Posts - Behçet's UK | HealthUnlocked

Behçet's UK

5,251 members • 4,332 posts

All posts for May 2013

Fingers crossed the Methotrexate may be working!!!!!!!!!!!!!!!!!!!!!

After 6 months this med maybe starting to help.....now I really did not want to type that as I may be tempting fate!!!! Still have all usual aches and pains...

After 6 months this med maybe starting to help.....now I really did not want to ...

ruthbalbirnie

•11 years ago

3 Replies

Tired and sleep for hours and hours

Hi all I am suffering really bad from tiredness atm yesterday I felt fine in myself apart from the aches and pains in my arms and legs. Then 2 oclock then my...

Hi all I am suffering really bad from tiredness atm yesterday I felt fine in mys...

nickyclem

•11 years ago

30 Replies

Gp thinks I have behcets, awaiting bloods,,I'm really scared I'm going to go blind!

I already have fibromyalgia but recently started having flares starting with a temp then eye issues with joint pain and feel so nauseous. I have a long history...

I already have fibromyalgia but recently started having flares starting with a t...

Peepo

•11 years ago

12 Replies

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I.V. steroid injections? Anyone?

Hello everyone, I am in desperate need of finding a new treatment plan that may give me a chance at having decreased swelling and pain. I'm not even...

Hello everyone, I am in desperate need of finding a new treatment plan that m...

behcetshurtsbeyondwords

•11 years ago

14 Replies

down but not out

hello all sorry I was missing for a few weeks a computer virus killed my computer and when I got it fixed after two weeks I was admitted to hospital with a...

hello all sorry I was missing for a few weeks a computer virus killed my compute...

scruffy1

•11 years ago

9 Replies

Weight problem

Morning, when my daughter was 1st ill at the age of 17 the hospitals didnt know what was wrong with her, she was in hospital for 5 weeks in icu with them...

Morning, when my daughter was 1st ill at the age of 17 the hospitals didnt know ...

tamirra

•11 years ago

13 Replies

Were you clinically misdiagnosed before Behçet's?

Apologies if you have seen this question posted on my blog page by mistake..... Hello there everyone, I was misdiagnosed for 12 years before I was...

Apologies if you have seen this question posted on my blog page by mistake..... ...

Herbiv4

•11 years ago

13 Replies

I think I might be joining the club...

Hi I'm Johan, I am sitting here well enough now to start researching BS more thoroughly, having spent a week accumulating the symptoms and my doctor...

Hi I'm Johan, I am sitting here well enough now to start researching BS more t...

joham

•11 years ago

8 Replies

Bit random but does this happen to anybody else?

I was diagnosed about 2 years ago after 10 years of suffering ulcers headache joint pain Tia. I just had a baby and I'm flaring badly joints are agony but they...

I was diagnosed about 2 years ago after 10 years of suffering ulcers headache jo...

poshcat

•11 years ago

8 Replies

ATOS BENEFITS ASSESSMENT...

Hi all...I had a form yesterday from Atos regarding my benefits. I've been told they are reassessing my benefits and I have to have to go for a face to face...

Hi all...I had a form yesterday from Atos regarding my benefits. I've been told ...

pheobe67

•11 years ago

8 Replies

Home again & hopefully for a long time.

After being in hospital for five days, we are home again. Hopefully not going back ever... The most important thing is to get my daughter on a lower dose of...

After being in hospital for five days, we are home again. Hopefully not going ba...

Michja

•11 years ago

9 Replies

5 year old with re-occuring mouth ulcers

Hi, what are the chances of my daughters 5 year old little girl to end up with Bechets seeing as she is 1/4 Greek? as she does have re-occuring mouth ulcers....

Hi, what are the chances of my daughters 5 year old little girl to end up with B...

tamirra

•11 years ago

8 Replies

Small red nodules/round lumps on fingers and possibly scalp ?

Does anyone get these small red lumps on fingers? I have them on scalp too but can't see those ones/ I have temporarily stopped my colchicine due to a...

Does anyone get these small red lumps on fingers? I have them on scalp too bu...

goodlife

•11 years ago

5 Replies

Liverpool Patient Support Group Meeting

Hiya, my name is Carol and I am the Support Worker at the Liverpool Centre of Excellence, based at Aintree Hospital. Apologies for not formally introducing...

Hiya, my name is Carol and I am the Support Worker at the Liverpool Centre of Ex...

SWLIV

•11 years ago

2 Replies

Has anyone been on Hydroxychloroquine?

Hi Have just seen my doctor and he wants me to start taking Hydroxycloroquine, is anyone taking this or has been on this drug? What's your thought on it!...

Hi Have just seen my doctor and he wants me to start taking Hydroxycloroquine, ...

Dezie

•11 years ago

6 Replies

How often can flare ups occur?

Hi Everyone, I know this is a very vague question as it can be different for everyone, but seeing as i'm knew to this whole thing I kind of want to know...

