Joint pain, how does it affect you?: I just... - Behçet's UK

Behçet's UK

5,215 members4,318 posts

Joint pain, how does it affect you?

DesperateDan profile image
4 Replies

I just wanted to ask fellow BD sufferers how the joint pain affects them? My joints get very hot and slightly swollen whereas I know of others who joints really swell quite badly.

Do your joints give you pain if you touch them and apply pressure on them? Mine can vary, sometimes they are very painful if you apply pressure but occasionally they only hurt if you try and move too much.

How does it affect you?

Thanks

DD

Written by
DesperateDan profile image
DesperateDan
To view profiles and participate in discussions please or .
4 Replies
Jazzy21 profile image
Jazzy21

My joints are excruciatingly sore. Especially my knees, hips, pelivis wrists and fingers. It is like a stiff hot stabbing throbbing pain. If that makes sense. Today I am so sore that I have stayed in bed. To be honest it gets me down. Jazzy

Jazzy21 profile image
Jazzy21

My joints are excruciatingly sore. Especially my knees, hips, pelivis wrists and fingers. It is like a stiff hot stabbing throbbing pain. If that makes sense. Today I am so sore that I have stayed in bed. To be honest it gets me down. Jazzy

Hey DD

Just wanted to say a big thank you to you for your answer about my stomach...

My joints have always caused me pain like Jazzy said Red hot pokers being driven into then and radiating pain that aches from limb to limb. I work at a desk and sometimes when I have bad days I can't sit all day and have to move around or take anti inflamm's just to get through work.

Before I was diagnosed and on proper medication i couldn't walk in the mornings. I looked like a 93 year old not a 23 year old. Thats one reason I was taken to see a Rhumatologist. (I live in Perth Western Australia and things are done a bit differnetly over here although originally from the UK). He tested my joints evey time I went by pressing and then moving painful to say the least.

When my joints get sore now I find that going for a slow walk helps and then getting into a nice hot bath and obviously pain killers but not anti inflamm's if your stomach is like mine. Keeping as fit as possible for myself has helped with the pain :)

Hope this helps

Moys x

SuenMike profile image
SuenMike

For me this is one of the most severe symptons. I am lucky to be seen by a very knowledgable consultant, and I also visit a rheumatologist who specialises in auto-immune diseases. Very gentle excersise is usually suggested. I have not always found it a useful piece of advice, as sometimes the pains are so bad I cannot move much at all. Good luck, I hope you eventually find a way to help this most unpleasant symptom of an unpleasant disorder.

You may also like...

Colchicine - does it help your joint pain?

the joint pain? should I stick with it? Is there anything else you have tried that helps the joint...

SI Joint Pain/Buttocks Pain

leg? Any recommendations? How often have you had injections if that's how you have managed? Thanks!...

Cholchine and joint pain

on cholchine for my joint pain and ulcers. Does anyone have experience with how quickly this...

Joint pain?

without pain. I’m just curious to see if you, when flaring, experience constant joint pain or if...

Does Behcet affect your life or holiday cover?

policies. Times have moved on though and I'm now suffering from lots of joint issues which reading...