Gallstone type pain

[daniel55]

About 18 months ago I posted that I was getting pain similar to gallstone and pancreatitis I had had my gallbladder out one to two years previously this awful pain continued to go on my friend would say to me I was like a pregnant woman in labour I finally got a referral to hospital went for MRI in November 2021 I had to travel 40 miles to Norwich my leg in a beckham boot recently having had my foot operated on. The following week a ultra sound on my kidneys at my own hospital which showed a cyst on either kidney but nothing sinister. I had to send a stool sample recently but no result as yet I received a copy of a letter sent to my GP which said MRI showed enlarged bile duct slightly enlarged pancreatic duct and atrophy of my pancreas. After all this time of complaining of symptoms I have been suffering from chronic pancreatitis and now my pancreas is damaged !!!! (thank you) I have a phone call appt. on the 10th of February with the consultant to discuss it all but at the end of all this I still have not has a face to face consultation wit

[Spotty-ewe]

I’m so sorry to hear what you’ve been going through and I really sympathise with how you feel. After years of severe pain and bloating and umpteen barium meal tests for gall stones they eventually discovered I had a mal-functioning gall bladder which was badly ulcerated when finally removed. I think these things are very hard to diagnose without a lot of tests and investigations and if what they test for comes back negative some medics then give up which doesn’t help us! At present I’m being investigated for nausea and pain in the top of my abdomen and test after test is coming back ‘normal’ which is so reminiscent of my gall bladder problem 40 years ago. I hope you receive the help you need and perhaps the consultant will arrange a face to face once you’ve had the phone appt. I wish you all the very best. Let us know how it goes. Gentle hugs. 🤗🤗x

[daniel55 in reply to Spotty-ewe]

Hi Spotty-ewe sorry to hear that your having sort of similar pain and problems I get terrible stomach pains like a painful knot in my stomach I feel really sick after eating my meals and indigestion type pain have you had tests for pancreatitis? I think I'm picking myself up a bit now I was feeling a little bit sorry for myself pancreatitis at the same time as a migraine with my foot in plaster, I had my heel broken and realigned with my ankle I have now ditched the the crutches and able to walk freely and do things mostly for myself so now the only way is up I hope you get some answers soon sending you lots warm hugs to get you through this cold weather xxxx

[Spotty-ewe in reply to daniel55]

I agree with the advice KnitSewPurl has given you. I’ve not been tested for pancreatitis but had umpteen blood tests and bowel screening for recent pain and nausea. Only 2 results still outstanding and all the rest have come back normal! 🙄 The nausea and pain remainder me of a liver problem I’ve had in the past but liver function blood test came back normal🤷🏼‍♀️ and I’ve had no jaundice or other signs. Sorry you are suffering migraine as well - nasty ! Not to mention your broken heal. Anyway, as KSP said, don’t hesitate to contact the Emergency team if you get worse again. Better to be safe than sorry, In the meantime I’ll be thinking of you and sending back some soothing warm hugs for you too. Thanks for your concern when you are feeling so rough yourself. Take good care of yourself. 🤗🙏🏻😘xxx

[daniel55 in reply to Spotty-ewe]

thank you spotty-ewe will be thinking of you to take care xxxx

[KnitSewPurl]

sorry to hear of your sufferings and pains not nice especially when you have other things to put up with already. Had my gall bladder out over 20 years ago. So I do appreciate what you are going through.

If it was not for Covid you would probably be admitted in that situation over here in the UK. If you have private medical insurance it will be the fastest method of treatment at the moment. Which is what both my husband and I did to get our operations done quickly. He needed his spinal op done badly. Got his done face to face and even on phone call as well.

I am not sure if they (doctors) have advice you of things to take notice over the next few days. to keep an eye out .Make sure you drink water alot to flush out 1. your wee (urine colour) monitor it . for change of colour if it starts to change to luminous yellow to orange you will need to contact emergency number 2. your eyes white of your eyes monitor it as well and your skin they will go jaundice (yellow) . you don't want to get that stage. Not to scare you but that is the reality of it but it is treatable if caught early enough. I would suggest if you get further pain call the Oncall emergency team next time so that they can assess you and decide and make that call to get you admitted.

Hope this would be of some help

Also contact your Rheumy and get them involved as they need to know as it has involved an organ in your body.

Hope they have provided you some form of meds to take in the mean time . Take care

Will keep you in prayers xx

[daniel55 in reply to KnitSewPurl]

Knitsewpurl thank you for your reply I have had this problem for nearly two years I am under the care of a consultant my rheumy knows but says it is not his department I have had some pain today but it is slowly going I am on plenty of medication I know the problem is to do with my pancreas I am just waiting for the full spiel from the consultant when he phones me on the 10th February. you say to watch out that my wee if it is ilumonous (sorry can't spell) on occasions it has been like this but haven't said anything because the next time it has been normal what does mean? take care xxxx