Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,554 posts

All posts for January 2020

Bone Profile test

Hi there everyone. I hope that you are all having as pain free a day as possible. I had a full blood screen done on Monday and today the surgery rang to...

Hi there everyone. I hope that you are all having as pain free a day as possible...

CecilyParsley

•5 years ago

21 Replies

Blood test taking a while - worried

So... I had my blood tests start of the week testing lots of things relating to lupus, normally there back in a few days but I’ve rang the past two days to...

So... I had my blood tests start of the week testing lots of things relating to ...

Montycorgi

•5 years ago

2 Replies

Cardiff Lupus Group Meeting - 28th March 2020 - CANCELLED

Please be aware that due to unforeseen circumstances this meeting has been cancelled. We'll advise you of dates for a future meeting when the details are...

Please be aware that due to unforeseen circumstances this meeting has been cance...

Paul_Howard

Partner•5 years ago

6 Replies

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My body hurts

My body is hurting so much tonight that I cannot settle. I have had a stressful time of late and have work international travel in a week before moving home,...

My body is hurting so much tonight that I cannot settle. I have had a stressful...

Sallmell

•5 years ago

5 Replies

New to lupus

New to this! Hi I am new to any kind of forum but I have been searching for advice. 11 years ago I had my 1st blood test for lupus. I had and still have a...

New to this! Hi I am new to any kind of forum but I have been searching for advi...

Raven_claw

•5 years ago

3 Replies

Puffy face, hands,etc

Although Im not on prednisone i have swollen face. For example if i press into my forehead, the indentation stays for awhile. Are there other meds that could...

Although Im not on prednisone i have swollen face. For example if i press into m...

miccika1

•5 years ago

2 Replies

Kidney cancer, notes missing forgotten allergies! Help!

Hi I had stage 3 kidney cancer last year in spite of my emergencies into hospital the GP and Rhumatologist insisted Lupus had nothing to do with my kidney and...

Hi I had stage 3 kidney cancer last year in spite of my emergencies into hospita...

Iona467

•5 years ago

24 Replies

Hi

Hello. So if anyone remembers I was having more bloods done for vitamin deficiency’s. Well saw my doctor yesterday and they were fine she was very pleased...

Hello. So if anyone remembers I was having more bloods done for vitamin deficie...

Natz36

•5 years ago

37 Replies

Worried I'm going to lose my job because of severe brain fog.

My mind isn't what it used to be. At work I was always praised on my efficiency and effectiveness at my job. But over the past 7-8 months I've really...

My mind isn't what it used to be. At work I was always praised on my efficiency ...

eescvc

•5 years ago

10 Replies

Symptoms of lupus???

Hi everyone, I’m new here and wonder if someone could offer advice pls. I’m female, 48 years old and have always been in good health. In December 2018 I...

Hi everyone, I’m new here and wonder if someone could offer advice pls. I’m fema...

Croft123

•5 years ago

Be the first to reply

Thealoz duo eye drops

Anyone used these with any success? I have terribly dry eyes which is affecting my vision. I’ve been using carbomer eye gel and hycosan extra with little...

Anyone used these with any success? I have terribly dry eyes which is affecting ...

GlasgowHen

•5 years ago

6 Replies

Hospital Treatment

Hello Everyone, Well this week has not started well! I became very ill over the weekend and couldn’t keep any of my medications down. By Sunday night I was...

Hello Everyone, Well this week has not started well! I became very ill over t...

Crazy_Cat_Woman

•5 years ago

26 Replies

Constant Cold!

Hi all, how is life treating you. Its been a while since I have posted. I am just wondering if anyone else suffers with one cold after another? I am fed up of...

Hi all, how is life treating you. Its been a while since I have posted. I am jus...

Sallmell

•5 years ago

3 Replies

Another new Rheumatologist

Well after being discharged by Rheumatology last month I have received an appointment to see a new Rheumatologist in a different hospital? I cannot find any...

Well after being discharged by Rheumatology last month I have received an appoin...

CecilyParsley

•5 years ago

4 Replies

Just wondering if itchy scalp/head is a common symptom?

Diagnosed overlap mctd. Have had itchy head for years really but not dandruff. I have read comments on internet re itchy scalp but not really sure if it’s...

Diagnosed overlap mctd. Have had itchy head for years really but not dandruff. I...

Melarky

•5 years ago

6 Replies

Muscle Ache

Hi first time posting here and its daunting accepting you have these chronic conditions. So I was diagnosed with Lupus and Scleroderma since April 2017 and...

Hi first time posting here and its daunting accepting you have these chronic con...

seunret

•5 years ago

8 Replies

Red rash appears on forehead when tired, looks swollen.

Hi everyone, Does anyone get a rash across the forehead when they are tired that looks swollen? Can anyone tell me what it might be please? I'm asking for my...

