Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,813 members • 28,150 posts

All posts for April 2020

Did some sketching...

Friendly little things....

tree_shadow

•4 years ago

6 Replies

Advice re Prednisone dosage please.

Although I was initially diagnosed with PMR & GCA in 2017, I received another tag of SLE in 2018. Since then I have experienced increasingly more frequent...

Although I was initially diagnosed with PMR & GCA in 2017, I received another t...

7Angie3

•4 years ago

12 Replies

SLE Lupus

Hi, Thank you very much. But as the UV’s starts (I flare start away). I’m using my creams on my face and it keeps it at bay, but it’s very expensive, just a...

Hi, Thank you very much. But as the UV’s starts (I flare start away). I’m using ...

Teanna

•4 years ago

2 Replies

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I can’t believe what I just saw

I had to share this because I cannot believe what just happened on my street. A flatbed truck and a van pulled up and out comes four workmen, they were...

I had to share this because I cannot believe what just happened on my street. A...

Froggie70

•4 years ago

28 Replies

Simplified information ?

I read some information about Covid 19 and lupus,last evening. I sort of understood it,but lupus fog helps nothing. Have seen a comment in the online Guardian...

I read some information about Covid 19 and lupus,last evening. I sort of underst...

Oshgosh

•4 years ago

2 Replies

COVID-19 Global Rheumatology Alliance Survey

The COVID-19 Global Rheumatology Alliance is calling on people 18+ with rheumatic diseases, and parents of children with rheumatic diseases to participate in a...

The COVID-19 Global Rheumatology Alliance is calling on people 18+ with rheumati...

Chanpreet_Walia

LUPUS UK•4 years ago

6 Replies

I’m taking Hydrochloride (sorry about the spelling), but I’ve been diagnosed with Chronic Lupus (skin).

I thought that SLE Lupus deals with the organs. But as I said, I have Chronic Lupus (skin) taking the Hydrochloride. Please can you explain. I would myself,...

I thought that SLE Lupus deals with the organs. But as I said, I have Chronic Lu...

Teanna

•4 years ago

7 Replies

LUPUS EUROPE Survey on Hydroxychloroquine Supplies

Are you a lupus patient who takes hydroxychloroquine? Have you been experiencing any issues when collecting your hydroxychloroquine prescription from your...

Are you a lupus patient who takes hydroxychloroquine? Have you been experiencin...

Chanpreet_Walia

LUPUS UK•4 years ago

5 Replies

UK Azathioprine Supply

Hi everyone, We've received a number of reports over the past couple of weeks from people with lupus who have been unable to fulfil their prescription of...

Hi everyone, We've received a number of reports over the past couple of weeks fr...

Paul_Howard

Partner•4 years ago

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Public Health Wales stopping B12 injections - clarification please?

Hi all, Thank you for all of the help I recieved, it is very much appreciated, so thank you! Spoke with GP practice manager this morning and she has said they...

Hi all, Thank you for all of the help I recieved, it is very much appreciated, s...

Ceri-NorthWales

•4 years ago

22 Replies

An interesting update on COVID-19

https://www.thebusinessdesk.com/northwest/news/2058106-in-beijing-the-rush-hour-is-back-%e2%80%a6-how-long-before-the-traffic-returns-to-normal-across-the-north

https://www.thebusinessdesk.com/northwest/news/2058106-in-beijing-the-rush-hour-...

Kevin53

•4 years ago

2 Replies

Bone Broth

Good morning my fellow Lupies hope everyone is doing ok in isolation. Just wanted to share my findings with everyone, as recommended by my son for the last 7...

Good morning my fellow Lupies hope everyone is doing ok in isolation. Just wante...

svfarmer

•4 years ago

1 Reply

Blood test

Got to go and have my monthly blood test this week due to my MethX. But I have been shielding for three weeks and am really nervous. Do you think I will look...

Got to go and have my monthly blood test this week due to my MethX. But I have b...

Dreams2rememeber

•4 years ago

8 Replies

Breakfast time!

Morning all, no sun here today so not great for photographs but thought you might like to see all five of my feathered friends eating their breakfast. This is...

Morning all, no sun here today so not great for photographs but thought you migh...

Ieuann133

•4 years ago

2 Replies

SEEKING ADVICE WHILST AWAITING DIAGNOSIS

Hi, I am a newbie to the site and it would be wonderful if I could get some advice please. I am in the UK (Scotland). I had a bad swollen gland in my neck last...

Hi, I am a newbie to the site and it would be wonderful if I could get some advi...

Rockgrrl

•4 years ago

9 Replies

Monte and pape sunning themselves!

Finally managed to get a picture on! Been AWOL for a bit, this covid19 malarkey is certainly freaking me out... when will life get back to some semblance of...

Finally managed to get a picture on! Been AWOL for a bit, this covid19 malarkey...

