Weight problem: Morning, when my daughter was... - Behçet's UK

Behçet's UK

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Weight problem

tamirra profile image
13 Replies

Morning, when my daughter was 1st ill at the age of 17 the hospitals didnt know what was wrong with her, she was in hospital for 5 weeks in icu with them giving her drug after drug to see if it would help, ending result very high dose steroids for months and months which resulted in 5 stone weight gain, she has lost a lot of the weight and is currently 10.5 approx and 5ft4 she has been to the gp today to ask for slimming pills but she has been refused them, does anyone know if there is a particular one that she can use while on Behcets meds, she is very depressed about her weight and other mental problems where she is awaiting help from 4 phycologists for her different problems, so i would love for her sake to lose this excess weight to make her a little happier and give her some self estem. Thank you. ( sorry about spellings on certain words ) x x

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tamirra profile image
tamirra
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13 Replies
kenjay profile image
kenjay

I also had weight gain due to medication and couldn't move it. So I went to weight watchers and although I was on a high dose of steroids I managed to lose over 3 stone in 12 months, even though through following their plan and eating more than I had ever done.

I don't personally like these slimming pills, especially for young girls. My niece, who now 23yrs, started taking these in her teens and became very unwell and went down to 4 1/2 stone. We nearly lost her and it has been a long road to recovery. She was admitted to hospital many times and eventually told she had anorexia. The doctors are under the impression that it all stemmed from the slimming pills, so please be careful if she decides to use them.

Also I recently gained a lot of weight again down to water retention, which can be a side effect of lots of different drugs so returned to weight watchers which unfortuneately didn't work as it was water not fat. So I reduced my salt intake to the barest and drank lots of water. The result in that is that I lost 2 stone in 2 months and by continuing, the weight is still coming off, although much slower now.

Hope this helps. Take care and stay strong xx

tamirra profile image
tamirra

Thank you Kenjay, i will tell her about WW and im willing to try too if it will encourage her, but with WW ive been told by many who have lost weight through them have gained it back plus more, we cant risk that happening. x

kenjay profile image
kenjay

It,s just that people revert to bad eating habits once they stop going, I think. It would be good if you went with her. initially I went with my daughter who always had a weight problem to support her. After she lost over 3 stone she got pregnant so we stopped going. Good news is that after her son was born she went back on the ww programme and lost all the excess weight again and for the past 9 yrs has remained a stable and healthy weight by just continuing with it. x

goodlife profile image
goodlife

Hi there, I also gained a lot of weight when really ill and on steroids. However, I “bit the bullet” as someone else wrote on here and joined slimming world recently. Last week was week 3 and I managed to lose 6lbs in a week! OMG.. It felt fantastic and I wasn't hungry once x

bailey23 profile image
bailey23

Oh the above comments have inspired me to lose weight! I have gained 3 and half stone since being on the steroids and have jumped froma size 10/12 to a size 16. It really gets me down. My friend suggested slimming world and has lost weight and still ate nice things. Right I am going to go for it and no more excuses!!

Hugs

Angela

x

tamirra profile image
tamirra

Sounds like WW or SW is the answer. Will be having words. Thanks all. ((((hugs))))

goodlife profile image
goodlife

Angela... Go girl! People at fat class asked me if I had done loads of excercise to achieve the 6lb weight loss and I was able to tell them that my aim was to reduce my weight to improve the agoniszing joint pain... Its surprising that one can be almost immobile and lose 6lbs xx

bailey23 profile image
bailey23 in reply to goodlife

Am starting Thursday. My friend goes and I have arranged to go with her. So have bitten the bullet and am going for it!!

I would be happy with losing a few pounds to motivate me!!

Hugs

Angela

xx

infliximab74 profile image
infliximab74

I have to add here my experience to. I was always a tiny weight 7 stone 7lbs i went in to a bad flare and in 3 weeks went to 15 stone due to meds and steroids. In fact i was hospitalised for 18 months and left hospital 17 stone. I went onto infliximab and slowly reduced steroids eventually losing weight to get to 13 stone. I then was stuck and couldnt move anymore so to went to WW in 4 months i was 8 stone 8 lbs with hard work and determination its possible. I am currently in bad flare and back to 13 stone 8 with bloody steroids and lack of mobility so understand how depressing it can be. I do know once i start on new treatment ( infliximab stopped workkng and humira no longer works) i will get back to Ww as i am to determined to be this big for ever. I have 2 little ones i need to keep up with .

I dont think slimmig pills would be a good choice. X

Michja profile image
Michja

Dear Tamirra,

Well done to you putting such an important question to so many experts here. It looks like you have the answer and I know this will give your daughter such a boost she rightly deserves. Bloody steroids if it's not hair it's weight, but without them life would be unbearable. My fingers are crossed for your daughter. Xxx

tamirra profile image
tamirra

Morning and thank you to everyone's answers, the doctor refused her again yesterday with the slimming pills, her BMI is spot on and she is in the normal range for her height, she didn't seem to depressed about it, but what i don't want her doing is going down the drug route eg... speed, she has done this before she was ill and after, but i think she is more sensible now and she realises this is NOT an option, and i would KILL her before the speed did. Will keep you up to date. x x

kenjay profile image
kenjay

What a worry for you. It's really hard being a mum isn't it? especially because of what she has been through before. Please encourage her to go to ww or s/w, it will work if she follows their plan. I love food and was worried that I would always be hungry, as on other diets I tried, but was surprised at the amount of food I was able to eat. I was actually eating more!!!! It was proper food not diet stuff and was even allowed choc and cakes!!! Can't be bad can it? Hope she manages to lose the weight she wants, with having bd she doesn't need the extra pressure of weight issues.

Take care and stay strong x

tamirra profile image
tamirra

Thank you Kenjay, she knows she has and will always have our support. x

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