Worried: Hi just wondering if this has... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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racytracy profile image
6 Replies

Hi just wondering if this has happened to anyone else I had my right lung removed last year due to having lung cancer & 2 years ago both my husband and dad had lung cancer sadly they've both passed away.. what I wanted to know is after my surgery I had 4 sessions of aggressive chemo went for a ct scan & found my lymph nodes enlarged does this mean my cancer is back.

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racytracy
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Lifesab profile image
Lifesab

Hello Tracy.

I can only talk from my own experience. I was diagnosed with lung cancer in 2012 and had radiotherapy and chemotherapy. This sadly, did not work and I had my left lung removed in 2013 followed immediately by further chemotherapy. A scan thereafter revealed that the cancer had spread to lymph nodes in my neck and chest. My oncologist then sent my lung tissue back for genetic testing and it was discovered that I was ALK positive which is a genetic mutation. For the last 20 months I have been taking a drug called Crizotinib. After 6 weeks of taking the drug some of the tumours had disappeared and some had shrunk by two thirds. I am not sure if your oncologist has explored the possibility of you being ALK positive. For more information on the drug enter Crizotinib in the search box on this site and you will be able to read about other people's experiences. I would suggest you speak to your lung cancer nurse specialist. Take care.

Colin

racytracy profile image
racytracy in reply to Lifesab

Thank u for replying & no my oncologist hasnt mentioned anything will enquire when i see him again thank u for bringing this to my attention.

excavator profile image
excavator

Are you having investigations into the cause of lymph node enlargement? I had node enlargement found at annual CT in December 2015 (also had my right lung removed in June 2014) but biopsy found it to be benign - not cancer.

racytracy profile image
racytracy

Im waiting to go for pet scan they are more worried because i have a rare cancer.

merilee profile image
merilee

I f2f adenocarcinoma stage 2A, surgery and .. clean up.chemo ended in Sept,non scan in February chest lymph nodes enlarged.biopsied cancer.

chemo must have missed...called a local recurrence. Radiation x30. Chemo x 4....good change.to get it....no spread.,Dr told me it is common, I had the wedge resection...keep updates.on here...stay strong. M. M

racytracy profile image
racytracy

Thank you for your rply I have my pet scan on Wednesday I have a mix of non small cell & small cell lung cancer witch is quite rare so I'm hoping I don't have to wait long for my results & I will keep you updated.

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