Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,378 members•4,387 posts

All posts for March 2013

Behcets and vitamin D deficiency

My Rheumy's office called me this morning and told me my vitamin D levels were dangerously low. Wasn't sure if this is connected to Behcet's, but after doing...

My Rheumy's office called me this morning and told me my vitamin D levels were d...

Shalom-yall

•12 years ago

25 Replies

"Symptom: Purpura and ecchymoses (bruises)."

Hi all, Someone was inquiring about bruise-like spots appearing on the skin. As a symptom of Behcet's they are called Purpura (smaller ones) and Ecchymoses...

Hi all, Someone was inquiring about bruise-like spots appearing on the skin. As...

Shalom-yall

•12 years ago

7 Replies

Diagnosis and blood tests

I sent this email to another member who had more questions about diagnosis: Your frustration is understandable, but the proposed 2013 ICBD "point system" is...

I sent this email to another member who had more questions about diagnosis: Y...

amietamant

•12 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Why is it......

That it is so much easier for me to explain to you all about what happens in this funny old body? I've learnt more in a couple of days from your shared...

That it is so much easier for me to explain to you all about what happens in thi...

Jennie-Meg

•12 years ago

6 Replies

Follow-up discussion regarding 2013 research article about diagnosing Behcet's using a point system

I'm always pleased to see further refinement of the diagnosis classification systems for Behcet's. It's particularly important to have robust definitions in...

I'm always pleased to see further refinement of the diagnosis classification sys...

amietamant

•12 years ago

2 Replies

Been a while!

I haven't been on here for a while and just wanted to say hi. I have had a bad flare up with severe back pain and now hip pain (feel like an old woman)....

I haven't been on here for a while and just wanted to say hi. I have had a bad ...

bailey23

•12 years ago

13 Replies

Hi, I live in South Wales (Newport) and was wondering if there was anyone else living in my area?

I would like to meet up with some other sufferers regularly on a social basis where we could perhaps have a coffee and a chat, perhaps offering each other...

I would like to meet up with some other sufferers regularly on a social basis wh...

241sal063

•12 years ago

10 Replies

A very strange condition! The first description a Consultant used to explain about Behcets.

Since I was a youngster I was plagued with horrific mouth ulcers, these were treated by many methods, lozenges, lotions, cautery and much more. I was accused...

Since I was a youngster I was plagued with horrific mouth ulcers, these were tre...

Jennie-Meg

•12 years ago

10 Replies

Does anyone else get ulcers on the mucous membrane lining of their nose, I do and they are very painful

Jennie-Meg

•12 years ago

32 Replies

A break for 4 days

Just over two weeks ago my 10 year old daughter had her first IV Infliximab dose. It had been spoken about for 3 months but due to an ongoing flare increased...

Just over two weeks ago my 10 year old daughter had her first IV Infliximab dose...

Michja

•12 years ago

6 Replies

Diagnosing Behcet's using the proposed point system?

This new 2013 Behcet's research is interesting because it assigns point values to symptoms which make up the clinical diagnostic criteria. A patient scoring...

This new 2013 Behcet's research is interesting because it assigns point values t...

amietamant

•12 years ago

4 Replies

Behcet's patient focus mtg 18 March 2013

Received an invite from Aintree Hosp today, Anyone else from Liverpool going to the patient focussed group meeting on Monday 18th March?

Received an invite from Aintree Hosp today, Anyone else from Liverpool going to ...

Lara72

•12 years ago

7 Replies

I just want to be normal! I hate this...

I have had Behcet's since I was about 3 and I was only diagnosed 12 months ago. I am in my mid 30's. I am soooo fed up. I only found out what it is like to...

I have had Behcet's since I was about 3 and I was only diagnosed 12 months ago. ...

stormie

•12 years ago

12 Replies

Has anyone had skin atrophy on their head and pitting atrophy on legs? Diplopia? Headaches? Etc.

To all out there just a query while I await for diagnosis. I have an indentation to the back of my head, I had a biopsy that was inconclusive, fat atrophy was...

To all out there just a query while I await for diagnosis. I have an indentation...

Teen76

•12 years ago

5 Replies

swollen not stirred

hello all i woke up today after going to sleep feeling a bit sore swung the legs out of the bed and when i went to stand up i looked down at my feet and the...

hello all i woke up today after going to sleep feeling a bit sore swung the legs...

scruffy1

•12 years ago

11 Replies

How does a person actually prove that they have this immune disease is there a positive test

croal

•12 years ago

8 Replies

Things can only get better!!

Well got results lumbar puncture ok mri ok BUT and. Its a big but o have an anursym on my brain.........to add insult to injury my OH the recovering alcholic...

Well got results lumbar puncture ok mri ok BUT and. Its a big but o have an anur...

ruthbalbirnie

•12 years ago

7 Replies

are hot flashes common with Behcets

croal

•12 years ago

7 Replies

Anemia causing flares?

