It's good news in a way. About two years ago my wife started getting mouth, genital and other ulcers,amonst other symptoms.18 months ago she was referred to Professor Moots at Aintree Hospital where a Centre of Excellence was being set up.Well, our experience is it being a centre of slowness.Months waiting for an appointment,travelling from Manchester to Aintree to see just Moots. Months waiting for the next appointment, see Moots and one specialist.Months'till the next appointment,have it cancelled a week before,wait again etc etc.Eventually to e told we don't think it's Behcets,can't help you,go back to your Rheumatologist.I'm upset that it took so long to say it's not Behcets, my wife continues to suffer, our hopes have been dashed and we're as helpless as we were two years ago.
One of the worst things in life is seeing a loved one living in pain and suffering, feeling helpless, and no-one knows what it is or how to stop it.
Doubtless some people have had a better experience at Aintree, but our experience was not a good one.
Thanks for listening, folks.