My primary care recently increased my thyroid medication. I haven’t felt as well, tired achey, headache, my neuropathy is increasing. The symptoms I had during my cranial nerves flare are presenting again.
Is this common when you’re being treated for Behcet’s and you’re on other medications for other health conditions?
Yes. And the amount of synthroid I need fluctates.. Taking just a tiny bit too little is as bad as taking a little bit too much. I have Hashimotos disease so that might be the reason for the fluctuation. Frankly I don't think doctors ( including endocrinologists ) take thyroid disease seriously enough.
Thank you for responding.
I’m still trying to understand the thyroid lab work. I know my thyroid was really low and doctor has me on 2 medications..
Do you also have Behcet’s?
Yes I do. I've been told that once people develop thyroid disease, they're much more vulnerable to other autoimmune diseases- including Behcet's.
I’ve got other things,arthritis, cmt and reynauds.
Thank you, I’m seeing that my Behcet’s back in 11-2017 started in my cranial nerves then my left eye my gut, and now thyroid issues.
I actually bought Joanne’s Zeis book and gave a copy to my neurologist and my rheumatologist so they could understand the disease better. My gastrointestinal doctor read it and commented how well it was written and loved the Q&A portion.
Do you think your thyroid issues are somehow linked to your Behcet’s?
Do you have symptoms prior to a flare?
Menstrual issues?
Stomach Issues!!
Has anyone experienced issues with losing their voice?
Muscle Issues
