I hope you are all ok during this very difficult time. I just thought I would update you on this and ask this lovely community a couple of questions. About 5 months ago I posted about a severe, left sided headache and received some very helpful replies.
Last week, I was diagnosed with GCA further to temporal ultrasound scan. I will be 53 in July, and symptoms include left sided permanent headache for past 6 months, scalp sensitivity, unintended weight loss, night sweats, low grade fever and increased fatigue. GCA was originally ruled out in December as I had normal ESR and CRP levels and was considered "too young". Recently, I had recent elevated CRP but normal ESR. The scan was conclusive. So now on steroids and in the high risk shielding category. I will of course need to be even more careful, washing the delivery parcels, not go off the premises etc. I still have the tremor and am waiting for Neuro appt in June for this to be investigated.
A couple of questions for you - does anyone on here or from the PMRGCA site have other autoimmune conditions such as Lupus, MCTD, UCTD, Raynaud’s, Sjogrens etc? I am UCTD and wondered how common it was to have other AI conditions in conjunction with GCA? I might nip over to PMR/GCA and take a look there.
Are there any other complications I should be aware of? I have calcium deposits in my left breast and wondered about atherosclerosis as the GCA is on the left side of my head? Or am I being over cautious/getting concerned about the 2 being related or not? You know what it’s like...getting a diagnosis and then the shock of it and then working out what it all means...then all of this in the midst of Covid19. Thanks for reading, take care wherever you are xx