Adalimumab for Behcets

[TigerLily42]

Hi all,I went to my Liverpool CoE appointment yesterday and they are starting me Adalimumab. Just waiting for it to be delivered, then I can get started on it. Just wondering how people have got on with this? If it has helped, how long before you noticed it was helping etc. The main issue for me now is getting the joint pain under control, so really hope this works, as it is painful to walk about/drive now. I was on Azathioprine before this and it was working, but was affecting my liver, so had to be taken off it unfortunately.

Thanks!

[USPolarBear]

Hey.

I've been on it for about two years. It gave me pretty good relief for joints, but not complete coverage. I did have to add Otezla later, but I couldn't walk when I started it and within 2 months the arthritis in my feet was down to where I could get around again.

So, noticeable difference at six weeks. Could walk again at 8 weeks, stopped seeing improvement for arthritis at 4 months.

I have the eye flares too and it took about 6 months for those to really slow down. I was told that is normal.

I have the auto-injector pens. I found it best to inject in my leg with my legs completely supported (stretched out on the couch) where my muscles are relaxed so none of the shot oozes back out (couple of times it came back out and I nearly cried).

I was getting a swollen patch and itching after the injection and at first used ice packs after, but now I let the shot sit out of the fridge for 30 mins to an hour so it's not so cold when I inject it and it has cut down the swelling and itching almost completely. That being said, you do need to make sure to keep the shot under 70 degrees F (20 degrees C?).

I hope it helps you. It made a big difference for me!