Mri: Has anyone ever been referred for an mri... - Behçet's UK

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Mri

Has anyone ever been referred for an mri when uveitis has hit?

I went to emergency eye clinic yesterday and after eye exam, dilation, scan and review by registrar, consultant and clinical lead they could not find any inflammation at the front of my second eye. They said they couldn’t see the back and questioned whether it could be at the back and whether I had had a recent mri.

With my vision being impaired plus this - I am getting worried - should I be?

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I would have thought a Ophthalmologist would be the way to go, but maybe the are looking for ulcerations in the mucus membranes behind the eye?

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That does not sound good.....

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It would sound scary, but steriods can bring down the inflamation

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could they really see nothing in the mri?

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I haven’t had the mri yet bright referred for one. - I had dilation scans physical exam of eyes.

Never heard of using mri when eyes are an issue. My vision has changed quite quickly.

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How long is the waitinglist to have it done? Pls do it quick

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They don’t tend to hang around but then you never know. Have never felt like this before.

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I am scaring you and I am sorry, but what if the Mri can show you that something as simple as a steriod eyedrop can help relieve your symptoms and you are not taking action, in our disease it is all about taking action now. Sorry you where there for me when I needed that pep talk. This is your turn x

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Please don’t apologise. It’s important to me to be able to understand what is happening and I appreciate all of the above.

I took the steroid eye drops that I already had for my left eye but this didn’t help at all. My vision is definitely impaired and I just don’t understand what it could be.

A lot of questions were asked - who is your neuro, when was last mri, what treatment are you on, have you have steroid iv for eye trouble before etc etc.

All much much more than when I just get uveitis. I think it’s mainly because they couldn’t see inflammation at the front of the eye, but I thought they could see the back with dilation and scan??

Thank you for being there, I really appreciate it. It’s scarier not knowing than knowing I think. Even when watching films etc I always want to know what’s coming to understand and go the journey.

Odd huh.

🤷🏻‍♂️

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Not odd at all, I have the obsession or the need to know. Yet google is NOT our friend. In the very beginning after being diagnosed I had an MRI scan pic up 4 areas that could possibly be aneurysm risk. However an MRI I have had 10 years after picked up only 1 area. So medication did help. Therefore MRI is vital in diagnosis.

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Thank you.

Fingers crossed.

Thank you for listening. 👍

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My pleasure, fingers crossed that scan is gonna be fine hang in there

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Try not to worry, they are just being thorough, because your eyes are affected your Behçet's leans more towards being neurobiological so they are doing the right thing. You probably know this but I'll say it just in-case, when you see something happening with your vision/eyes make sure you get to an eye consultant, don't bother with a GP, go to an options they have the expertise, equiptment and authority to refer you directly to a consultant; and always remember, on your side what you are experiencing will appear large to you, but will be tiny from their side, so give them as much description as you can.

I hope my advice is helpful and I wish you well #Solidarity fellow Behçet's sufferer.

A→T→B

Paul

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Sorry for the really bad spelling correctionI should have listened to it 1st

Take good care

Paul

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I have been having uveitis since 2007, when my left eye was almost blind.

The uveitis has not completely gone ever since then, but have had improvements.

In 2007, the ophthalmologist ordered MRI - I think they wanted to see if there was neurological involvement elsewhere. Uveitis by itself is considered neuro behcet.

Since 2007, slit lamp examination is done for me at every visit to the ophthalmologist, but they add fluorescent angiogram at regular intervals - my uveitis is mainly in the middle and posterior parts of the eyes and there are portions that cannot be accurately examined without angiogram.

Angiogram is more invasive than slit lamp, hence done less frequently.

Bon courage!

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I think this is a positive thing for you. I have lesions at the back of my eye that are still being investigated. A CT scan confirmed the nerves are (so far) undamaged. An MRI will give the doctors a comprehensive view of what's going on with you. Good luck!

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Update- I am going for an evoked potential test. Has anyone else had one?

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