Benlysta?

[Princerogers777]

Anyone on benlysta? I will be stsrting it soon kinda nervous.

[miccika1]

Im taking it for six mo already. Didn't do much for me. Despite the cost it's pretty mild medication. I think i was more nauseous first month but you can take reglan fo that. Also make sure to drink a lot of water the day before the injection and the day off otherwise you get a headache

[Princerogers777 in reply to miccika1]

Hope it works, trying to control Interstitial lung disease brought by lupus so i hope its just what i need added to my methotrexate, imuran plaquenil regimen already taking . Thank you for your advice.

[miccika1 in reply to Princerogers777]

Hm usually mycophenolate works with lung involvement better than methotrexate. A bit surprised here to hear you are on methotrexate and not on MMF

[Princerogers777 in reply to miccika1]

Methotrexate was started years ago for the lupus not lungs, benlysta will be started for lung issue

[Princerogers777 in reply to miccika1]

I have tried mmf years ago ,i had a reaction, so its not an option

[cctexan]

I just did my first injection today I’m trembling in my hands and headachey. But this is my best hope. It’s been a 9 month flare! I’ve been so sick. I’m done ! I plan on loving this

So how has it been for you? Are you starting to feel it? My dr wants me to stay on methotrexate for awhile longer. Did you keep any lupus added meds like nifidepine or Amitryptiline next?

[miccika1 in reply to cctexan]

I really hope it helps you. I didn't stop any other meds. Im on mycophenolate full dose. I get flares once a month for which i take Prednisone and taper it... It takes at least one or two months for you to start feeling if it helps you or not. If it doesn't work keep trying other stuff. I wasn't happy with Benlysta enough although im still taking it im trying now some other stuff...