MCAS. The biopsies showed the increase of mast cells. So I will go back on treatment for that and see the immunologist in August as well. I also have some antibodies that are low and need to be checked out. Not really shure what to expect, but at least I know what is causing some of the issues. That is always a help.

Healing hugs.

[misty14 in reply to Pumpkin2009]

Hello dear pumpkin, lovely to hear from you. I'm so pleased your getting answers at last . Interesting its dysautonomia and MCAS . I'm just learning about this for another forum friend of mine. Does the treatment involve an anti histamine by any chance?. What does it involve?. I'm glad you will go back to immunology in Aug. You have waited so long for help and answers because without them we can't be treated and hopefully improve. Do hope it means the awful hallucinations are better. Kay will be pleased at your news as she's our autonomic expert!!. You must be so relieved!. I too have news so watch out for another 'cutie pic' very soon. Had a very tiring day today so can't do much. So glad you liked the lambs.

Sending lots of healing hugs to you and chat again soon. Xx❤️👍🙏🪻💐🐑❤️