Bone marrow biopsy pain: I had a bone marrow... - MPN Voice

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Bone marrow biopsy pain

Coco1965 profile image
12 Replies

I had a bone marrow biopsy last week very close to the middle of my hip area. It was a horrible experience. I was given something to relax me which didn't really work. It was the most painful thing I've ever done including child birth! I have a high pain tolerance but that was awful. I'm now having issues sitting or standing for long periods of time. It feels like something happened to my tail bone. Oh one other thing, he was pounding the biopsy "tool" into my bone. It seemed very barbaric.

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Coco1965 profile image
Coco1965
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12 Replies
rubyrubyruby profile image
rubyrubyruby

Yep, I found my first one pretty much the same, it was by far the worst thing I had ever experienced. My second was done in a different hospital by a much more caring person, however it still reduced me to tears, rather than the screams during the first one !!

katiewalsh profile image
katiewalsh

Hi Coco, what you describe is awful! Was it done at a place where they do a lot of them? Mine was also very painful but I don't recall anyone pounding it in but it was 4-5 years ago and I may have forgotten. There have been many discussions about BMB on this forum you can look at. I recall some did have pain for weeks radiating down their legs and in other areas where the needle hadn't gone but the nerves were being affected. I'll keep my fingers crossed your pain goes away soon. Also, a person who was learning observed mine and she was then going to perform them on her own as she'd observed the required amount. As a result of this I plan to do everything possible to be sure in future BMB I have someone who has performed a lot. Take care and take it easy until you heal. Katie

Coco1965 profile image
Coco1965 in reply tokatiewalsh

Hi! Yes he said he had done a million of them lol

Helpatlast profile image
Helpatlast

Sorry you had a rough time Coco it certainly isn't the best of experiences. Like you I did have pain in the area for some time after, I guess it just depends person to person but don't worry it will fade, use a little hot water bottle on the area for a bit when it's particularly bad. Fortunately most of us don't have to have one too often and hopefully it will at least get you on the way to a diagnosis and further help with treatment. All the best.

Stevesmum42 profile image
Stevesmum42

Hi Coco. Yes I have had four BMBs the last one was the worse, I'm not a wimp either, but they do hurt , I did gas and air on the latest one, which did take the edge off , rather like a couple of gin and tonics.! Paracetamol helps with the after pain. I have read some people have no problem with having them but it's so individual . it is the best way of the heamo getting lots of information , so we groan when told we need one ,but know it's an important tool in dealing with our condition .

I hope your pain lessens soon for you.

Regards Sandy.

VKH422 profile image
VKH422

Hi there, sounds just like my experience. I'm sorry it's still painful. I found ibuprofen and heat packs helped mine. Try not to sit for too long either. The pain will go! Ps I swore loudly during my biopsy - and apologised profusely afterwards to the poor nurses x

Coco1965 profile image
Coco1965 in reply toVKH422

Omg, I was screaming! Lol that acted like I was a huge baby but at that point I didn't care lol I broke my tail bone when I was a kid and it sure hurts again.

Belgobrit72 profile image
Belgobrit72

Definitely agree with the 'worst than childbirth' comparison despite having had a doctor described as 'the best to do them' by several members of staff ( he has now left out local hospital and praying I don't need another one too soon). I had to peel off my fingers of the bed railings after as they had completely seized from the gripping the bed. I was ok with pain at first but then noticed I could still feel it when sitting down, particularly on sofas & car seats. I wasn't convinced on necessity of doing it as just like most of you I had been monitored for JAK2 for 3 years without any symptoms but it revealed smouldering myeloma which then unleashed another level of concerns 🙁. Hope pain goes for you soon

Coco1965 profile image
Coco1965

Update: after going thru all of that pain he didn't even get a full sample! Oh well, got enough that I found out I have PV. My doc was very disappointed at my experience. Btw, I told him never again! Lol

home1970 profile image
home1970

I had it done in May 2018/ It took 30 minutes. You are not suppose to move. You will feel the needle going in. I advice you when going home to make sure the dressing is in place. Mine came off blood everywhere. I ran my doctor, lucky I had a good plaster applied pressure and It stopped bleeding. You will have a big bruise. The worse thing for me was waiting for the procedure. GOOD LUCK

Belgobrit72 profile image
Belgobrit72

I feel your pain!!! Had exactly the same and supposedly my specialist was the best at that procedure. My comments were exactly the same about childbirth, I nearly fainted and I have had 3 kids without pain relief 🤮🤑🤮. The pain went eventually but I told the doctor to make sure he took all he needed because there wouldn’t’t ve Asecond one.

Cat1001954 profile image
Cat1001954

yes I had bmb it was painful had back pain for a few hours only wishu better

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