Hi. I am 44 Years old.
Since i was a child i have always been itchy, I would tear myself raw in order to stop the itch. In my teens i found that Piriton kept this at bay most of the time.
But this is only the start......
In my twenties i started physically suffering in multiple places.
My right hip always gave trouble, which i have now in both hips.
My neck and shoulders were always stiff and painfull.
As time went on i developed tennis elbow, lower back pain, severe fatigue,IBS.
At night i would shooting pains from shoulder to my hands, sometimes in the legs.
I would wake up with no feeling in my hands, and would have to turn alarm clock off with my chin.
For the past twenty years i have suffered with these symptoms with more symptoms developingas time goes on.
For two years now my wrists have given severe pain, so bad i cant lift anything with them.
Recently i have been getting plantifacitus, along with alopecia.
Twenty years i have been into the doctor, I have tried every painkiller and anti-inflamatory going.
I have gone to acupuncture, Various massage treatment.
It took me 5 years to finally get into Rhumatalogy ,As my bloods never showed anything, neither did my Xrays.
When i finally got to Rheumatolgy i didnt even get to see a Rhumatalogist, I saw a Physio of Rhumatology Dept. She told me that It was eith fibromyalgia of i was depressed ( which i was not)
I tried amitriptyline for a long time with no benefit.
It then took me another few years to get back into rheumatology (Finally i showed a slight weak positve in my C-proten level), Still suffering still in pain. with only a shrug of the shoulders from my doctor, as he didnt know what was happening with me.
Once my ACE level was at 130, but that was short lived.
So for past two years i have been going back n forth to Rheumatolgolist.
They did all blood tests, Xrays and Ultra sounds and still nothing to be found.
I was put on plaquenil and steroids. which i dont think helpled. Except..
The steroids i think do help with muscle pains and also whenever on steriods i have no more itch, so no need for Piriton.
Note: My sister has Lupus and have always related to many of her symptoms.
So i got a call yesterday from rheumatologist he said: there i no evidence to suggest i have CMDT or and autoimmune disease. He suggested that it may be psychological,
Which is so wrong as i am and always have been of sound mind. But yes years of pain every day does wear you down.
So they have told me basically to go away , refer to my doctor or go to A&E.
They have given up on me and left me to suffer. i feel there is no help left out there.
I feel my body is failing in so many ways, so many different muscles are paining me.
I am now after so long .. losing hope, It seems that i must just suffer this until the end.
or until something crytical happens.
If i only knew what was wrong i could except it. take the right medicine, eat the right foods etc..
The medical system here is terrible, they just send you off every six months with nothing, but the pain that you feel.
Anyone out there experiencing the same , or have any idea what i have that wont show up ever.
Sorry for the long post... believe it or not it was scaled down.
Here are some links to pictures of my Rashes:
Just a update.. I wont be able to reply here for a while,as in a few hours i will be having half my lung removed, i will get back here once recovered.
Thanks to everyone for kind word and advice
I have had operation and am at home recovering now.
Intresting thing is... They tried for nearly a hour to put in a Epidural.
They could put this in as i had so many Ostephytes going down my spine.
This im thinking may be the cause of multiple aches and pains.
And maybe indication of Osteoarthritus. we shall see.