Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,252 members • 4,332 posts

All posts for August 2012

I had an appointment for my breathing/sleeping problem today

Hi all Just a quick catch up from my last blog where I was pretty fed up and down whilst awaiting appointments. I visited The Royal Brompton Hospital in...

Hi all Just a quick catch up from my last blog where I was pretty fed up and ...

•12 years ago

Is it 'getting old' or another Behcet's symptom?

I have recently been getting memory loss and difficulty remembering vocabulary. Also I have this feeling that I am falling forwards, although my partner and...

I have recently been getting memory loss and difficulty remembering vocabulary. ...

•12 years ago

Medical Advice

Now that the Behcets Forum site seems to have taken off (many thanks to HealthUnlocked) the Society would like to make it clear that the information given by...

Now that the Behcets Forum site seems to have taken off (many thanks to HealthUn...

Partner•12 years ago

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The Southern General Fiasco!

After CT scans, MRI scans, Angiograms the lot, I was told today that I am imagining my peripheral vision loss, vision loss, and that my memory loss is due to...

After CT scans, MRI scans, Angiograms the lot, I was told today that I am imagin...

•12 years ago

havent yet been disgnosed with behcets but have mouth and genital ulcers

i havent yet been disgnosed with behcets but have mouth and genital ulcers, feel tired all the time etc. i have just found out that my uncle was diagnosed with...

i havent yet been disgnosed with behcets but have mouth and genital ulcers, feel...

•12 years ago

Does anyone feel the weather has an effect on symptoms?

•12 years ago

Please help me - how does the diagnoise work?

Hi, Was hoping people would be kind enough to share their experiences of being diagnosed and what symptoms you had at the time of diagnosis? In may this...

Hi, Was hoping people would be kind enough to share their experiences of bein...

•12 years ago

Hi I have been suffering from a number of new symptoms but when asking docs about it I wasnt taken seriously .......

and its driving me slowly nuts!!! Every night and several times during the day my fingers, then whole hand keep going dead....it then hurts in the crease of my...

and its driving me slowly nuts!!! Every night and several times during the day m...

•12 years ago

Removing tonsils in a behcets patient, good idea or not??

•12 years ago

Methotrexate and cramps?

Has anyone experienced cramps in the lower legs on methrotrexate? Overall I've hardly had any nausea but am still on 10mgs and it is only my third week. One...

Has anyone experienced cramps in the lower legs on methrotrexate? Overall I've ...

•12 years ago

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Methotrexate and cramps?

Has anyone experienced cramps in the lower legs on methrotrexate? Overall I've hardly had any nausea but am still on 10mgs and it is only my third week. One...

Has anyone experienced cramps in the lower legs on methrotrexate? Overall I've ...

•12 years ago

Behcets and a bowel bleed?

Hello, I've not been diagnosed and will see someone who specialises in behcets, one of my doctors thinks its very likely I do have it, the other said unlikely...

Hello, I've not been diagnosed and will see someone who specialises in behcets, ...

•12 years ago

In Southern Generals still? Peripheral vision loss

Still in hospital still have peripheral vision loss and soon other symptoms low vision balance problem memory loss. MRI clear lots of scratching out heads....

Still in hospital still have peripheral vision loss and soon other symptoms low...

•12 years ago

Hia, I'm new to site and Behcet's. Been reading blogs. As it's been helpful I'm venturing a question! Anyone taken CellCept (Mycophenolate)?

I've been taking for months now but it doesn't feel like it's making a difference. Consultant says to give it time, but not giving an indication of how long. I...

I've been taking for months now but it doesn't feel like it's making a differenc...

•12 years ago

Feet and Shoes

I went to a podiatrist yesterday, she was very good and said that she would be spending the weekend reading up on Behcets. What was really interesting is...

I went to a podiatrist yesterday, she was very good and said that she would be s...

•12 years ago

Hi I am pregnant with BD.

Really want a c section as amongst other things the fatigue is terrible at the moment was anybody given this and how did they manage pregnancy and childbirth?...

Really want a c section as amongst other things the fatigue is terrible at the m...

•12 years ago

hi i'm just new to this site i'v had behcets now for 3 years i'm trying to get critical illness insurance cover does any1 have any ideas?

•12 years ago

really fed up !

am being seen at maidstone hospital every six months (when the app not cancelled) and they say as i cant take colchicine they wont give me anything else as i...

am being seen at maidstone hospital every six months (when the app not cancelled...

•12 years ago

UPDATE.... My daughter Sinitta

just to let all the people know that were so helpful about my daughters ulcers that she was admitted into hospital today to be put on IV, she could also have...

just to let all the people know that were so helpful about my daughters ulcers t...

•12 years ago

Soaps

I thought I would start a new thread - expecially with Tamirra asking for tips for her daughter. Long before I was diagnosed I went off soaps and...

I thought I would start a new thread - expecially with Tamirra asking for tips f...

•12 years ago

Disability allowance or DWP, does anyone claim this for Behcets?

•12 years ago

Methatrexate and weight gain

Methatraxate I've been taking for 6 months. In this time I have gained over a stone, which is quite upsetting, as was hoping to loose wait as reducing my...

Methatraxate I've been taking for 6 months. In this time I have gained over a ...

•12 years ago

Genital ulcers, so much pain

Can someone please advise my daughter what she can do to help with the pain of genital ulcers, she has woken this morning with a very large one and during the...

Can someone please advise my daughter what she can do to help with the pain of g...

•12 years ago

Peripheral vision and balance loss

Over the weekend I noticed I had peripheral vison loss and my balance which is not great had went haywire. Visited optician today who said after testing my...

Over the weekend I noticed I had peripheral vison loss and my balance which is n...

•12 years ago

Pain management

Does anyone have some suggestions for pain management? At the moment I'm taking paracetamol + Endone. I use heat as much as possible at night (wheat bags)....

Does anyone have some suggestions for pain management? At the moment I'm taking...

•12 years ago

Methotrexate

Hi, I've just started in Methotrexate - too soon to tell. I was wondering what dose others are on as well as how long you have been taking it for? I'm going...

Hi, I've just started in Methotrexate - too soon to tell. I was wondering what ...

•12 years ago

Joint pain, how does it affect you?

I just wanted to ask fellow BD sufferers how the joint pain affects them? My joints get very hot and slightly swollen whereas I know of others who joints...

I just wanted to ask fellow BD sufferers how the joint pain affects them? My joi...

•12 years ago

fund raising events here for Behcets

We live in Kent and there never seems to be any fund raising events here for Behcets, can anyone tell me where the nearest is and when? Thanks

We live in Kent and there never seems to be any fund raising events here for Beh...

•12 years ago

Has anyone been prescribed Alpha TNF, if so how have they found it?

•12 years ago

Tight Chest

Hi guys Was just wondering if any of you have suffered from a tight chest whilst having a flare up? Thanks Moys

Hi guys Was just wondering if any of you have suffered from a tight chest whi...

•12 years ago

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