Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2022

I am new .....

Hi This is my 1st post. Was diagnosed with RA in 1994 when I was 28 with 2 small children. Have had a very "bumpy" journey over the yrs. Trouble with...

Hi This is my 1st post. Was diagnosed with RA in 1994 when I was 28 with 2 small...

Mogcat

•2 years ago

37 Replies

Please take a few minutes to complete an important survey by Lupus Europe

Lupus Europe are running their study for the third time and we have been asked by them to assist in circulating the survey to the widest possible audience, to...

Lupus Europe are running their study for the third time and we have been asked b...

Alida_Bennett

Partner•2 years ago

3 Replies

Flare with normal lab work?

Hi! I’ve been having all the flare symptoms por the past couple of weeks after a very intense work journey (24h all day every other day), however my labwork...

Hi! I’ve been having all the flare symptoms por the past couple of weeks after ...

BizCat

•2 years ago

8 Replies

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Hi, does the smelling burning go away or is this now a permanent thing?

Got diagnosed with lupus 5 years ago. Usual stuff, joint pain, rashes, pleurisy, migraines,tinnitus. Am menopausal too just started hrt because the insomnia...

Got diagnosed with lupus 5 years ago. Usual stuff, joint pain, rashes, pleurisy,...

Lulamay7

•2 years ago

24 Replies

Recommended Lupus Specialist in the UK?

Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors looking at me like Im some kind of hypochondriac and dismissing all of my...

Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors ...

SadGirlRaceClub

•2 years ago

12 Replies

Article

Mentions lupus and that there are so many types, how this makes it harder to treat with the correct treatments. Interesting read x The Guardian: Global...

Mentions lupus and that there are so many types, how this makes it harder to tr...

sarahalice

•2 years ago

22 Replies

Impact of covid pandemic on lupus (and other CTD) patients and clinicians - latest article

The Lupus UK (healthunlocked) forum members were pivotal in developing the questions for this study and giving feedback on the emerging findings; and Im...

The Lupus UK (healthunlocked) forum members were pivotal in developing the quest...

robertbob

•2 years ago

3 Replies

Rituximab reaction?

Hi, I had my first infusion of Rituximab the 22/12, around New Year’s Eve I started to feel unwell , I had my second infusion due the 5/01/22 but the night...

Hi, I had my first infusion of Rituximab the 22/12, around New Year’s Eve I star...

Melaxx

•2 years ago

6 Replies

Unbelievable

My youngest son is 33 and lives in an area where vaccinations were slow to get started and consequently his 3rd jab was booked for today but cancelled. He is...

My youngest son is 33 and lives in an area where vaccinations were slow to get s...

Hidden

•2 years ago

50 Replies

LUPUS UK HARROGATE SUPPORT GROUP – NEW FOR 2022

Do you live in Harrogate or a surrounding area? Would you like to connect with other people affected by lupus near you? We are very fortunate to have a LUPUS...

Do you live in Harrogate or a surrounding area? Would you like to connect with ...

Alida_Bennett

Partner•2 years ago

Be the first to reply

Introducing the new Chair of LUPUS UK, Elaine Holland

Hi everyone, After serving two terms as Chair of LUPUS UK, Kevin Weston (Kevin53) has stepped down from the role. We are extremely grateful for his dedicated...

Hi everyone, After serving two terms as Chair of LUPUS UK, Kevin Weston (Kevin53...

Paul_Howard

Partner•2 years ago

10 Replies

How can I lower bp

I have completely cut Salt out out of my diet ! I try and exercise as m limited I drink about 6 to 8 glasses of water! M currently taking blood pressure...

I have completely cut Salt out out of my diet ! I try and exercise as m limited...

Mystik

•2 years ago

19 Replies

Latest gov letters for CEV people

Hi, I still haven't had my email/letter from government and PCR tests, I tried ringing 119 to ask but there isn't an option number to click on, can anybody...

Hi, I still haven't had my email/letter from government and PCR tests, I tried r...

Poshcards

•2 years ago

6 Replies

Learning what a flare is!

So I’m new to this whole thing and have had bad anxiety for many years meaning I don’t actually no what is anxiety and what is a flare. I was ill days after my...

So I’m new to this whole thing and have had bad anxiety for many years meaning I...

Mrsicecool

•2 years ago

5 Replies

Nail issues

Does anyone have issues with their nails (fingers & toes) splitting, cracking, peeling, coming off, dips, humps, ect. I do, and my dermatologist has given me a...

Does anyone have issues with their nails (fingers & toes) splitting, cracking, p...

Tiras

•2 years ago

11 Replies

need some advice from you lovely lot.

I tested positive for covid NYE. I've had the usual symptoms which haven't been pleasant but I've coped. I'm still positive on LF today. I think it sent me...

I tested positive for covid NYE. I've had the usual symptoms which haven't been ...

