waiting is so hard.

[Robertjb]

Hi everyone i finished 6 chemo;s and 30 rads for tonsil cancer 2 yrs ago. 3 weeks ago blood in sputum

cheast xray, 2 weeks later gp called round said bad news multiple shads on both lungs,still won't see my onc till 5 april and no news of ct scan yet,not feeling good as it is, Can not get my head round how slow nhs works.Feeling a bit scary at the moment maybe got too cocky surviving the first cancer,i hear met cancer is hard to beat. any thoughts robert.

[hedgehoggy]

Hi Robert

Im sorry to hear your lung shadows. You need to speak to a cancer specialist nurse if poss. I know Easter is in between. Let them know about the blood in your sputum. They may see you sooner and make yourself a nuisance. Your onc will know what's what after he's had his mdt meeting. But you should be able to speak to someone. I had lung cancer, an op. then a brain tumour. I'm doing really well touch wood but still do not count my chickens - although I should as it's Easter ha, ha.

Keep strong and stay positive!

Let us know how you get on.

Best wishes

Hoggy

[Robertjb in reply to hedgehoggy]

Hi hoggy thanks for your reply,1 hour ago a lovely voice was on the phone saying hello robert im your cancer nurse jo and im trying to get your ct scan asp.then ill be at your meeting on the 5th april, also i can ring her anytime,which is good to hear as i don't feel all that good at the moment. She seems cheery and helpful,not like the one i before i never saw her in 6 months of treatment,found out later she had retired.Its a help knowing there's help at hand beside's your family who know what your going thro,I know from last time its about getting your mind right or it will just devour you.Thanks hoggy for your support' robert.

[Rachelhols]

Hi Robert,

Sorry to hear about your X-Ray's. As Hoggy says, make a nuisance of yourself. Push them for a CT scan. You could try emailing your oncologist if you know their name, and include their secretary in on the email. Just tell them how frightened you are and if they can help in getting your scan booked ASAP. Email addresses should be on your hospital website. I did this for my husband and got his scan 10

Days earlier than we were told. I'm glad your nurse called you, they are really helpful. Sometimes I've found they may not be able to call you back until later that day or the following day if you have to leave a message, but they always call back with the answer. Wishing you lots of luck. Keep us posted on here, this forum is brilliant.

Rachel

[jujuju]

Hi Robert and sorry to hear your news. Glad things seem to be resolving as your nurse is doing her job! Best wishes

Julie xx

[Robertjb]

Thanks everyone,It really can be a lonely place when your told. And thanks to forums like this you no your not.Strange i always liked Roy castle years ago' a very talented man, never dream't one day id be joining is club,let the show begin.

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Helllo Robertjb, 

Welcome to this forum and sorry  to hear the news that you have shadows on your lungs. 

Glad to hear that the cancer nurse has now made contact with and hopefully can arrange for the scan to be performed sooner, it is good to have a name an number of  someone to contact. 

Its easy to put on a brave  face for your friends and family  but you need to be able to talk openly about concerns or  worries  this forum a great place for support. You can also call our helpline day time Freephone 0333 323 7200 option 2 and the nurse or support staff will be happy to talk to you.