curious

[Victoria40]

just a question, I was diagnosed with Behcets at birth as I had ulcers in both places and my mum has it, my daughter has it too, anyone else diagnosed so early? it's got worse as ive got older :/ but my mums seems to have gone into remission so here's hoping!

[Nkusabs]

Hi

I'd be interested to see if anyone else has similar issues. Both of my daughters (5 & 7) have mouth ulcers, I'm hoping it stops there but I live in fear that they'll have behcets too.

[Dawn_Dighton]

Me and my 6 children are suffering with this.myself, and my eldest daughter have been diagnosed,my daughter at 21 and me at 38,it so long to suffer with no help.my young daughter is 6 and she been in and out of hospital with very high fever, she so poorly all the time but doctors don't lesson so it is very hard to cope with my children being so unwell all the time. I so wish they could just understand and help. I have to give my children pain relief every day but it does not stop the flaers. I will say godbless you all and good luck but I know from living with this item is more than luck we need. Doctor nend to open there mind andoing help.

[Jaxxi in reply to Dawn_Dighton]

Hi. So sorry you are going through this. Your poor children! What sort of pains do they get, and what sort of pain relief do you give them? I have 6 kids too, all grown up now.

xx hugs xx