Hip/Pelvic Gurdle Issues: Hi All. Most recently... - Behçet's UK

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Hip/Pelvic Gurdle Issues

Stm252 profile image
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Hi All. Most recently (probably last month), in the morning, I have to lift myself up by my hands because the pain is so bad in my lower quadrant and I am stiff in the morning in my lower spine, left hip, and pelvic gurdle. This stops in about 30 minutes. However, I continue to have extreme pain in the left hip and groin all day. Anyone experience this before?

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Stm252
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gillianTS profile image
gillianTS

Seems I am writing a lot about my similar experience in this area recently and I don't know if this could be affecting you so just wished to comment rather than skipping on by...

I started to experience more and more discomfort in the areas you describe in 2017, although a dull groin pain had been present a long while which I'd just put down to a groin strain, mine all happened on the right side.

Discounted by the doctor's and specialist I saw and then things started to get worse over a series of months, I started struggled rather than my usual I can work through this, I ended up not being able to function normally just having to go back to bed every day to get some relief.

On the 4 December 2017, after another out of hours GP visit 2 weeks earlier when I was told to just go straight to A&E if this happened again. On this day even though I was in agony I still could not call an emergency ambulance it just did not feel right to me, I managed to get in my car stick it in 2nd gear and crawl slowly along the countryside lanes the 5 miles to my GP practice, my GP got me admitted as an emergency to hospital, lots of prodding and puzzled faces went on and on, questions and then finally ordering a CT scan for the following morning, I was finally diagnosed with a hidden (occult) inguinal hernia, very rare in women and not detectable by usual feeling around for a hernia, the cause was my omentum which had somehow found a way through a hole and it was this that kept popping in and out of the hole throughout the day, likely for years, and had just got worse the more omentum that when through the small hole.

Because it was omentum, and not bowel, intestines etc, it was classified as not urgent, the NHS did not operate immediately but put me on a waiting list. Life was unbearable for me by this time the dull pain was almost a distant memory filled now by a huge heaviness in my body pulling and pushing down, my hip, abdomen, lower back, into my bladder and vagina were all affected every day.

I decided I could not continue to live like this for up to 6 months before the NHS would operate and decided to find a specialist hospital who specialised in hernia repair, I flew into London saw a consultant at the British hernia clinic at St Mary's he too was unable to find the hernia.. luckily for me I'd ordered a copy of my CT scan and took it with me so I gave him the CD. The very next day on 12 January 2018 I had my hernia repaired and on the 14th I flew back home, the consultant explained women getting inguinal hernias was not common in comparison to men and had I not had my CT scan results showing the hidden inguinal hernia he would not have been able to locate the hernia so no operation would have been performed. He said he carried out over 3,000 hernia operations for patients who came to the hospital every year and had been a hernia specialist for over 20 years and never during that time had he not been able to physically locate a hernia and that my case had made him realise that he would not be dismissive of women who came into his surgery with my symptoms in the future...

I have read that great numbers of women are walking around with hidden inguinal hernias experiencing dull pain and discomfort for years and is never being picked up unless like me things have got so bad and then only picked up by a CT scan or MRI but even then the radiologist has to know what they are looking for.

I hope you can get some answers and help with your pain and discomfort soon.

Gillian

Stm252 profile image
Stm252

I just started having this. Its terrible.

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