Mobility

[Papapickle]

Hello

Does anyone else use a wheelchair or mobility aid?

[Frogge]

I use a cane when things are bad.

[RayRay121]

I have a cane for most days and a wheelchair if i need want to try to be out for a bit. really depends on the flare though

[lovenothate]

I am in an electric wheelchair full time. I first had a problem with mobility around 6 years ago, not long after being diagnosed with Behçets. Started off with peripheral neuropathy which deteriorated over time. I used crutches for two years until I couldn’t manage on them any more as my arms were deteriorating too and had to eventually end up in my electric chair - I couldn’t use a manual chair because of weakness and neurological problems in my arms. I’ve been in my chair for about 4 years now and rely on Carers to do most everyday things including transferring to bed etc.

[Jaxxi]

I use a walking stick at times, though these times are way fewer since I moved to a house on a hill surrounded by lovely footpaths - my balance is much better now my legs are strong.

In the past when I had long, severe flares I used to hire a wheelchair for days out. I also used to hire scooters from the Shopmobility service in my local city, and I got a blue badge. All these really helped break the isolation I suffered from being unable to go out and enjoy things due to pain and exhaustion. The scooter-hires gave me a level of independence I hadn't had for several years - I was able to drive the 10 miles to the city, scoot around shops, cafes and art galleries and still have the energy to drive home. It was great fun!

Once I was diagnosed I went on colchicine which damped down the flares. I was able to walk further and being in less pain lessened the fatigue. My general fitness levels improved and I no longer needed the aids within a year of starting the med.

[LindsG59]

I use a walking stick when I have bad flares. Thankfully I haven't needed it for about 1 year as Humira has helped.

[Lovingdragonflies]

My insurance paid for an an electric wheelchair in January of this year. I use it quite a bit. I have balance issues. Honestly we’re sure yet if it’s being caused by neuro Behcet’s or by my Hemiplegic Migraines. These cause paralysis and stroke like symptoms. But last year I started having neuro Behcet’s symptoms as well. The balance issues have been there but they got to the point I can’t function well without the chair. I use it most days outside of the home, for doctors appointments and the like. We moved to a home that accommodates it and it has made my life so much better. I can take care of myself better now. Recently we went to the zoo. I haven’t been able to do trips like that. The manual I hated because I hated having someone have to push me. I’m more independent now. It suits me.