curious: just a question, I was diagnosed with... - Behçet's UK

Behçet's UK

5,215 members4,318 posts

curious

Victoria40 profile image
3 Replies

just a question, I was diagnosed with Behcets at birth as I had ulcers in both places and my mum has it, my daughter has it too, anyone else diagnosed so early? it's got worse as ive got older :/ but my mums seems to have gone into remission so here's hoping!

Written by
Victoria40 profile image
Victoria40
To view profiles and participate in discussions please or .
3 Replies
Nkusabs profile image
Nkusabs

Hi

I'd be interested to see if anyone else has similar issues. Both of my daughters (5 & 7) have mouth ulcers, I'm hoping it stops there but I live in fear that they'll have behcets too.

Dawn_Dighton profile image
Dawn_Dighton

Me and my 6 children are suffering with this.myself, and my eldest daughter have been diagnosed,my daughter at 21 and me at 38,it so long to suffer with no help.my young daughter is 6 and she been in and out of hospital with very high fever, she so poorly all the time but doctors don't lesson so it is very hard to cope with my children being so unwell all the time. I so wish they could just understand and help. I have to give my children pain relief every day but it does not stop the flaers. I will say godbless you all and good luck but I know from living with this item is more than luck we need. Doctor nend to open there mind andoing help.

Jaxxi profile image
Jaxxi in reply to Dawn_Dighton

Hi. So sorry you are going through this. Your poor children! What sort of pains do they get, and what sort of pain relief do you give them? I have 6 kids too, all grown up now.

xx hugs xx

You may also like...

Could this be behcets?

been diagnosed with. I googled it and it has thrown a lot of questions up for me too. I haven't yet...

Diagnosed in February this year

was diagnosed in February this year but have had symptoms for 6 or so years which gradually got...

Back from B.R.I bristol Hospital After Major Bleed :-(

Well timing could not be worse, My mrs had a baby daughter sunday at taunton hospital 8ib 13oz was...

Does anyone have these same symptoms? Has anyone's condition cleared up? If so what did they do?

years ago. Has anyone else got this? Next came Uvitus, Iritus and Vitiligo and mouth ulcers. Then...

If swellling of the mouth common with mouth sores/ulcers?

Does anyone have swelling with their mouth sores? I havent got an official diagnoses but 2...