Ieuann133

•4 years ago

9 Replies

Update on previous post

Following on from my post Abandoned. Thank you to everyone for your suggestions on how to find help. My first port of call was my GP and low and behold within...

Following on from my post Abandoned. Thank you to everyone for your suggestions...

PickledGinger

•4 years ago

3 Replies

I don’t seem to be able to post pictures

Does anyone know why?

Ieuann133

•4 years ago

1 Reply

Worried in isolation!

I just saw the above which is rather worrying and I’ve just been talking about it with the microwave and toaster and we all agreed that things are getting...

I just saw the above which is rather worrying and I’ve just been talking about i...

Spotty-ewe

•4 years ago

52 Replies

Happy picture for Dash

This little lady brightens my day

suzannah16

•4 years ago

4 Replies

Sheilding letter

Hi all, Can anyone advise if am entitled to receive the shielding letter as currently am not on any medication. I only take steroids when i get a flare up....

Hi all, Can anyone advise if am entitled to receive the shielding letter as cur...

Jesse040501

•4 years ago

17 Replies

How many here have had covid-19?

I heard today that scientists first clue to try Hydroxychloroquine as a treatment for the Corona Virus, was because they found that people with Lupus were...

I heard today that scientists first clue to try Hydroxychloroquine as a treatme...

pat1234567

•4 years ago

12 Replies

For Happytulip and her dear Goddaughter Dash😍😍😍

You are my sunshine, my only sunshine, you make me happy, when skies are gray, you'll never know dear how much I love you, please don't take my sunshine away....

You are my sunshine, my only sunshine, you make me happy, when skies are gray, y...

thestorm

•4 years ago

3 Replies

Curious about supermarkets contacting people to confirm they are on the Government’s vulnerable list? Corona virus related.

Some of my group members have bought this to my attention, having heard about it themselves via a Myositis support group on Facebook. Some people in England...

Some of my group members have bought this to my attention, having heard about it...

Wendy39

•4 years ago

100 Replies

Another diagnosis - GCA confirmed

Hello everyone I hope you are all ok during this very difficult time. I just thought I would update you on this and ask this lovely community a couple of...

Hello everyone I hope you are all ok during this very difficult time. I just tho...

Horsewhisper

•4 years ago

18 Replies

Help with Diagnosis during the currant outbreak

Help with diagnosis My Wife has recently been told by her GP , he thinks she has Lupus, she has a rash on her hands and her fingers are blue , I have noticed...

Help with diagnosis My Wife has recently been told by her GP , he thinks she has...

TELESTEVE

•4 years ago

6 Replies

Knitted hearts for the beloved deceased and relatives of Covid 19

To everyone who can pick up a needle or two. Thought this might appeal whilst we have some time on our hands. ❣️...

To everyone who can pick up a needle or two. Thought this might appeal whilst we...

Horsewhisper

•4 years ago

6 Replies

Newbie

Hi there I’m Bobby from the cotswolds 🤪

ibrar132

•4 years ago

9 Replies

Storms Prayers

For Spotty, and everyone, sharing "Storms" Loving self-isolation, Here he is, in deep unwavering blessing, and prayers to all in this most wonderful...

For Spotty, and everyone, sharing "Storms" Loving self-isolation, Here he is, i...

thestorm

•4 years ago

17 Replies

Isolating with pets.

No longer being a pet owner myself, I’m wondering how you pet owners are coping with the isolation and what the pets are thinking of it.🐕‍🦺🐈🐇🐴🦜 Are...

No longer being a pet owner myself, I’m wondering how you pet owners are coping ...

Spotty-ewe

•4 years ago

38 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2020

Did some sketching...

Advice re Prednisone dosage please.

SLE Lupus

I can’t believe what I just saw

Simplified information ?

COVID-19 Global Rheumatology Alliance Survey

I’m taking Hydrochloride (sorry about the spelling), but I’ve been diagnosed with Chronic Lupus (skin).

LUPUS EUROPE Survey on Hydroxychloroquine Supplies

UK Azathioprine Supply

Public Health Wales stopping B12 injections - clarification please?

An interesting update on COVID-19

Bone Broth

Blood test

Breakfast time!

SEEKING ADVICE WHILST AWAITING DIAGNOSIS

Monte and pape sunning themselves!

Update on previous post

I don’t seem to be able to post pictures

Worried in isolation!

Happy picture for Dash

Sheilding letter

How many here have had covid-19?

For Happytulip and her dear Goddaughter Dash😍😍😍

Curious about supermarkets contacting people to confirm they are on the Government’s vulnerable list? Corona virus related.

Another diagnosis - GCA confirmed

Help with Diagnosis during the currant outbreak

Knitted hearts for the beloved deceased and relatives of Covid 19

Newbie

Storms Prayers

Isolating with pets.

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