Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for November 2020

MATES is down for some unscheduled Update Maintenance...

Morning All & apologies... MATES is down for some unscheduled Update Maintenance... I shall advise again once the Site is back up again... Naturally, I am...

Morning All & apologies... MATES is down for some unscheduled Update Maintenance...

socrates_8

•3 years ago

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Update on MPN Status and other items

The results of the MPN Myeloid Panel are in. The good news is that I am negative for all of the non-driver MPN-related gene mutations (see list below). They...

The results of the MPN Myeloid Panel are in. The good news is that I am negativ...

hunter5582

•3 years ago

44 Replies

Alternative to vaccine if we can't have it?

This could be relevant to at least some of us https://www.bbc.co.uk/news/health-55022288 Jennie

This could be relevant to at least some of us https://www.bbc.co.uk/news/health-...

Otterfield

•3 years ago

12 Replies

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Pegasys effect on labs

Hello! I was wondering what effect the Pegasys (peginterferon) has on labs when first started. I’ve taken 2 45mcg doses over two weeks and my WBC count is...

Hello! I was wondering what effect the Pegasys (peginterferon) has on labs when...

Snook37

•3 years ago

10 Replies

Pins and needles and tinnus

Hi does anyone get a lot of pins needles in there feet quite a lot sometimes in hands but not has bad has my feet and ringing in there ears I did ring the...

Hi does anyone get a lot of pins needles in there feet quite a lot sometimes in ...

Jody00

•3 years ago

19 Replies

Vaccine re Virus

I wonder if there is any official input regarding the safety of the covid vaccines about to be released for patients wiith MPN's I know we can have the flu...

I wonder if there is any official input regarding the safety of the covid vacci...

jeanr

•3 years ago

12 Replies

MATES NEXT CAFE CATCHUP ~ ZOOM

Evening all... :D From sunny Sydney town, Anyways, I am just writing everyone for a little Feedback please, as I have previously promised to undertake a ZOOM...

Evening all... :D From sunny Sydney town, Anyways, I am just writing everyone f...

socrates_8

•3 years ago

7 Replies

HOW TO KILL CANCER NATURALLY...

Post by MPN-MATE Admin » Wed Nov 18, 2020 3:06 pm Afternoon all... :D This one's a tad cheeky, because it is not so much a way to achieve the answer to the...

Post by MPN-MATE Admin » Wed Nov 18, 2020 3:06 pm Afternoon all... :D This on...

socrates_8

•3 years ago

25 Replies

Vaccination for the vulnerable?

Hi, it seems that adequate vaccines will soon be available, some say, that the "vulnerable" faction as we are considered to be will be among the first to be...

Hi, it seems that adequate vaccines will soon be available, some say, that the "...

Jennytheb

•3 years ago

15 Replies

Moderna vaccine?

Hi there, Since we are talking about Covid19 vaccines I have question about new US Moderna vaccine that is 94% protective and is coming out now. My question...

Hi there, Since we are talking about Covid19 vaccines I have question about new ...

light

•3 years ago

17 Replies

Update on sense of smell

About 4 months ago, I reported I had lost my sense of smell about a year before. First, I want to thank everyone who responded. I’m happy to report that my...

About 4 months ago, I reported I had lost my sense of smell about a year before...

Cja1956

•3 years ago

19 Replies

High platelet count and no answers

Hi everyone, first time writing and really blown away with the helpful insight I've found here - thank you! I'm 32 years old and in February of last year I had...

Hi everyone, first time writing and really blown away with the helpful insight I...

Ashweisel

•3 years ago

22 Replies

Covid 19 vaccine

Can anyone tell me if the vaccine produced for covid 19 in Germany which is meant to be out soon is a live one as I have been told by my haematologist that I...

Can anyone tell me if the vaccine produced for covid 19 in Germany which is mean...

Hughley

•3 years ago

4 Replies

Vitamin D

Hi does anyone know if it safe for us to take vitamin D ? With out health condition thank-you Xx

Hi does anyone know if it safe for us to take vitamin D ? With out health condit...

Jody00

•3 years ago

26 Replies

New hope to cure patients with MPNs

« Myeloproliferative neoplasms (MPNs) are a group of blood cancers that are maintained by stem cell populations. In this issue of JEM, Dagher et al....

« Myeloproliferative neoplasms (MPNs) are a group of blood cancers that are main...

Manouche

•3 years ago

14 Replies

Bone Marrow Biopsy and Gluteal Pain

I had a CT assisted bone marrow biopsy today. I was under anesthesia. Its my first BMB ever. I am not sore at the site - I have this DEEP gluteal pain that is...

I had a CT assisted bone marrow biopsy today. I was under anesthesia. Its my fir...

Morning32

•3 years ago

5 Replies

Bone pain

Hi friends, Following an MRI scan, my physiotherapist consultant was kind enough to share an image he had got together, showing that I have three bones in my...