BonnyB

•2 years ago

15 Replies

Mystery rash

What is this rash?? Sometimes itchy

Anonymous679

•2 years ago

8 Replies

SLE HELP

How do I get to go to the specialist unit at The Freeman Hospital in Newcastle. My SLE is getting worse and GP is no help

How do I get to go to the specialist unit at The Freeman Hospital in Newcastle. ...

IndySyd

•2 years ago

2 Replies

Gallstone type pain

About 18 months ago I posted that I was getting pain similar to gallstone and pancreatitis I had had my gallbladder out one to two years previously this awful...

About 18 months ago I posted that I was getting pain similar to gallstone and pa...

daniel55

•2 years ago

6 Replies

Lupus

Hi everyone, I have Lupus since 2017 and apparently Fibromyalgia as well, I’m doing my best to keep myself healthy, I do exercise, I try to follow a...

Hi everyone, I have Lupus since 2017 and apparently Fibromyalgia as well, I’m d...

Da_vinci

•2 years ago

4 Replies

Doubling Prednisolone

Hi Whippet Lady Hope you are feeling better. Yes, doubling the Prednisolone is good. However when you have returned to your (normal) health. You will need to...

Hi Whippet Lady Hope you are feeling better. Yes, doubling the Prednisolone is g...

robsim

•2 years ago

Be the first to reply

Lupus and positive Lateral Flow Tests

I have taken a few lateral flow tests just as a precautionary measure before going places on 3 separate occasions now and I always get a positive result (only...

I have taken a few lateral flow tests just as a precautionary measure before goi...

Sharspen

•2 years ago

4 Replies

Foot Update and Now Cellulitis of the Toe

If you saw my attempt at humour of my red hammer toe, you will understand when I say, I should not have made fun of my toe that was trying to tell me it was in...

If you saw my attempt at humour of my red hammer toe, you will understand when I...

Pumpkin2009

•2 years ago

12 Replies

‘Fabulous New Years darlings’

Hope this escapes censorship as it has a naughty word but I think it sums up all our approaches to the coming year 😉

Hope this escapes censorship as it has a naughty word but I think it sums up all...

Hidden

•2 years ago

7 Replies

Insomnia

Hi Everyone just a quick question please . I’ve been taking hydroxychloroquine for my lupus for months now and it’s been great but the insomnia is crazy it...

Hi Everyone just a quick question please . I’ve been taking hydroxychloroquine f...

Kazfie

•2 years ago

21 Replies

It’s Monday monthly Mira

Happy New Year to you all - I took this pic at Christmas , Mira absolutely adores my son with Downs Syndrome as you can see here, she is so gentle with him ....

Happy New Year to you all - I took this pic at Christmas , Mira absolutely adore...

svfarmer

•2 years ago

46 Replies

What’s the plan after a third dose of the vaccine?

Hi everyone, firstly just want to wish everyone a very happy new year. I know this is probably a daft question (I’m good at those) but I got my third primary...

Hi everyone, firstly just want to wish everyone a very happy new year. I know t...

Froggie70

•2 years ago

40 Replies

Food Tolerance Tests?

Does anyone out there have any opinion on food tolerance tests for helping the inflammation of Lupus? Are they worth the money? Have they helped? I have just...

Does anyone out there have any opinion on food tolerance tests for helping the i...

CavendishCool

•2 years ago

13 Replies

Does Hydroxychloroquine make your hair fall out?

I've noticed severe hair loss over the last few years and I'm wondering if it's the HCQ. Has anyone got any ideas? Thank you.

I've noticed severe hair loss over the last few years and I'm wondering if it's ...

skylark15

•2 years ago

24 Replies

Happy New Year

Happy New Year everyone! I hope that this new year brings you more joy and happiness than 2021 did and hopefully life may become a bit more like the normal...

Happy New Year everyone! I hope that this new year brings you more joy and happ...

JennaShi

•2 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2022

I am new .....

Please take a few minutes to complete an important survey by Lupus Europe

Flare with normal lab work?

Hi, does the smelling burning go away or is this now a permanent thing?

Recommended Lupus Specialist in the UK?

Article

Impact of covid pandemic on lupus (and other CTD) patients and clinicians - latest article

Rituximab reaction?

Unbelievable

LUPUS UK HARROGATE SUPPORT GROUP – NEW FOR 2022

Introducing the new Chair of LUPUS UK, Elaine Holland

How can I lower bp

Latest gov letters for CEV people

Learning what a flare is!

Nail issues

need some advice from you lovely lot.

Mystery rash

SLE HELP

Gallstone type pain

Lupus

Doubling Prednisolone

Lupus and positive Lateral Flow Tests

Foot Update and Now Cellulitis of the Toe

‘Fabulous New Years darlings’

Insomnia

It’s Monday monthly Mira

What’s the plan after a third dose of the vaccine?

Food Tolerance Tests?

Does Hydroxychloroquine make your hair fall out?

Happy New Year

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