this is my first post to the Bahcets Syndrome Society. I've only recently been diagnosed with Bahcets Disease.
Ive been ill since I can remember. Since the age of roughly 5yrs I've been plagued with recurring ENT problems. Tonsillitis , ear infections, asthma , mouth ulcers, and 'growing pains'. The thing is I'm 42yrs old now, and still have the same problems. Then through my teens the mouth ulcers multiplied, so much in fact they they would create one huge canker sore.
I had my first outbreak of bright red slightly raised lesions over my arms, torso, and legs around 19yrs of age. No doctor new what they were. They took months to disappear. They never effect my face at all.
The mouth ulcers continued as standard. Then from nowhere a couple of years later, the red lesions appeared again. Once more there was no diagnosis or connection between the symptoms. I found I was always tired. The body aches and fatigue were always lurking in the background. Then in my early twenties I started to developed jaw ache and neck pain. My lymph nodes in my neck exploded in size.
Then suddenly I developed a huge, agonising lump on the right side of my neck.
It was huge. Larger than a tennis ball. Hard as a rock. I was hospitalised for two weeks on IV antibiotics. The lump receded. No one knew what it was.
All the other symptoms continued, as did the cycle.
In my 20's I developed chronic reflux disease, Stomach bloating and IBS symptoms. I have them till this very day.
7yrs ago my jaw really started hurting, particularly the right. The same side as the lump had many years prior, and my right ear totally clogged up (glue ear), and I started to lose my hearing. Ive had around 6 grommets throughout my life in my right ear.
3yrs ago I had to stop working due to joint pain. My shoulder, scapula, neck, jaw, and lower back became excruciating.
Ive had multiple surgeries, both knees, both shoulders, Colon (4 Sessile Polyps), Stomach (Fundoplication for grade 2 oesophagitis), throat (tonsils and adenoids removed), jaw (bilateral open jaw surgery for bone spurs, a rare benign bone tumor, and disc displacement without reduction bilaterally, and degeneration)....you get the picture. The list goes on.
I developed large lesions/ulcers on my buttocks and back of thighs. And blind lesions on my shins. Bilateral hand, knee, and foot swelling, plantar fasciitis, along with fungal infections and multiple Strep throat infections.
Ive developed depression, anxiety, and some neurological problems too.
I could go on and on, and on.
Has anyone else had a similar development of symptoms?