need more research on controlling diet for beh... - Behçet's UK

Behçet's UK

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need more research on controlling diet for behcets

Chamanti profile image
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I was on steroids for some time and was scared to go further on immune suppresents, which will cause more harm in another way s. so I tried controlling diet which worked . Thanks to googling and many posts by people and some research papers written by some doctors which actually gave me an idea of doubting food as the cause. Still I get mouth ulcers ocassionally becoz lectins, salicylates r there in almost 80% of foods, but cooking properly helps in eating some of them. No tea , no coffee, no nuts , no raw veges and fruits, no eating processed food and no eating out side home , eating only home cooked food prepared by me . It is difficult to live this way but felt more worth than pain and suffering and harmful meds . hope there is more research to give more relief for people around to come out of this.

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Expectthebest profile image
Expectthebest

Adding chemotherapy drug like cytoxan addition to Azothioprine (Imuran) should help. Or ask if you can switch to if Rituxan infusions. You should see remarkable improvement

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