Just a quick catch up from my last blog where I was pretty fed up and down whilst awaiting appointments.
I visited The Royal Brompton Hospital in London today for an appointment with the Sleep and Respiratory clinic.
The drive from where I live is terrible and the parking at the hospital is non-existant. The disabled bays are far and few between and cost us £20.00 to park.
But, I must say that the appointment went pretty well considering I have been trying to find a consultant to look into my breathing problems and take them seriously, for some years now.
I was diagnosed with Sleep Apnea/Hypopnea 6 years ago and it was left untreated. The breathing problem at night has become so bad I do not sleep more than about 2hours I can bearly function in the day and so am now also getting problems breathing during the day.
I did my usual stance of sending my written history and previous test results/diagnosis ahead so this could be looked at before I saw him. He praised me for being so helpful and did a variety of tests and listened carefully, which he stated that he felt my Apnea/hypopnea had got much worse. He also, noticed my problem with breathing and had ordered more indepth lung function tests, Xrays, ESG and another sleep test with in mind to supply me with a CPAP machine.
The good thing about it was that he didn't need or make any references to the problem being down to panic or stress [unlike other doctors I had seen in the past]. Also didn't insist it wasn't a problem connected to behcets, therefore I couldn't have it......such a relief to have somebody look at the problem for what it is and not make judgement.
It all sounds very daunting but not half as bad as having to carry on with not breathing properly.
I just wondered if anybody else here has to use a CPAP machine and how they are getting on with it..