Hi friends, Following an MRI scan, my physiotherapist consultant was kind enoug...

MaggieSylvie

•3 years ago

24 Replies

Phylogenetic reconstruction of myeloproliferative neoplasm reveals very early origins and lifelong evolution

« The mean latency between JAK2V617F acquisition and clinical presentation was 31 years (range 12-54 years). Rates of clonal expansion varied substantially...

« The mean latency between JAK2V617F acquisition and clinical presentation was 3...

Manouche

•3 years ago

18 Replies

Patches missing eyebrow hair

Noticed this morning that l have lost small patches of eyebrow. Wandered if anyone else has had similar on Hydroxycarbamide? Seems to be only my eyebrows. I...

Noticed this morning that l have lost small patches of eyebrow. Wandered if anyo...

Dovme

•3 years ago

18 Replies

Pegasys 180mgs syringes- Are they discontinued?

I’ve just come back from a recent Heam appointment at the hospital. Unfortunately my platlets refuse to come down below 650 even though I’m on 135mg Pegasys...

I’ve just come back from a recent Heam appointment at the hospital. Unfortunatel...

swimswam

•3 years ago

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Does anyone know where I can get life insurance. As well as ET I’ve had a heart attack and am diabetic type 2

Life insurance

steve_m

•3 years ago

4 Replies

Itchy Skin problems

This is just me flagging up to my friends it is not necessarily the drugs or the condition we have but also a change in formula to a trusted brand that can...

This is just me flagging up to my friends it is not necessarily the drugs or the...

nanmc

•3 years ago

14 Replies

Advice please

Anyone had MPN for a few years and maybe had high but stable platelets for quite a long time and was trying to stay off chemo .? Then platelets started going...

Anyone had MPN for a few years and maybe had high but stable platelets for quit...

Mostew

•3 years ago

32 Replies

sheilding

Hi received sheilding letter today threw the post didnt think was getting one this time round but least not has like the last sheilding time in March or August...

Hi received sheilding letter today threw the post didnt think was getting one th...

Jody00

•3 years ago

4 Replies

Shielding

Hi does anyone know if you should be shielding this month if you have a MPN .My Doctor hasn’t sent me anything so do I assume I’m ok to work & teach children...

Hi does anyone know if you should be shielding this month if you have a MPN .My...

Lizzy19

•3 years ago

17 Replies

Can we have the Pfizer vaccine

Hi all. Been a while and hope you’re well. Just read the vaccine guidelines for who gets it and euphoria replaced with disillusionment as vulnerable under 65...

Hi all. Been a while and hope you’re well. Just read the vaccine guidelines for ...

Jlah

•3 years ago

21 Replies

Anaemia?

I have MDS/MPN and was sent for tests initially because the GP who referred me two years ago thought I might be anaemic. Now I have the diagnosis, does anyone...

I have MDS/MPN and was sent for tests initially because the GP who referred me t...

MaggieSylvie

•3 years ago

25 Replies

Lack of Knowledge from the Haematologists.

Hello all ...hope everyone is keeping safe ... the last time I was around I was dealing with inflammation ... could hardly move without 😢 crying..which had...

Hello all ...hope everyone is keeping safe ... the last time I was around I was ...

Melanie66

•3 years ago

31 Replies

I am not receiving info

emails are not coming in HELP!!! How can I re-establish contact?

milw532

•3 years ago

2 Replies

Polycythemia and pregnancy

Hello! Both my pregnancies I had severe subchorionic hemorrhaging. I was put on bed rest. I’ve always had heavy and clotty periods. I pass golf ball sized...

Hello! Both my pregnancies I had severe subchorionic hemorrhaging. I was put on...

Sleepypandachu

•3 years ago

6 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for November 2020

MATES is down for some unscheduled Update Maintenance...

Update on MPN Status and other items

Alternative to vaccine if we can't have it?

Pegasys effect on labs

Pins and needles and tinnus

Vaccine re Virus

MATES NEXT CAFE CATCHUP ~ ZOOM

HOW TO KILL CANCER NATURALLY...

Vaccination for the vulnerable?

Moderna vaccine?

Update on sense of smell

High platelet count and no answers

Covid 19 vaccine

Vitamin D

New hope to cure patients with MPNs

Bone Marrow Biopsy and Gluteal Pain

Bone pain

Phylogenetic reconstruction of myeloproliferative neoplasm reveals very early origins and lifelong evolution

Patches missing eyebrow hair

Pegasys 180mgs syringes- Are they discontinued?

Does anyone know where I can get life insurance. As well as ET I’ve had a heart attack and am diabetic type 2

Itchy Skin problems

Advice please

sheilding

Shielding

Can we have the Pfizer vaccine

Anaemia?

Lack of Knowledge from the Haematologists.

I am not receiving info

Polycythemia and pregnancy

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