FREE articles from latest supplement on BD -- Clinical & Experimental Rheumatology

[jzeis]

FREE articles from the latest Clinical and Experimental Rheumatology “Supplement on Behcet’s and other autoinflammatory conditions” (2018 Vol.36, N°6 - Suppl.115). I haven’t read all of them yet; they’re not written in plain language. Keep your medical dictionary handy, and download soon – not sure how long these articles will be free:

(1) Highlights of the 18th International Conference on Behcet’s (Netherlands, Sept 13-15, 2018)

clinexprheumatol.org/articl...

(2) One year in review 2018: Behcet’s syndrome

clinexprheumatol.org/articl...

(3) Why are Behcet’s disease patients always exhausted?

Article: clinexprheumatol.org/articl...

Extra tables & info: clinexprheumatol.org/articl...

(4) Behcet’s syndrome and psychiatric involvement: Is it a primary or secondary feature of the disease?

clinexprheumatol.org/articl...

(5) Duration of anti-TNF treatment in vascular Behcet’s disease: Better to prolong treatment?

clinexprheumatol.org/articl...

(6) Brain glucose consumption abnormalities in neuro-Behcet’s disease: Preliminary PET/CT study

clinexprheumatol.org/articl...

(7) Fecal -- but not serum -- calprotectin levels look promising in predicting active disease in Behcet’s patients with GI involvement

clinexprheumatol.org/articl...

(8) Anti-alpha-enolase antibodies in BD: Marker of mucocutaneous and articular disease activity?

clinexprheumatol.org/articl...

(9) A 52-page PDF download of ALL abstracts (summaries of all research) from the 18th Intl BD Conference, September 2018:

clinexprheumatol.org/articl...

(10) A 4-page PDF download of all poster sessions (oral presentations) from the conference

clinexprheumatol.org/articl...

[Meggy7791]

Thank you Joanne for providing all these papers. Yes, I agree, that there is a mine field of medical jargon but what I gleaned was very interesting. I was especially interested in the paper regarding ‘fatigue’ in BD patients - something most GPs do not fully understand. It seems to be a vicious circle - pain = lack of sleep, lack of sleep = pain! When you only have 8 minutes to discuss in surgery it is a pity that you can only choose one problem to present therefore they never see the whole picture of ‘fatigue.

[lesleyg in reply to Meggy7791]

I have a lovely specialist and we both agree on the importance of sleep. He is quite happy to prescribe temazepam which he described as relatively harmless in comparison to some of the pain killers. Maybe your GP would prescribe something to help you sleep. I know it has improved my quality of life. Lesley

[Legomum in reply to lesleyg]

I could never say benzodiazepines (temazepam, diazepam etc) are harmless as they are so addictive. Pain clinics can help find alternatives. I agree it is a difficult balance of treating the Behçet’s disease symptoms to reduce pain and allow sleep but also risk of medication side effects eg with steroids preventing sleep. It all drives me slightly mad!!

[lesleyg]

Thanks Joanne!

[Legomum]

So helpful to have all this info and summary. Thank you Joanne!

[ZoeSwifty]

Thank you for this, i notice that the fatigue article is co written by Farida Fortune at the London Centre for Behcets and as i am seeing her next week i will read it thoroughly before i go!