I think this is the first time I've written although I follow the posts daily. I have Behcets and hereditary sensory neuropathy (Charcot Marie Tooth disease). It is on the same spectrum as muscular dystrophy. The two things cause multiple problems and I am never free of pain or ulcers and skin problems. I am on número use pain killers as well as immune suppressants etc. the reason I'm writing is that I was referred to the pain clinic I waited months for an appointment but eventually my turn came. The appointment was for 45 minutes but after 10 minutes the dr said my problems were too complex and she couldn't do anything for me but a nerve block might help a little so she would book me in. Yesterday was my day to go for the nerve block, I am self employed so had to close the business for the afternoon, I arranged for lifts as I wouldn't be able to drive and sorted for someone to be with me for 24hrs. Was admitted any allergies yes lydercaine, ah that might be difficult. She came back 10 minutes later to say they would not do the procedure as they would have to get a different local anastetic and as I had so much pain one less wouldn't make a lot of difference. I am annoyed but also feeling a bit low as one less pain even for a few weeks would have made a huge difference, my future is more drugs and I was trying to avoid that even the physio will no longer touch me as she is worried she will do more harm. Sorry for rant just cheesed off and future doesn't look promising.
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