Hi everyone, Does anyone get a rash across the forehead when they are tired that...

Loobylau

•5 years ago

1 Reply

Benlysta?

Anyone on benlysta? I will be stsrting it soon kinda nervous.

Princerogers777

•5 years ago

7 Replies

Spots on lips - lupus?

Just wondering if anyone else suffers cold sore like spots on their lips towards the end of a lupus flare up. I’m being tested at the moment for possible...

Just wondering if anyone else suffers cold sore like spots on their lips towards...

Montycorgi

•5 years ago

1 Reply

Anti phospholipids (APL) antibodies

Good morning, Had my check up last week, after having my lower facet joint and epidural injection on bulging disc. (This check up was with my neurologist,...

Good morning, Had my check up last week, after having my lower facet joint and ...

Jhpc

•5 years ago

2 Replies

Pleural infusion serositis

Hello there I was diagnosed with plural infusion 2 years ago the fluids diminished and for the past 18 months IV been ok but it’s back along with serositis...

Hello there I was diagnosed with plural infusion 2 years ago the fluids diminish...

Nidnoy

•5 years ago

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Botox for Incontinence

I didn't go ahead with Botox as i felt it might make my Lupus worse. And I needed to know how to use a Cathether, if it was injected and was not successful,...

I didn't go ahead with Botox as i felt it might make my Lupus worse. And I need...

robinson9

•5 years ago

1 Reply

Calling all medics with SLE or CTD- have your say

Th BMA has put a survey, you do not have to be a member to answer, it will affect future policy , closing date 31st Jan, please fill in and pass on. There are...

Th BMA has put a survey, you do not have to be a member to answer, it will affec...

Milliecox

•5 years ago

2 Replies

Are threatened miscarriages relevant?

Hi, Having a lot of symptoms, I'm trying again and have my 2nd appointment with a rheumatologist, after a disastrous one, at least 3 years ago, when I was...

Hi, Having a lot of symptoms, I'm trying again and have my 2nd appointment with ...

Zib78

•5 years ago

9 Replies

Advice please on rash

My daughter has a rash on her face which the GP thinks may be Lupus (she has lots of other symptoms too). She has blood tests on the 27th and he has given her...

My daughter has a rash on her face which the GP thinks may be Lupus (she has lot...

HelenLo

•5 years ago

16 Replies

Papworth Cambridgshire hospital

hi does any one have any experience of the Papworth hospital in cambridgeshire kind regards Rodders

hi does any one have any experience of the Papworth hospital in cambridgeshire ...

rodders1941

•5 years ago

2 Replies

Returned to work after 18 months hurrah! OH support and interview.

This week I completed my first week back in the classroom and it felt good. Yes I was in bed my 8pm most nights but I could feel my old self returning. I left...

This week I completed my first week back in the classroom and it felt good. Yes ...

F1zz

•5 years ago

10 Replies

Can’t tolerate the cold—is this a lupus thing?

I am the most cold-intolerant person I know. I despise winter and would much rather be in 90 degree weather than 40s even. I can be cold when others are hot....

I am the most cold-intolerant person I know. I despise winter and would much ra...

Seaheart01950

•5 years ago

4 Replies

Triggers

After reading about metal implants causeing autoimmune triggers.....dose anyone know if Botox or perminate face filler.. .which is basically acrylics.....can...

After reading about metal implants causeing autoimmune triggers.....dose anyone ...

Mozart12

•5 years ago

2 Replies

Autoimmune caused by metal implant in body?

Newbie here, hello! Does anyone know much about autoimmune conditions being triggered by medical implant, namely titanium nickel cardiac device ICD? My health...

Newbie here, hello! Does anyone know much about autoimmune conditions being trig...

PawPad

•5 years ago

43 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2020

Bone Profile test

Blood test taking a while - worried

Cardiff Lupus Group Meeting - 28th March 2020 - CANCELLED

My body hurts

New to lupus

Puffy face, hands,etc

Kidney cancer, notes missing forgotten allergies! Help!

Hi

Worried I'm going to lose my job because of severe brain fog.

Symptoms of lupus???

Thealoz duo eye drops

Hospital Treatment

Constant Cold!

Another new Rheumatologist

Just wondering if itchy scalp/head is a common symptom?

Muscle Ache

Red rash appears on forehead when tired, looks swollen.

Benlysta?

Spots on lips - lupus?

Anti phospholipids (APL) antibodies

Pleural infusion serositis

Botox for Incontinence

Calling all medics with SLE or CTD- have your say

Are threatened miscarriages relevant?

Advice please on rash

Papworth Cambridgshire hospital

Returned to work after 18 months hurrah! OH support and interview.

Can’t tolerate the cold—is this a lupus thing?

Triggers

Autoimmune caused by metal implant in body?

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