Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,324 posts

All posts for May 2024

Newbie question re exercise

Hello all! I'm having a lot of joint and muscle pain and I find it gets much worse in the evening and during the night. I do yoga in the mornings (adapted cos...

Hello all! I'm having a lot of joint and muscle pain and I find it gets much wo...

eurocat

•2 months ago

4 Replies

symptoms?

My first journey to this site was to this forum in my search for answers after symptoms were dismissed as being ‘all in your head’. I was convinced I had...

My first journey to this site was to this forum in my search for answers after s...

Nonameme

•2 months ago

2 Replies

Any info on the drug Dapaglifozen?

Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc

Will1408

•2 months ago

1 Reply

Want to take advantage of all our features? Just log in!

Cutie Face Number Two

Hello Forum FriendsJust popping into show you these beautiful 'cutie faces' of a proud new Mum with her baby. The little one is Kobo a month old Gelada...

Hello Forum FriendsJust popping into show you these beautiful 'cutie faces' of ...

misty14

•2 months ago

40 Replies

PIP Whistleblowers spill the beans.

https://apple.news/AEeR_2DOIRH-jTyn2VlfnUg Today’s article where PIP assessors admit what a shamble the system is. Hopefully this is the beginning of a...

https://apple.news/AEeR_2DOIRH-jTyn2VlfnUg Today’s article where PIP assessors ...

LilyMistri2

•2 months ago

4 Replies

Immunosuppressed- whooping cough

I just wondered if there’s anyone else going through this at the moment? I’ve never had this before and imagine being immunosuppressed due to lupus is a...

I just wondered if there’s anyone else going through this at the moment? I’ve n...

SF1000

•2 months ago

13 Replies

MTHFR and Lupus

I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block...

I noticed that some members have both of these diagnosis as well as Sjogrens. No...

DogHospiceMom

•2 months ago

4 Replies

Teesside Lupus Group

Hello everyone Just to let you know that our Lupus group has started having morning and afternoon meetings in the area. Anyone interested in joining our...

Hello everyone Just to let you know that our Lupus group has started having mor...

Pipido36

•2 months ago

Be the first to reply

discharge summary

hi had biopsy today and recovered well from anaesthetic 👏 but somewhat miffed as just looked at discharge letter when got home and says escalation plans and...

hi had biopsy today and recovered well from anaesthetic 👏 but somewhat miffed a...

stiff19

•2 months ago

42 Replies

Dorset Lupus Group Events for 2024 - Next event this Sunday 19th May!

Come and join the Dorset lupus group for our upcoming events! Coffee and Chat sessions, from 11am at the Haskins Garden Centre, Ferndown BH22 9DG Followed...

Come and join the Dorset lupus group for our upcoming events! Coffee and Chat s...

michaellasmith

Administrator•2 months ago

Be the first to reply

The Immune Mind by Monty Lyman - Radio 4

Hello, I’ve just started listening to The Immune Mind by Monty Lyman, on Radio 4, certainly very interesting & I’m finding parts of it easy to relate to with...

Hello, I’ve just started listening to The Immune Mind by Monty Lyman, on Radio ...

Laurajoy

•2 months ago

7 Replies

Photosensitivity, eye pain and headache.

I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the...

I have been photosensitive for about three years now but this year I seem to be ...

RosieA

•2 months ago

20 Replies

Covid Vaccine help and advice please 😊

I have had a week of ill health (hellish) following every vaccine but my body seems to accept the Pfizer !! so this time round was hopeful. However there is...

I have had a week of ill health (hellish) following every vaccine but my body se...

Maddymay65

•2 months ago

26 Replies

Lupus Diagnosis Experience: Webinar Q&A with Beth, Khiry & Maryann - Tuesday 21st May

On World Lupus Day, we launched a brand new diagnosis awareness video featuring Beth, Khiry and Maryann who kindly shared their experiences receiving a...

On World Lupus Day, we launched a brand new diagnosis awareness video featuring ...

nakita_cambow

Moderator•2 months ago

Be the first to reply

Arun Lupus Group - Coffee and Chat meeting - this Saturday 18th May from 10.30am!

Come and join the Arun Lupus Group for our next Coffee and Chat meeting on Saturday 18th May from 10.30am. We are meeting at the Establo Lounge, 1-5 Ash Lane,...

Come and join the Arun Lupus Group for our next Coffee and Chat meeting on Satur...

michaellasmith

Administrator•2 months ago

Be the first to reply

How UV affects us

Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the...

Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found thi...

IsleofWight1

•2 months ago

4 Replies

DWP disability benefits consultation

The DWP are doing a consultation on the future of disabled benefits. I never would have known this had I not seen an article in the Guardian today and then...

