Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for June 2017

Does the brand of tablet affect the side-effects?

I had an operation for breast cancer in 2014. Since then I've been prescribed Anastrozole. On the Breast Cancer site some women have said that they find they...

I had an operation for breast cancer in 2014. Since then I've been prescribed An...

ChrisAnnSen

•7 years ago

4 Replies

Metatone tonic

Hi all Does anyone take Metatone tonic if they are taking Hydroxycarbamide please?

Hi all Does anyone take Metatone tonic if they are taking Hydroxycarbamide pleas...

RosemaryHarper

•7 years ago

4 Replies

Sarah

What is pv?

Mollythedog1

•7 years ago

2 Replies

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Causes of blood infections?

Hi my friends saw Gp Friday because of bruises and did full blood count , just had phone call from gp ,to say i need to repeat blood test B12 & Folic acid , i...

Hi my friends saw Gp Friday because of bruises and did full blood count , just h...

catwoman2015

•7 years ago

20 Replies

Mr and Mrs Jack Spratt

I have always been the one feeling the cold and my hubby the opposite, opening windows, turning down the heating etc. Our roles have now reversed as he is on...

I have always been the one feeling the cold and my hubby the opposite, opening w...

Fionnuaghla

•7 years ago

1 Reply

Little critters 😩

Not if anyone else has had this problem. I have ET and on Hydroxycarbamide, Asprin, oh and numerous other tablets. But three weeks ago I got bitten while...

Not if anyone else has had this problem. I have ET and on Hydroxycarbamide, Aspr...

Superwoman

•7 years ago

17 Replies

Retirement fingers crossed

Hi Guys, hope you are all as well as you can be. Paul I just wondered how you were getting on with work, your colleagues, etc. My employers are progressing my...

Hi Guys, hope you are all as well as you can be. Paul I just wondered how you w...

Aime

•7 years ago

27 Replies

Aspirin and Bruises

Hi all I've seen a post on one of the Facebook groups and just wanted to get more thoughts on a connection between taking aspirin and unexplained bruising. I'm...

Hi all I've seen a post on one of the Facebook groups and just wanted to get mor...

ET30

•7 years ago

9 Replies

Polythycemia vera

Hi I was recently diagnosed with PV jack2 I have had 9 pints of blood removed via venesection, & my levels have dropped, seeing consultant again in 4weeks...I...

Hi I was recently diagnosed with PV jack2 I have had 9 pints of blood removed vi...

Sueworthington

•7 years ago

10 Replies

Ruxolitinib or Interferon

Hi everyone I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive drugs. I am...

Hi everyone I have PV diagnosed late last year and since then it's been a bit o...

Dianne-Guisborough

•7 years ago

15 Replies

No pashley bike

Got train in to collect my new bike only to be told we don't have the basket for it. But u can have this old thing as an alternative. What the hell !!!!...

Got train in to collect my new bike only to be told we don't have the basket for...

Lainy1

•7 years ago

12 Replies

Why have I now got anemia?

Last check up I was told I had anemia which did at least explain my lethargy. The Haematologist asked me about any other symtoms I'd noticed: Acid reflux,...

Last check up I was told I had anemia which did at least explain my lethargy. Th...

Dodders

•7 years ago

9 Replies

MPN Voice Nottingham Support Group - speakers confirmed for June, July and August 2017 meetings

June Wednesday 21 June meeting – Diet and Nutrition Laura Miller, Dietitian in Haematology and Gastroenterology, Nottingham City Hospital, will be...

June Wednesday 21 June meeting – Diet and Nutrition Laura Miller, Dietitian...

Mazcd

Partner•7 years ago

2 Replies

Newly Diagnosed ET (with CALR mutation)

Hi all, I am 53 and was diagnosed last week with ET caused by a CALR mutation and with a platelet count of 1250. I have an appointment in 2 weeks to see a...

Hi all, I am 53 and was diagnosed last week with ET caused by a CALR mutation an...

Jocko

•7 years ago

5 Replies

Pashley bike

The fight against MPN got serious, I've just bought myself a shiny new pashley bike 🚲 to get some exercise. Now let's hope the rain stops 🌧 Platelets look...

The fight against MPN got serious, I've just bought myself a shiny new pashley b...

Lainy1

•7 years ago

16 Replies

Happy Dancing

I have to share .... after months of weekly blood tests and platelet count continuing to rise until it reached 1900+ last week (1.9 million if you are in...

I have to share .... after months of weekly blood tests and platelet count conti...

Chris3875

•7 years ago

11 Replies

TIAs/Mini Strokes and High Platelets

Hi...Has anyone with ET (or another MPN) experienced a TIA or stroke, which has been attributed to high platelets? Would be grateful for any input....

