Is feeling hot a side effect of Hydroxy ?

[skipperL]

I am on Hydroxy and have been getting waves of heat mainly in the evening - and occasional burning feet - has anybody else experienced this? It's not menopausal - I am 78! Is it a known side effect?

[Stevesmum42]

Hi SkipperL. Oh yes this is very familiar. I get almost hot flushes at any time, not menopause , that happened 20 years ago ! Also get bad night sweats at times, I get up and get a towel to lie on. The good side of this is that I now have warm feet, I used to suffer really cold feet, have been known to take a hot water bottle away on Summer holidays ! But n need now as I have hot feet .

ET, on Hydroxy plus aspirin.

Regards Sandy

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[jane13 in reply to Stevesmum42]

same here, am on ruxo so maybe side effect of disease, not drug

[skipperL in reply to jane13]

I think you are right !

[tuffetgal in reply to jane13]

hi jane13, yes, it is side effect of disease. i'm not on any drugs and have hot soles of my feet for about two yearrs now. i wear sandals a lot !

[skipperL in reply to Stevesmum42]

I find it's mostly in the late evening not at night - these things are so puzzling - I too was always frozen - but not now

[skipperL in reply to Stevesmum42]

It sounds as if your symptoms are worse than mine - what a nuisance

[Paul42]

Im 46 and get it, Im on Rux and certainly not menopausal either

[skipperL in reply to Paul42]

Well - it has to be yet another horrid symptom of our ailment!

[beetle]

I feel like my body thermostat is stuck on hot! I sit in a t-shirt while my partner is wearing about 4 layers including a fleece! We have very different opinions on open widows at times too 😂 I hate the hot flushes! I'm 67 so they are not menopausal. I get the hot toes too. I have post ET/MF so I guess it goes with the territory!

[skipperL in reply to beetle]

For the first time in my life I am asking my husband to turn the heating down! Thanks for your comments

[Paul42 in reply to skipperL]

Im the same, in bed at night i lie on of the covers to keep cool, my wife has the quilt wrapped round her trying to keep warm,

[skipperL]

This is all such a bore - symptoms proliferate and come and go - stay cool!

[lizzziep]

I was on hydroxy now Anagrelide, I get hot sweats, particularly at night, the rest of the time I am freezing!

[skipperL in reply to lizzziep]

how strange - we are all so different ....

[catwoman2015]

Hi Sandy , yep deffinatly for me also i feel my face hot but it doesnt show , also sometimes at night i feel hot ! and odd times during the day ,i think its due to mpn more than the treatment all the best Holly

[skipperL]

A friend just asked me tonight as we left a restaurant in the wind and rain - "aren't you cold?" - for the first time in my life I could honestly say "no, I'm boiling!" - what a strange side effect - but the only one I'm happy about when the weather is inclement! SkipperL

[bordeauxgirl]

At least we all save on the horrendous heating bills, I am on top of the duvet naked as the day I was born , windows open summer and winter, but with my trusty fluffy socks on which always are found on the floor in the morning, my poor hubby is under a huge duvet, wearing fleecy PJ's and telling me he is cold, sorry no sympathy from me ...just put another jumper on. Has anyone discovered they haven't had a cold since starting Hydroxy . I haven't had any in the last four years ? is that odd?

[piggie50 in reply to bordeauxgirl]

Odd for me bordeauxgirl, I seem to get colds all the time!

Judy x