Hi Everyone, I know this is a very vague question as it can be different for ...

melcrane

•11 years ago

15 Replies

London Group Support

Hello! A couple of weeks ago, I introduced myself as the new London Centre of Excellence Support Worker and explained that I am planning to set up a support...

Hello! A couple of weeks ago, I introduced myself as the new London Centre of...

Hidden

•11 years ago

16 Replies

Misdiagnosed before Behçet's?

Hello there everyone, I was misdiagnosed for 12 years before I was finally re-diagnosed as having Behçet's. Originally I was diagnosed as having...

Hello there everyone, I was misdiagnosed for 12 years before I was finall...

Herbiv4

•11 years ago

21 Replies

Is it really Behcets if you don't have ALL symptoms?

My 15 year old son has just been told he has behcets - he doesn't have the eye sores or anal sores - just terrible ulcers and leg sores. Does he have to have...

My 15 year old son has just been told he has behcets - he doesn't have the eye s...

Hidden

•11 years ago

13 Replies

Hi I'm new to this. Spent 4 weeks in hospital before they said I had behcets syndrome. I'm having real bad joint aches n in a lot of pain

Paulbert

•11 years ago

5 Replies

Is there hope for us?

Came across this article today while trawling the Internet, might allready be posted on this site but could not find it....

Came across this article today while trawling the Internet, might allready be po...

ostrea

•11 years ago

3 Replies

Remicade, Imuran, Colchicine

I will start Remicade soon and my doctor plans to stop my Imuran and colchicine about the same time. However, I have heard that some Behcet's patients have...

I will start Remicade soon and my doctor plans to stop my Imuran and colchicine ...

Bobsbetty

•11 years ago

3 Replies

10 years of BD

Hi there new to the site, 10 years ago I started suffering with problems with my right eye blurred vision etc i went to the optician and was told I had macular...

Hi there new to the site, 10 years ago I started suffering with problems with my...

ostrea

•11 years ago

20 Replies

memory loss or lack of concentration?

hi everyone i know this has already been discussed but up untill i joined this site i never knew that my memory loss, or lack of concentration was down to BD....

hi everyone i know this has already been discussed but up untill i joined this s...

mybehcetsxx

•11 years ago

13 Replies

Cluster Headaches

Well, I went to another neurologist for a second opinion. No one is really sure what in the heck is going on with me. I seriously need a Dr. House!! LOL...

Well, I went to another neurologist for a second opinion. No one is really sure...

wendya432

•11 years ago

2 Replies

Just so very proud

Hi all, just want to say how proud of Jaida I am. The poor little dot feels like poo and her body is in a mess. I won't go into it as you all know. Yesterday...

Hi all, just want to say how proud of Jaida I am. The poor little dot feels like...

Michja

•11 years ago

2 Replies

I was told yesterday I have behcet's

am unsure what that means for my family and the future but I guess that will come to light in time I am going to be starting new treatment but also carrying on...

am unsure what that means for my family and the future but I guess that will com...

nickyclem

•11 years ago

3 Replies

Flare up following dental treatment

I attend a dentist appointment on Monday. After cancelling twice previously due to the Behçets. I had to have a filling thus the numbness injection. The...

I attend a dentist appointment on Monday. After cancelling twice previously due ...

jajames

•11 years ago

12 Replies

New to Behcet's

Hi, My doctor and specialists have just worked out that i have Behcet's in the last week. So I don't know much about it, is it normal for during a flare to...

Hi, My doctor and specialists have just worked out that i have Behcet's in th...

melcrane

•11 years ago

14 Replies

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Posts - Behçet's UK | HealthUnlocked

Behçet's UK

All posts for May 2013

Fingers crossed the Methotrexate may be working!!!!!!!!!!!!!!!!!!!!!

Tired and sleep for hours and hours

Gp thinks I have behcets, awaiting bloods,,I'm really scared I'm going to go blind!

I.V. steroid injections? Anyone?

down but not out

Weight problem

Were you clinically misdiagnosed before Behçet's?

I think I might be joining the club...

Bit random but does this happen to anybody else?

ATOS BENEFITS ASSESSMENT...

Home again & hopefully for a long time.

5 year old with re-occuring mouth ulcers

Small red nodules/round lumps on fingers and possibly scalp ?

Liverpool Patient Support Group Meeting

Has anyone been on Hydroxychloroquine?

How often can flare ups occur?

London Group Support

Misdiagnosed before Behçet's?

Is it really Behcets if you don't have ALL symptoms?

Hi I'm new to this. Spent 4 weeks in hospital before they said I had behcets syndrome. I'm having real bad joint aches n in a lot of pain

Is there hope for us?

Remicade, Imuran, Colchicine

10 years of BD

memory loss or lack of concentration?

Cluster Headaches

Just so very proud

I was told yesterday I have behcet's

Flare up following dental treatment

New to Behcet's

Search posts

Pinned Posts

Latest poll

How long ago were you diagnosed with Behcet's Syndrome?

Archive