I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive drugs.
I am classed as high risk as history of DVT and PE. I cannot take hydroxyurea as a have history of melanoma and have been on anagrelide which didn't reduce my platelets. Im currently on interferon injections which has brought my platelets down a bit but I'm struggling with the flu like side effects . Just got a a call from my lovely Haematologist to say she's got funding for Ruxolitinib for me on compassionate grounds . I know how expensive it is so am very grateful she has secured this for me. I just wondered if anyone has any experience of Rux. Also any info re: Rux v Interferon for PV . I know here in the UK it's usually o my funded for MF
Any info at all would be hugely appreciated. Thank you in advance and hooe everyone out there is keeping well