Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,895 members • 28,225 posts

All posts for November 2013

Pain in my rib cage both sides? Hurts to breath in and out? Below my breast ? Who knows what's wrong with me ?

martjesslopez44

•11 years ago

12 Replies

help for my sis please

morning everyone, im asking on behalf of my younger sister who also has lupus, the cold weather affects her badly, she has a lot of stress in her life right...

morning everyone, im asking on behalf of my younger sister who also has lupus, ...

caninecrazy

•11 years ago

5 Replies

does anyone have bright red skin?

getting ready fro bed tonight and I noticed my skin had bright red patches all over.ihave sores and redness on my hands but never before all over my body.

getting ready fro bed tonight and I noticed my skin had bright red patches all o...

anbuma

•11 years ago

6 Replies

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Head ache 24/7, brain fog, pressure behind eyes, searching for help!

hello! The diagnosis I've been given is pseudotumor cerebri or IIH (idiopathic intracranial hypertension). I've had more surgeries that I can count. You can...

hello! The diagnosis I've been given is pseudotumor cerebri or IIH (idiopathic ...

Austin2323

•11 years ago

4 Replies

Have had to stop Methotrexate due high liver readings, any suggestions???

I have been on Methotrexate since Feb of this year, and gradually came of oral steroids,which I had stopped taking by June-had to have a steroid injection in...

I have been on Methotrexate since Feb of this year, and gradually came of oral s...

bam1993

•11 years ago

8 Replies

Does anybody get purpura type blood marks come up on there face?

I don't get them on my legs, but on both sides of my face near my jawline and these last ones near my lip area. They don't go but do fade and are purple in...

I don't get them on my legs, but on both sides of my face near my jawline and th...

Jo883

•11 years ago

7 Replies

hi, I am getting very sensitive to light. It doesn`t matter where it comes from either. Natural sunlight, light from the tv anyone have it 2

tanithrs

•11 years ago

4 Replies

Does anyone else have a sibling, or close family member, also effected by auto-immune disease?

This is as much of a rant as a question. My sister is getting sicker & being pushed form pillar to post by various doctors. It is so difficult to watch someone...

This is as much of a rant as a question. My sister is getting sicker & being pus...

roobarb

•11 years ago

36 Replies

Hello everyone I'm new to health unlocked and the internet

Hoping to make friends and share problems. I was diagnosed with lupus in 2005. Have some organ inflammation but otherwise I manage as we all do! I'm finding...

Hoping to make friends and share problems. I was diagnosed with lupus in 2005. H...

Hidden

•11 years ago

8 Replies

Christmas is coming...I have mild lupus and Im on Plaquenil only...can you have any alcohol drinks?

No one has said anything about if you can have drinks or not..I only like wine, but is it ok with Plaquenil?

No one has said anything about if you can have drinks or not..I only like wine, ...

dgleds

•11 years ago

13 Replies

Head ache 24/7, brain fog, pressure behind eyes, searching for help!

hello! The diagnosis I've been given is pseudotumor cerebri or IIH (idiopathic intracranial hypertension). I've had more surgeries that I can count. You can...

hello! The diagnosis I've been given is pseudotumor cerebri or IIH (idiopathic i...

Austin2323

•11 years ago

5 Replies

Anyone have experience of Dr Lewis at S T ?

Finally had the call for my first appointment. But still have to wait another 8 weeks. Gutted as I've already been waiting so long. So, what's he like? My mum...

Finally had the call for my first appointment. But still have to wait another 8 ...

Bonnie39

•11 years ago

4 Replies

Starting depo medrol monthly injections soon.any side effects apart from bone thinning known by anyone?

Diagnosed 2005 lupus sufferer

Hidden

•11 years ago

8 Replies

Breastfeeding with Lupus and Sjogrens

Just needing some advice and reassurance as have a 6 week old baby and really struggling to breastfeed due to painful nipples/areola and time pressure to...

Just needing some advice and reassurance as have a 6 week old baby and really st...

pestopickle

•11 years ago

5 Replies

What exactly is a lupus flare?

This may be a silly question and I'm assuming that it is a prolonged period of bad days when symptoms are playing up? Does anyone have the feeling that it's...

This may be a silly question and I'm assuming that it is a prolonged period of b...

jennawings

•11 years ago

7 Replies

Occupational health and lupus query

I am a secondary school science teacher and my head teacher is going to get in contact with occupational health following my recent lupus diagnosis. Has anyone...

I am a secondary school science teacher and my head teacher is going to get in c...

jennawings

•11 years ago

10 Replies

Diagnosis and coping

Hi All, Since my last post I have had yet more bloods, x-rays and ultrasounds. Finally I have a diagnosis of Lupus and I can begin to try and find a way to...

Hi All, Since my last post I have had yet more bloods, x-rays and ultrasounds. ...

cass1984

•11 years ago

5 Replies

How do I tell my family?

After months of investigation last Thursday I was told that I had mild lupus and will be put on hydroxychloroquine in due course. I live 250 miles away from my...

After months of investigation last Thursday I was told that I had mild lupus and...

jennawings

•11 years ago

8 Replies

Hi folks just wanted to ask a question, the school that I work in has had a case of Hand, Foot and Mouth disease.

