I was diagnosed with Neuro Behçets, treated for the symptoms with gabapentin, metho prednislone, immunosuppressants and Diamox
Been pretty much left to it by the hospital with no monitoring and as far as they know I am still on full strength meds I stopped the immunosuppressant after a series of illnesses, stopped all steroids and started to feel more like myself
But, I have now started to reduce my gabapentin intake from 3200 mg to 1600mg a day which has shown to not have impacted me as much as I thought I have reduced diamox in half from 1000mg to 500mg
I am nervous about reducing further but mainly due to withdrawals
I am now starting to wonder could all of the behcets etc have been caused by stress?
All thoughts and advice welcome