Emergency admission total shambles.

[Oathy]

Hello.

Since I last posted its now been confirmed macular degeneration has started

the right eye has a lot of scar tissue, also CNS involvement

Been put on Rituximab as the replacement of Humira.

Sadly I contracted covid just days after the infusion .

Things finally reach an emergency covid had cleared but felt even worse

was lying on the bed the next thing I had mum looking down screaming to wake up

I had fallen off the bed my neck hit the ottoman 999 had been called

given the situation they decided i had to be moved

after 3 liters of oxygen my saturation level was 90 %

temp 38.6

BP 179/110

having had sepsis 3 times she did the test and it indicated Sepsis on the scale of 6.

taken to the new unit at the hospital just half a mile away and it happened again

even with all the evidence the doctor had looked at the old notes and orders

NO IV, Treated with utter contemp..

my new consultant and written to them to state no med change until

we see how the new plan goes.. this one stopped everything.

I was so out of it I had no idea. For days no Thalidomide

or core drugs that stop those symptoms that are heck to treat

Genital ulcers back, my abdomen wound is open

Turned out its Flu. So just after clearing covid this happened

I just need advice please, It never inspires confidence when they say "Behcet's what's that"

in all honesty the NHS website which most look at that ropey.

He suggested my 60 MG of prednisone was causing me to be psychotic

I could barely speak he pulled the pillow from my head by now the neck had swollen and I passed out it was like as a child being on a roundabout then jumping off

this kept happening if I turned my neck to the right.

The nurses were amazing they admitted never heard of Bes but all went to read up on it

the level of care I had from them was 10/10.

They call us "professional patients" we know what that means = trying to be Doctors

but I made a rule long ago I will only talk about symptoms they need to take action on.

been given tami flu and its helping but my poo is now jet black like tar.

I cannot believe he took it on himself to just stop everything

cutting steroids alone is...

So the reason for this post, how can i show these people something that gives guidance

as the Behcets card was actually throw with utter distain by one of the previous visits.

They have all the updated files something my late father said would not make a difference

sorry if this sounds OTT but what happened was the worst yet for me I really thought I was dying

it was the 20 minutes totally blacked out was a new one the floor around me was just a puddle of urine.

Sorry if this isnt making sense the good news the non emergency plans are working

getting the Thalidomide every 3 months and as my new consultant wants something done like the infusions and scans they are.

The problem is 999 admissions its actually getting worse.

What i have learned even if you are jabbed for this years Flu it appears a lot of people

are very ill with it, People are saying they have this virus and the consultant told me when they are tested its flu they hospital is packed with patients with it.