I've been reading here for months since someone on Ravelry told me about this site. I am in the US, so there is just not much info that Dr's here know...

I've been reading here for months since someone on Ravelry told me about this si...

Kayhold

•12 years ago

2 Replies

new to this site

hi everyone i was diagnosed with bd last sept after 8 yrs of on and off illness.The doctor i was under was never interested in my symptoms so i changed to a...

hi everyone i was diagnosed with bd last sept after 8 yrs of on and off illness....

scruffy1

•12 years ago

10 Replies

Purple "bruises"

Hi All, Finally got up the nerve to post on this forum! I am submitting a photo of what happens when I have a breakout. This has happened with the last three...

Hi All, Finally got up the nerve to post on this forum! I am submitting a photo...

Shalom-yall

•12 years ago

23 Replies

Itchy bruning skin all over is driving me crazy gggrrrrrr

Hi I have a couple of things going on foe me atm and was wondering of any one could shed some light for a few months I have had a lot of itchy burning hot...

Hi I have a couple of things going on foe me atm and was wondering of any one co...

nickyclem

•12 years ago

6 Replies

Acceptance is the first hurdle

Hi Folks After receiving the results of my second MRI brain scan in 18 months, I've come to the conclusion that my hectic job with a heavy workload is...

Hi Folks After receiving the results of my second MRI brain scan in 18 months...

MrsVMac

•12 years ago

9 Replies

thank you for welcoming me to your family

Silly me forgot my password - even tho I thought I wrote it down properly!! I have been working past couple of days and that wears me out ---LOL It seems...

Silly me forgot my password - even tho I thought I wrote it down properly!! I ...

Hidden

•12 years ago

2 Replies

Double trouble

HI this is my first blog.I would like to know if anyone else has sjogrens syndrome as well as behcets. there are many overlaps with these 2 autoimmune...

HI this is my first blog.I would like to know if anyone else has sjogrens synd...

cfuins

•12 years ago

4 Replies

Questions about Methotrexate, MRI scans and NeuroBehcets

Hi, Went to see my consultant today and have been taken off Azathioprine and been put on Methotrexate (6 x 2.5mg) as my symptoms of Behcets have gone...

Hi, Went to see my consultant today and have been taken off Azathioprine and b...

Wellington

•12 years ago

6 Replies

Tink

Hello everyone, I have been reading your comments questions and answers for a month now, just plucked up the courage to say hello. I have has BD now for 8...

Hello everyone, I have been reading your comments questions and answers for a mo...

tinkmbs

•12 years ago

1 Reply

Couple more questions, sorry!!

Firstly, do your ulcers 'downstairs' always reappear in the same places? If you get them around and in the bottom, do they bleed when you go to the toilet?...

Firstly, do your ulcers 'downstairs' always reappear in the same places? If you ...

dizzy2

•12 years ago

8 Replies

Hi is there anyone on steroids?After taking them for 6 week, my dosage going down my symptoms are coming back?Anyone else experience this?

Kerry1

•12 years ago

7 Replies

Hello I'm new to the site.I was diagnosed 4 years ago after I was having all these symptoms for many years.

Mouth ulcers , eye problems ,fatigue, headaches, itchy skin and very painfull joints are just a few of the many problems that ,seems to present to us in this...

Mouth ulcers , eye problems ,fatigue, headaches, itchy skin and very painfull jo...

Hidden

•12 years ago

6 Replies

Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for March 2013

Behcets and vitamin D deficiency

"Symptom: Purpura and ecchymoses (bruises)."

Diagnosis and blood tests

Why is it......

Follow-up discussion regarding 2013 research article about diagnosing Behcet's using a point system

Been a while!

Hi, I live in South Wales (Newport) and was wondering if there was anyone else living in my area?

A very strange condition! The first description a Consultant used to explain about Behcets.

Does anyone else get ulcers on the mucous membrane lining of their nose, I do and they are very painful

A break for 4 days

Diagnosing Behcet's using the proposed point system?

Behcet's patient focus mtg 18 March 2013

I just want to be normal! I hate this...

Has anyone had skin atrophy on their head and pitting atrophy on legs? Diplopia? Headaches? Etc.

swollen not stirred

How does a person actually prove that they have this immune disease is there a positive test

Things can only get better!!

are hot flashes common with Behcets

Anemia causing flares?

new to this site

Purple "bruises"

Itchy bruning skin all over is driving me crazy gggrrrrrr

Acceptance is the first hurdle

thank you for welcoming me to your family

Double trouble

Questions about Methotrexate, MRI scans and NeuroBehcets

Tink

Couple more questions, sorry!!

Hi is there anyone on steroids?After taking them for 6 week, my dosage going down my symptoms are coming back?Anyone else experience this?

Hello I'm new to the site.I was diagnosed 4 years ago after I was having all these symptoms for many years.

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