Can anyone tell me how this would affect me, I have lupus and am on immune suppressants. Thank you. Uzi

Can anyone tell me how this would affect me, I have lupus and am on immune suppr...

uzi41

•11 years ago

3 Replies

Science daily Lupus. Putting Lupus into remission.

I was reading this on science daily. It's a non toxic therapy that acts like a vaccine. We can but hope.

I was reading this on science daily. It's a non toxic therapy that acts like a v...

Melinda

•11 years ago

4 Replies

Very dry,painful,prickly,itchy and peeling skin all over, with rash! Any info would be fab.

Today had first of three infusions of Methylprednisolone.

Lozzanne

•11 years ago

6 Replies

remember I asked abot discomfort in my chest a couple if weeks ago.

I had a ecg last week..everthing was fine, still not convinced though,did see my rheumy today she checked me over she thinks it might be my reflexes and to try...

I had a ecg last week..everthing was fine, still not convinced though,did see my...

jeevan05

•11 years ago

5 Replies

ARE THESE typical SLE Lupus symptoms & do you know what was your lupus trigger?

Diagnosed with SLE 4 years ago. Had/have the usual symptoms like fatigue, swollen joints & muscles, wee lumps on hands and scabby nose etc however wondering if...

Diagnosed with SLE 4 years ago. Had/have the usual symptoms like fatigue, swolle...

SmilingToots

•11 years ago

16 Replies

How do people cope with lupus fatigue and full time employment?

I have just been diagnosed with SLE and will be put on a prescription of hydroxychloroquine. I am 24 years old and a full time teacher and I cannot afford to...

I have just been diagnosed with SLE and will be put on a prescription of hydroxy...

jennawings

•11 years ago

19 Replies

Help I think I've lost my mind!

I was diagnosed with sle in September. I have been quite ill and had some sort of seizure. I am on hydroxychloroquine and it has started to work. Things seem...

I was diagnosed with sle in September. I have been quite ill and had some sort o...

tallytutu

•11 years ago

15 Replies

Facet joint injection-- I have SLE/Sjorgrens and i am having a Facet joint injection in my back.Has anyone got any views or had it? thanks

sunshine16

•11 years ago

11 Replies

What do u think this is: Pain that has moved from lower pelvic area and thighs there for 6 months, then went to collarbone 8 months..poof

What do u think this is: Pain that has moved from lower pelvic area and thighs there for 6 months bitch to get in and out of car or bath tub, then went to...

What do u think this is: Pain that has moved from lower pelvic area and thighs t...

dgleds

•11 years ago

2 Replies

Hi everyone I have my E.S.A. Tribunal next week if I lose is there anything else I can do.

I have supporting letters from my G.P. and Consultant. But still I have no hope. thanks

I have supporting letters from my G.P. and Consultant. But still I have no hope...

gazzasoens

•11 years ago

4 Replies

Flu vaccine

Hi everyone, thanks for the welcome, I'd just like to ask about the flu vaccine, I've got aps and lupus etc. Is it safe to have this, because I read that the...

Hi everyone, thanks for the welcome, I'd just like to ask about the flu vaccine,...

Elfie1

•11 years ago

7 Replies

Is anyone Rhesus Negative?

Im finding more and more people that have autoimmune diseases have rhesus negative blood groups and wondered if there was a connection?

Im finding more and more people that have autoimmune diseases have rhesus negati...

Elle-26

•11 years ago

53 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2013

Pain in my rib cage both sides? Hurts to breath in and out? Below my breast ? Who knows what's wrong with me ?

help for my sis please

does anyone have bright red skin?

Head ache 24/7, brain fog, pressure behind eyes, searching for help!

Have had to stop Methotrexate due high liver readings, any suggestions???

Does anybody get purpura type blood marks come up on there face?

hi, I am getting very sensitive to light. It doesn`t matter where it comes from either. Natural sunlight, light from the tv anyone have it 2

Does anyone else have a sibling, or close family member, also effected by auto-immune disease?

Hello everyone I'm new to health unlocked and the internet

Christmas is coming...I have mild lupus and Im on Plaquenil only...can you have any alcohol drinks?

Head ache 24/7, brain fog, pressure behind eyes, searching for help!

Anyone have experience of Dr Lewis at S T ?

Starting depo medrol monthly injections soon.any side effects apart from bone thinning known by anyone?

Breastfeeding with Lupus and Sjogrens

What exactly is a lupus flare?

Occupational health and lupus query

Diagnosis and coping

How do I tell my family?

Hi folks just wanted to ask a question, the school that I work in has had a case of Hand, Foot and Mouth disease.

Science daily Lupus. Putting Lupus into remission.

Very dry,painful,prickly,itchy and peeling skin all over, with rash! Any info would be fab.

remember I asked abot discomfort in my chest a couple if weeks ago.

ARE THESE typical SLE Lupus symptoms & do you know what was your lupus trigger?

How do people cope with lupus fatigue and full time employment?

Help I think I've lost my mind!

Facet joint injection-- I have SLE/Sjorgrens and i am having a Facet joint injection in my back.Has anyone got any views or had it? thanks

What do u think this is: Pain that has moved from lower pelvic area and thighs there for 6 months, then went to collarbone 8 months..poof

Hi everyone I have my E.S.A. Tribunal next week if I lose is there anything else I can do.

Flu vaccine

Is anyone Rhesus Negative?

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