Hello Fello Suffers,
I have recently had a colonoscopy that showed ulcers, inflammation and odeama in and around the ileum valve and ascending colon. I wondered if anyone else has ulcers in this region as I have read that it is quite rare for Behçet's to have gastric ulcers?
The Histology report, by the way, does not rule out Crohns...I understand that it is difficult, in some cases, to differentiate between these 2 syndromes, but I am beginning to suspect I might be suffering from Crohn's rather than Behcets. I have arthritic pains in my hands, feet, upper and lower spine, ulcers (nose, mouth, genital and peri-anal) significant fatigue, brain fog (used to get terrible headaches but these stopped), frequent ear , jaw pain and dizziness. I am British, so are both my parents, all my grand parents and their parents too. I was mis-diagnosed with Herpes at 18 years...then diagnosed with Behcets at 46 years, I've just turned 49 years. I didn't respond to Aziathiprine, or Mychophenolate (cellcept) on this for over 1 year, and I've just started Infiximab infusions. ( I cannot imaging life without suffering from these symptoms, especially the ulcers, but it might happen with the Infliximab )
Another question, is: when a colonoscope is performed to query Crohns, should biopies be taken even if ulceration is not visible?
I'd appreciate any comments.