The DWP are doing a consultation on the future of disabled benefits. I never wou...

LilyMistri2

•2 months ago

2 Replies

Happy Nurses Day

I just wanted to say good morning and post this photo of the Northern Lights on Friday night. I wanted to share something beautiful with everyone 😁

I just wanted to say good morning and post this photo of the Northern Lights on ...

Graystar

•2 months ago

11 Replies

Discoid lupus help please!

Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my...

Hello, I've posted before whilst waiting for dermatology appointment this June f...

Nome11

•2 months ago

16 Replies

New experiences of diagnosis video for World Lupus Day

This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the...

This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann s...

Debbie_kinsey

Administrator•2 months ago

2 Replies

Allergic disorders in Systemic Lupus -this is an online publication hopefully all is able to read it

https://pubmed.ncbi.nlm.nih.gov/8369810/

KnitSewPurl

•2 months ago

30 Replies

Research on Hydroxycloriquine and Eyes

I saw this research and thought it was helpful so wanted to share: https://www.medpagetoday.com/rheumatology/generalrheumatology/110041

I saw this research and thought it was helpful so wanted to share: https://www...

ShannonB

•2 months ago

1 Reply

Article: Exciting time for biological use in Lupus

https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=emai

https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-...

VeeWat

•2 months ago

2 Replies

Atarax 25mg...has anyone used it?

It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep very badly and I have hay fever. After checking with my Lupus Specialist it...

It's an antihistamine with sedative effects. My pharmacy suggested it as I sleep...

AnonLupi

•2 months ago

Be the first to reply

New lifestyle. Use up all your energy having a great day, do nothing for a couple of days, then repeat

Does anyone choose to live like this instead of hiding away from the light and conserving energy?

Does anyone choose to live like this instead of hiding away from the light and c...

IsleofWight1

•2 months ago

36 Replies

Help - trouble with diagnosis

Hi there, Looking for some help/guidance here as im at a bit of a loss with what to do next. Sorry for the rambling but I feel so defeated Im34 YO Female,...

Hi there, Looking for some help/guidance here as im at a bit of a loss with wh...

Severusisismydog

•2 months ago

5 Replies

Living with lupus in 2024 survey - closing soon!

Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with lupus across Europe. The survey is anonymous and should...

Lupus Europe is conducting a survey to gather insights into the experiences of i...

nakita_cambow

Moderator•2 months ago

2 Replies

Update

Update to previous post - https://healthunlocked.com/lupusuk/posts/150804233/notes-for-upcoming-gp-appointment Had my appointment this morning, I'd already...

Update to previous post - https://healthunlocked.com/lupusuk/posts/150804233/not...

Wispymisty

•2 months ago

4 Replies

Lupus Tumidus

Hi All - After months of burning and itching skin, intermittent exhaustion, irritability, on and off leg swelling and joint pain, I have been diagnosed with...

Hi All - After months of burning and itching skin, intermittent exhaustion, irri...

TumidusG

•2 months ago

3 Replies

Sympathy & cleaning tips required.....

On Friday 3rd May we said goodbye to Millie our 15 Yr old spaniel. She got me through so much over the years from the death of my OH in 2009 to becoming...

On Friday 3rd May we said goodbye to Millie our 15 Yr old spaniel. She got me th...

Spanielmadlady

•2 months ago

38 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2024

Newbie question re exercise

symptoms?

Any info on the drug Dapaglifozen?

Cutie Face Number Two

PIP Whistleblowers spill the beans.

Immunosuppressed- whooping cough

MTHFR and Lupus

Teesside Lupus Group

discharge summary

Dorset Lupus Group Events for 2024 - Next event this Sunday 19th May!

The Immune Mind by Monty Lyman - Radio 4

Photosensitivity, eye pain and headache.

Covid Vaccine help and advice please 😊

Lupus Diagnosis Experience: Webinar Q&A with Beth, Khiry & Maryann - Tuesday 21st May

Arun Lupus Group - Coffee and Chat meeting - this Saturday 18th May from 10.30am!

How UV affects us

DWP disability benefits consultation

Happy Nurses Day

Discoid lupus help please!

New experiences of diagnosis video for World Lupus Day

Allergic disorders in Systemic Lupus -this is an online publication hopefully all is able to read it

Research on Hydroxycloriquine and Eyes

Article: Exciting time for biological use in Lupus

Atarax 25mg...has anyone used it?

New lifestyle. Use up all your energy having a great day, do nothing for a couple of days, then repeat

Help - trouble with diagnosis

Living with lupus in 2024 survey - closing soon!

Update

Lupus Tumidus

Sympathy & cleaning tips required.....

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive