I had my second appointment at the Behcets clinic on Tuesday.
There were bits of good news ( ulcers right sort, ulcers scars in certain places) and bad news ( high blood pressure , no diagnosis or drugs yet , trip back next Tuesday to see the Neurologist and the results of an unusual blood test).
The rheumatologist said they wanted to check me for Cryoglobulinemia.
I was sent off for a blood test and the Blood Nurse walked in with a silver cannister with locks filled with sand , like a prop for carrying Uranium in a Mission Impossible film .
They then proceeded to take my blood and carefully and precariously deposit the vials upright in the sand , locked the box , then carried it at arms length like an unexploded bomb!
The Bank Nurse stared at me from a distance like I was radioactive and I could hear the Blood Nurse calling , " Get out of the way please" as he went off down the corridor to the lab.
I am beginning to wonder wether my new Superpower is collecting unusual illness instead of a wicked sense of humour.
Or , perhaps , wearing my Darth Vader Christmas t-shirt ( slogan reads, I find your lack of cheer disturbing ) was a mistake and the Doctors now think I am some sort of Alien being sent from the Death Star to infect humanity with a bit of Christmas cheer!
Humour aside , I do need your help .
Has anyone else had this test as part of their Behcets diagnosis or as an alternative diagnosis to Behcets?
Does anyone have Cryoglobulinemia and can you tell me more about it?
Or do you know anybody who has this disease and how does it affect them?
My BP and pulse are racing , head and ears pounding , extremeties all throbbing and the palpitations and joint pain are sending me through the roof .
I have an Eye Clinic appointment tomorrow , but really I am just sick and tired of being sick and tired and rather concerned now that if I do not get some medical assistance by next Tuesday I am going to pop.
Hope you caring and experienced members on the forum can help.