Blood test negative, help

[Benne09]

I have just found out that hlb51 (think got that blood test name wrong- think u know one I mean) is negative but have many Behçet symptoms. Does this mean I definitely don’t have or is this common?

[Legomum]

The pattern changes across the world. Recent studies shown about 15% of UK patients with confirmed Behcet’s disease were HLA B51 positive. Much higher in those of Turkish descent.

[Benne09 in reply to Legomum]

Thank you

[Zuzu798 in reply to Legomum]

This is so interesting thank you for sharing

[sian35]

Not all behcet patients have these marker so don’t worry about it

[Benne09 in reply to sian35]

Thank you

[2106]

I had this and was negative but diagnosed with BD xx

[Benne09 in reply to 2106]

Thank you x

[Expectthebest]

Skin pathergy test is still only definitive test. Goes by symptoms. Especially with eye involvement. That's why tough for diagnosis & proper treatment. Especially if your physicians are not educated in BD

[Benne09 in reply to Expectthebest]

Thank you x

[gillianTS]

I was with consultant in clinical genetics last week and he would not even test me for this said only 5% of UK population with Behcet's tested positive and only 25% worldwide and the test neither clinically proved you had or did not have Behcet's. I thought it was a routine test I would have had but no not with my hospital...

[Benne09]

Thank you that’s good to know, I appreciate it x

[rooser1]

i also tested negative. I was diagnosed off telling a doctor my symptoms, as I did not have any when I saw my Rheumatologist finally. I also was very high for CRP and seg rate during my flares. I am 30 F italian/Lithuanian descent.

[SCMW]

Hi, tested negative for this but received diagnosis of BD. It’s worth googling the diagnostic criteria but you don’t have to have this genetic marker. Hope that helps.

[Benne09]

Thank you all for your responses. I feel I have a place to go to share my journey, which I think has only just begun!! I cannot even tell you how grateful I am. ❤️

[Galaxiegirl89]

I had the same problem so my rheumatologist is convinced that I don't have behcets meanwhile my dermatologist who specializes in Behcets is beyond positive that I do.... I don't know what to do about any of my randomly odd test results either.