Hi, I live in South Wales (Newport) and was wo... - Behçet's UK

Behçet's UK

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Hi, I live in South Wales (Newport) and was wondering if there was anyone else living in my area?

241sal063 profile image
10 Replies

I would like to meet up with some other sufferers regularly on a social basis where we could perhaps have a coffee and a chat, perhaps offering each other support. I've looked on the website but there is no group in my area at all. I know there is a group in Cwmbran but due to being epileptic I can't get to it as I've had to revoke my driving licence at present. Perhaps in the first instance we could just meet up for a coffee in the town centre and see what the other people (if any) would like to do about a regular get together.

10 Replies
kenjay profile image

Hi have you asked the society to put you in touch with anyone local? I am sure they could help you with this and also to set up your own local support group if you are interested in doing this.

Zebra profile image

Hi, I know three others in Wales with Behcet's. Are you on Facebook? Find me if so or give me a link to find you and I will link you up.

241sal063 profile image

Hi Kenjay, I haven't asked them yet, I thought I'd ask on here first. Thank you for the information though, take care, Sal x

241sal063 profile image

Hi Zebra, I will do that later, thank you for that, take care, Sal x

Zebra profile image

Do you have a good Behcet's specialist? One of my Welsh friends is struggling due to the Welsh Assembly position on referrals, but we hope to get her sorted. I actually know of 4 others in Wales, I've realised. Do message.

I'm from r.c.t.im under the Heath in Cardiff . They have been brilliant very supportive .only diagnosed in aug.still trying dif meds.and coming to terms with it all.x

Coll1609 profile image

My 18 year old daughter has been diagnosed with Bechets we are based in Cardiff would love to join a local support group

UKADMIN profile image

The Society has been trying to establish a South Wales support group for sometime and we need a co-ordinator to get things going, please email me at infor@behcetsdisease.org.uk and I will endeavour to get something organised. Anyone interested in joining please let me know

Chris Phillips


saffy_123 profile image

Hi, I'm 37 and live in newport. I was diagnosed with behcets a few years ago and would definitely be interested in meeting up with others..

slappy profile image

Im in weston super mare,not real close but not too far suppose!

I was diagnosed with hughes stovin ie Bd in 2005

all best


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