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The Roy Castle Lung Cancer Foundation

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T4 n2 squarmus

Chel09 profile image
6 Replies

Hi there I'm new to this feed but hoping someone can give me more Info. Mum had her pet scan tues but was diagnosed with lung cancer about 6 wks ago it seems like such a waiting game does anyone know if we should get to see consultant this wk? And what kind of questions should I/we ask them?

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Chel09 profile image
Chel09
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webbs8 profile image
webbs8

Hi sorry to hear about your mum. It seems everyone's situation is so different and how diff hospitals deal with things. I know what you mean that it is like a waiting game and very worrying and upsetting while waiting. Sorry I can't give you any answers or info but sure someone will be able too soon but thinking of you and try to stay strong for your mum and thinking of you both x

Jomc1970 profile image
Jomc1970

Hi. My mum was diagnosed from ct scan with t3 n2 m0 lung cancer on 23rd march. She was discharged from hospital on 7th and we saw her consultant on the 20th april. Have you contacted her doctor to discuss the diagnosis? My mum has been allocated a lung specialist nurse at the hospital who we can call when we need advise. She has been brill and answered my queries over not eating, blood tests etc. Im keeping busy with the never ending paperwork; applying for attendence allowance, power of attorney, blue badge etc. Its helping me being busy.

Wishing you and your mum all the best

Jo

MH1954 profile image
MH1954

Hi so sorry to hear your Mums diagnosis

Though all hospital trusts are different waiting 6 weeks and not having an appointment in place to go back to see consultant is not good

When I had my pet scan results were back the following week and i had an appointment already in place to see my consultant to discuss results

If your Mum was assigned a lung specialist nurse ring her and ask if an appointment has been made, if she hasn't ring the hospital and ask to speak to the consultants secretary she will be able to look on the system to check what's going on

Another option is to ring the appointment line and ask them to check if an appointment is showing just in case the letter as gone astray in the post

I have found since being diagnosed to chase everything to do with any tests and will keep on at them until I know the answers

Last resort is to go through PALS at your hospital they can look into this on your Mums behalf

Hope everything is soon sorted

Margaret

Hi similar situation with my mum we are based in fife. Diagnosed 22march no further forward all scans etc done. Praying for prognosis on Tuesday next week so we can put an end to the worry and start healing where are you based?

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Hello Chel09,

Welcome to our forum, I am sorry to hear of your mums diagnosis of lung cancer, this will be a very worrying time for the whole family. They are some very good replies from others and as they have said it might be worth getting in touch with your lung cancer nurse specialist she will have access to your mums medical records and will be able to advise about appointment times etc.

If you wish to discuss anything you can call us on our free nurse led helpline number on 0800 358 7200

All the very best

The Roy Castle Support Team

Chel09 profile image
Chel09

Thanku everyone for there comments not too sure how to reply to everyone because of this cyber thing mum hadchest x ray today nurse was concerned and had word with consultant she is still starting chemotherapy 2moz but now starts her radiotherapy on12-13thjunefor 6 wks solid every day not sat n Sundays. think it's just hit her and was venting on the phone calling my dad saying he's useless blah blah he's 65 still working full time as well as Looking after mum n their house etc I'm trying to do as much as I can but I have 2 kids 1 autistic not serverly but still hard work sometimes and working myself think this is just the start.

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