Took possession of my new Luggie Monday. Very nippy little thing. Mum, Dad and I went out for lunch yesterday (funny thing was we got Dad to use it first). It’s great to fold up and put in the boot compared to his shop rider. It is a bit heavy for one person but definitely manageable for me at the moment.
Now I have to own up that the photo you usually see is a good 10 year’s old. This is my face and body after three years of very aggressive treatment (although I was always pretty solid). Am now down to 15mgs prednisone, will find out in the next couple of weeks what the next course of treatment will be.
Cheers
Lesley
PS If the picture doesn't come up I'll have to see what is wrong - had problems a few weeks ago
Written by
lesleyg
To view profiles and participate in discussions please or .
Have to be honest and say that I have been a bit embarrassed about my 'plumpness'.
I've always struggled with my weight.
I was born a fat baby and went through childhood with everyone telling me I would grow out of it. Even when I'm sick I don't lose anything.
I know there are a lot worse things in life so will stop whinging.
(On a very sad note a friend/work colleague rang me today to say that she has been given 6-12 months to live - this is a person who has battled illness since childhood so my comments about weight gain are a bit crass).
The luggie looks to have been the perfect choice for you and you look lovely on it and it looks like a good match for your size of body ratio to scooter and fits you so well.
Talking about size sweetie...... I can really assure you that you look solid and well built but in no way could I describe you as fat ! The way you see yourself will always be different as the years go on and everyone puts on a bit more padding especially with something like BD. Nope..........you are certainly not in the oompah loompah stakes like me. LOL.
Shall we settle on well built and slightly cuddly......... just right for a lady of your age I would say ! Who wants to be thin and bony as you get older anyway !!
I hope you really enjoy your newly found freedom and whizz about everywhere hun !
Thanks everyone - I'm already feeling better (and yes I have often been described as cuddly).
One more whinge and then weight won't be mentioned again:
I have a beautiful set of 'Hawaiian Blue Pearls' which were a bit of my trademark (you can see them in the picture that comes up with any comments I post).
Anyway they definitely accentuate the double chin - and almost strangle me. Anyone have any suggestions for redesigning them?
What a lovely photo and believe me after 3 years of streoids and putting on 4 stone in weight, I think we are all 'cuddly'. You look very relaxed on your new scooter and I hope you have many a time whistleing down the street with the wind in your hair!!!
You look comfortable & extremely chuffed with your new V8. Well done, anything to make life easier.
I must say, Jaida is having a tough time & I had to rent a wheelchair from RCH today. She had an ophthalmology appointment today, which went Ok no better but no worse. So I'm happy with that. When it was time to leave I carried Jaida to her seat in the car then had a massive battle getting the wheelchair in the boot of my little car. I think it made it by 1cm. Ha.
All the Rhumatologists were at a conference so we had to go through emergency. The doctors discussed by phone and after finally getting Jaida down to 15mls of steroids, we were put back up to 25mls. I'm sure her joints will calm down soon but the wheelchair will be helpful for my back.
Hi Michelle everyone seems to think scooters are more manageable - do they have ones for children? Also, be very careful of you back - as you have mentioned,
Thanks Angela - it is so fast I will have to be careful!
BTW - the pearls I mentioned above are Tahitian Blue (not Hawaiian) - worth a fortune but I got them at the Victorian Markets in Melbourne for about a fifth of the price (have had them valued and they are genuine). I love pearls and have been slowly getting a nice collection.
I feel terrible and selfish but I really want one.
I'm a little worried about lifting it in and out the boot of the car as my arms can be very weak. I will look at the spec and practice lifting a sports bag of the same weight
I'm so very pleased to see you getting out and about xx
I am sorry I wrote this post first thing this morning and was unable to post it until late in the day.
So I missed your post about your friend....I am so very sorry.
I have a friend who is also very ill and although it does make one appreciate the preciousness of life itself...its torturous to watch a friend go through this, so wishing you both peace.
As for the pearls I have some on my wish list to treat myself on our "world tour"
We have already been stopped on our first day out with the Luggie and are going to the shopping mall for the first time this morning so I dare say a few more people will be looking at it.
Have a look on YouTube about the way it folds up. It does weigh about 23kg, but the idea is most of the time it would be put into the car in the extended position (makes sense if you see it). Mum and I put the front wheels up and then push the back in (we have a hatchback). I particularly wanted something I could do myself - which I can with this one.
(In one of the videos the girl looks like she could be in the Olympics she is so fit! They could have had someone our size and state of health).
Both you and the scooter look good and its amazing that its so portable.
I was thinking the other day of how much harder it must've been for people suffering illness and disability last century and often wonder how they managed during their lifetime. We are fortunate that inventors have devised such great gadgets to make our lives easier.
My favourite gadget is the rubber twister that opens jars for me.
Take care and glad to hear that you had a nice lunch out with your Folks.
I think the photo is fabulous. I see a lovely smiley lady, and certainly not a fat one.
I have been struggling with weight too. It is because I am so vain I don't want to look like Mrs Michelin in my wedding photos, but although I have shifted some weight, I am certain it will go back on afterwards.
Mike has a saying that it is the letter and not the envelope which is important.
Have a great time with your scooter. I wouldn't be without mine!
Yes I'm afraid the weight (and scooter) are here to stay.
Thanks for the comments about my friend. She is very matter of fact - this has been coming for a long time so in some ways I think she has already accepted it.
Apparently there aren't many of these sold in Australia yet - I did a lot of research before I bought it as it was twice the price of some of the shop rider scooters.
I must be pretty vain - wouldn't put the first few photos up and demanded a reshoot!
As someone else pointed out a lot of other 55 year olds are about this weight - one thing I am proud of is I have only gone up 3kgs since starting treatment.
Scooter photography is really nice, always so cheerful and happy to see all the four cases only wish friends. I was carrying this responsibility, only wish to perform in a short time.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
REPORT ON FIRST INFUSION OF REMICADE (100mg INFUSION). HERE IS WHAT IT WAS LIKE.
10 years of BD
New and in the diagnosis process
Is emotional coldness and heartlessness a common symptom??
