I'm very new to this. I have been healthy my whole life and didn't even realize that I had a disease or that the symptoms I had, being so mild, were symptoms of anything at all. Since the severity of my symptoms has gotten exponentially worse it has greatly impacted my quality of life. I am a mom and going to be leaving my unsupportive situation to go back to my parents where I hope to be able to make progress in my emotional and physical well being. I am currently working to reverse the effects of being in a relationship with a narcissist for 6 years and the intense emotional abuse I have suffered. I was a strong woman until I just wasn't anymore. It was so hard to see the gradual destruction of my soul until it began manifesting physically. I can't deny it anymore. I need help or my son's will loose there Mom.
Newbie: I'm very new to this. I have been... - Behçet's UK
Hi, in a few ways our situation sounds the same, although I moved back to my parents to help out as my father was so sick (and then I became even sicker). My advice is to be realistic and accept that you may be quite unwell for some time - so adjust your physical activities accordingly. This is a great website for support and to vent as we all understand the frustrations- even though well meaning people will tell you ‘but you look so well’. Keep being strong and have a positive attitude.
I hope a positive environment will bring healing to you. Best wishes!!!!
Wishing you the best of health and support for those days that aren't the best. This disease takes you on one hell of a rollercoaster ride but you sound like a woman who has the strength and now the right support to make it. When things get tough we have you in our thoughts and prayers.
Makimg a change like you have, shows how string you are. Your Son’s have an incredible role model. I hope light and healing are coming.
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