Behcet's Syndrome Society
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Remicade, Imuran, Colchicine

I will start Remicade soon and my doctor plans to stop my Imuran and colchicine about the same time. However, I have heard that some Behcet's patients have remained on their immunosuppresants while using the Remicade. Is this a subjective decision by my doctor or is he just not following protocol (or what is protocol)? Thanks, Betty

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It depends on the patient. You should not need to be on them all. I stopped everything except the infliximab. They sometimes reintroduce an immunosuppressant about six months in.

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I am on colchicine, pentoxyfilline for my BD but dont think it is working. Where you ok when you came off your meds.

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My rheumy had me go off my immunosuppressants, which turned out to be a huge mistake. Ulcerations came back with greater frequency than in years, andjoint pain worse than ever. I understand everyone is different, but now I can't seem to get restabilized.

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