Lupus: Hi everyone, I have Lupus since 2017 and... - LUPUS UK

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Lupus

Da_vinci profile image
4 Replies

Hi everyone, I have Lupus since 2017 and apparently Fibromyalgia as well, I’m doing my best to keep myself healthy, I do exercise, I try to follow a reasonable diet and to be honest it’s helping me a lot. Although some days is like a nightmare where just by moving a finger is a humongous challenge, yet if I go for my training it release me from at least the 60-80% of the pain.

One thing that I believe has a huge impact in my body is my mood, sadness or depression can really really make me go back so, I’m including therapy with a psychologist to help me to face all of this in a different perspective. I know Lupus is different in every one, yet has some of the same symptoms that affects all of us in almost the same way. I read a lot about it, about Lupus and causes or what triggers Lupus; For my surprise I found out that the common factor is a mental state, stress, depression, sadness, which I felt several times, until one day someone told me to “make peace with my mind” I did not understood At the beginning but now. I put it in practice and within the last 3 months I feel a difference, not huge but enough. I am not a doctor or anything like it.

I thought that maybe, just maybe it could help others as well. Thanks everyone for reading and if there’s any Lupus group around me, please, let me know.

Happy new year to everybody.

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Da_vinci profile image
Da_vinci
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For me, stress and low mood definitely affects my symptoms of Stills Disease RA and prior to the attack of Stills I had been suffering emotional trauma.The mind is a powerful thing. 🧠

Alida_Bennett profile image
Alida_BennettPartnerLUPUS UK

Hi Da_vinci

Welcome to the LUPUSUK HealthUnlocked Community. We offer a free information pack which you can download or request at:

lupusuk.org.uk/request-info...

You may also find our publication in relation to fatigue and lifestyle helpful – this can be found here:

lupusuk.org.uk/wp-content/u...

I have also added a link to a LUPUSUK blog article on this topic which includes tips and information which may also be useful:

lupusuk.org.uk/coping-with-...

Our publication on depression contains some links to helpful organisations/helplines – you can find this publication here:

lupusuk.org.uk/wp-content/u...

I wonder if you would benefit from speaking to one of our Contacts. Our Contacts are trained volunteers who either have lupus themselves or have a family member with the condition. You can chat with our Contacts over the telephone. They are not medically trained but are there to offer both emotional and general support. The telephone service is confidential, and you can disclose as much as you wish. The support service is free apart from the cost of the call. You can request a Contact here:

lupusuk.org.uk/contacts/

If I can help further, do please let me know.

Kind regards

Alida

Da_vinci profile image
Da_vinci in reply to Alida_Bennett

Thanks a lot. It’s good to have information related to Lupus. I’ll let you know if I have any questions.

MusicalFurbaby profile image
MusicalFurbaby

Hi Da_vinci, many of us suffer with mental health complications arising from the stress of living with chronic illness. A lot of people on this forum, including me, will relate to what you are saying. I’m so glad you have found some mental approaches that are helpful for you. Take care x

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