Hello, I'm having a hard time getting my diagnosis confirmed and I feel so frustrated. You see about a year ago I was given a diagnosis of Bechets from my dermatologist. I was having a bought of Sweet's syndrome at the time, which is a very painful skin condition that causes the body to attack the skin and create lesions.
I was very happy to finally get a diagnosis of something concrete because besides the Sweet's I've had many other health concerns that all point to an autoimmune condition. I feel pretty crummy a lot.
So being sent to a new rheumatologist again I was hoping for some validation and proper medication, or at least a plan of some sort. My hopes have been dashed yet again as the rheumatologist disregarded all my symptoms and basically told me nope I don't have bechet's.
I have been to so many dr.s over the past 15 years with zero idea of what I have. So they just blow me off. I feel like I'm really suffering from a lousy quality of life from the lack of support by my dr. She pretty much said I was not as sick as some people so I should be great full. I disagree but where I live (vancouver canada) I have a tough time getting a good dr. My last rheumatologist told me to lose 10 pounds before I came back to see him. I'm not even really overweight!
I do have a lot of symptoms that match up with bechets but not the hallmark mouth/vaginal sores.
I just wonder if anyone else has had a difficult time getting diagnosed and how they finally got diagnosed. I'm so tired of being shuffled around.