Behçet's UK
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Blood test negative, help

I have just found out that hlb51 (think got that blood test name wrong- think u know one I mean) is negative but have many Behçet symptoms. Does this mean I definitely don’t have or is this common?

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The pattern changes across the world. Recent studies shown about 15% of UK patients with confirmed Behcet’s disease were HLA B51 positive. Much higher in those of Turkish descent.

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Thank you

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This is so interesting thank you for sharing

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Not all behcet patients have these marker so don’t worry about it

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Thank you

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I had this and was negative but diagnosed with BD xx

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Thank you x

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Skin pathergy test is still only definitive test. Goes by symptoms. Especially with eye involvement. That's why tough for diagnosis & proper treatment. Especially if your physicians are not educated in BD

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Thank you x

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I was with consultant in clinical genetics last week and he would not even test me for this said only 5% of UK population with Behcet's tested positive and only 25% worldwide and the test neither clinically proved you had or did not have Behcet's. I thought it was a routine test I would have had but no not with my hospital...

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Thank you that’s good to know, I appreciate it x

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i also tested negative. I was diagnosed off telling a doctor my symptoms, as I did not have any when I saw my Rheumatologist finally. I also was very high for CRP and seg rate during my flares. I am 30 F italian/Lithuanian descent.

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Hi, tested negative for this but received diagnosis of BD. It’s worth googling the diagnostic criteria but you don’t have to have this genetic marker. Hope that helps.

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Thank you all for your responses. I feel I have a place to go to share my journey, which I think has only just begun!! I cannot even tell you how grateful I am. ❤️

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