Firstly, do your ulcers 'downstairs' always reappear in the same places? If you get them around and in the bottom, do they bleed when you go to the toilet?
Secondly, do I have to accept this is it? I have SLE and Sjorgens possibly MCTD, I am on plaquenil and Azathiaprione along with a cocktail of other meds. The ulcers 'downstairs' have only started since being off the steroids. So I am supposedly on effective treatment for my illness.
The ulcers are continual since October, and no sign of stopping, I may get a couple of days free, but that is it. You have all been great giving me advice on topical treatment. My brilliant rheumy nurse is stumped as she says it is so rare. I spoke to a registrar who wanted to change my diagnosis and was more concerned with my heritage ( Did I have middle eastern family?, I don't ).
It is all very depressing really, I think I have behcets as I have positive lupus bloodwork. Anyone any advice? I am not supposed to go back to rheumy till 3 months despite my symptoms. I am thinking of going to the gp to see if I can make progress.
Any thoughts greatly appreciated, and thank you everyone for all your help so far.