SLE Lupus

[Teanna]

Hi, Thank you very much. But as the UV’s starts (I flare start away). I’m using my creams on my face and it keeps it at bay, but it’s very expensive, just a small pot of the day cream is £47, and that’s the cheapest, that don’t cover the eye cream, neck and facial scrub. So every 2/3 weeks, I pay just over £200. But that does not include creams for my body, I’m yet to find one. When I told my dermatologist, she told me to give it time, well it’s coming up for a year and was due to see her, but I got a phone call from UCLH cancelling all my appointments, so I’ve nothing for my legs and arms. Luckily I had a UV awning put outside my door and it covers the strip of the garden and 3m wide, so at least I can go into my garden.

I thank you again

Teanna

[Hidden]

Sorry about this dilemma. Hopefully this will be over soon and we can get back to normal (?) life. Glad you can get outside some. Fresh air does us all good. 🙏my best to you!

[flo_IarFachYrHaf]

I use spf 50 and long sleeves for indoors. For outdoors I completely cover myself, including uv protection workwear glasses, only finger tips showing and have umbrella. UV has really leapt up now.

I do miss the feel of air (and rain) on skin and hope for warm nights