Hi...Has anyone with ET (or another MPN) experienced a TIA or stroke, which has ...

Tinkerbell13

•7 years ago

31 Replies

HGB fluctuating what is typical-newbie

I was diagnosed with P. Vera, I have the JAK2 mutation; this was the end of April 2017. I am on Aspirin and hydroxyurea HU, plus diuretics for blood pressure...

I was diagnosed with P. Vera, I have the JAK2 mutation; this was the end of Apri...

Johnsb

•7 years ago

6 Replies

Fitbit

Just wondering if anyone out there with a Fitbit would like to join forces to get our step counts up. Myself and Phelpsy often challenge each other for a week...

Just wondering if anyone out there with a Fitbit would like to join forces to ge...

Sand-Dancer

•7 years ago

4 Replies

Bulsufan treatment

Hiya. I was diagnosed with ET in 2011 and am triple negative. Originally I started on HU but after leg ulcers was taken off this. I did not want annual BMBs...

Hiya. I was diagnosed with ET in 2011 and am triple negative. Originally I start...

eastwood1932

•7 years ago

19 Replies

Itching

Hi. As you may know I have PV. This post is on behalf of my sister who has ET. I don't have issues with itching after baths (I do after showers and gave them...

Hi. As you may know I have PV. This post is on behalf of my sister who has ET....

Sand-Dancer

•7 years ago

4 Replies

Itching solutions PLEASE

Hi, everyone. Since starting Hydroxy again, I am being driven mad by itching. Interestingly, showers do not cause too much trouble. It's the evening when a...

Hi, everyone. Since starting Hydroxy again, I am being driven mad by itching. In...

Splb3317

•7 years ago

8 Replies

Bone marrow biopsy pain

I had a bone marrow biopsy last week very close to the middle of my hip area. It was a horrible experience. I was given something to relax me which didn't...

I had a bone marrow biopsy last week very close to the middle of my hip area. It...

Coco1965

•7 years ago

12 Replies

Is feeling hot a side effect of Hydroxy ?

I am on Hydroxy and have been getting waves of heat mainly in the evening - and occasional burning feet - has anybody else experienced this? It's not...

I am on Hydroxy and have been getting waves of heat mainly in the evening - and ...

skipperL

•7 years ago

18 Replies

Mutation?

I tested positive for the MPL mutation. Also a non classic version of PDGFR. Would like to connect with others that are positive for either of these mutations....

I tested positive for the MPL mutation. Also a non classic version of PDGFR. Wou...

sherri1111

•7 years ago

11 Replies

Bruises

Woke up to a badly bruised and painful little finger on Saturday morning, can't remember banging it? I do bruise easily - but in general, it's always the lower...

Woke up to a badly bruised and painful little finger on Saturday morning, can't ...

mhos61

•7 years ago

4 Replies

Mouth Ulcers

Does anyone have any advice about dealing with mouth ulcers as a result of HU ?

Chris3875

•7 years ago

5 Replies

Clopidrel and bruising ?

Hi all i switched from years being on Asprin to 75 mg of clopidrell 2 weeks ago , and i noticed i have quite a few brusies on leg i used to get this in early...

Hi all i switched from years being on Asprin to 75 mg of clopidrell 2 weeks ago ...

catwoman2015

•7 years ago

13 Replies

Hi all I'm new here

so a few months ago I went to the doctors feeling very run down tired etc. A full blood test was done and the next day the doctor phoned for me to come...

so a few months ago I went to the doctors feeling very run down tired etc. A ful...

Mummyto4c

•7 years ago

19 Replies

Newly diagnosed with two blood disorders

My main query is .... is there anyone on here with both Cll and PV? I am coming to terms with a double whammy. I saw consultant at the beginning of May and...

My main query is .... is there anyone on here with both Cll and PV? I am coming...

nanmc

•7 years ago

4 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for June 2017

Does the brand of tablet affect the side-effects?

Metatone tonic

Sarah

Causes of blood infections?

Mr and Mrs Jack Spratt

Little critters 😩

Retirement fingers crossed

Aspirin and Bruises

Polythycemia vera

Ruxolitinib or Interferon

No pashley bike

Why have I now got anemia?

MPN Voice Nottingham Support Group - speakers confirmed for June, July and August 2017 meetings

Newly Diagnosed ET (with CALR mutation)

Pashley bike

Happy Dancing

TIAs/Mini Strokes and High Platelets

HGB fluctuating what is typical-newbie

Fitbit

Bulsufan treatment

Itching

Itching solutions PLEASE

Bone marrow biopsy pain

Is feeling hot a side effect of Hydroxy ?

Mutation?

Bruises

Mouth Ulcers

Clopidrel and bruising ?

Hi all I'm new here

Newly diagnosed with two blood disorders

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