Patches missing eyebrow hair : Noticed this... - MPN Voice

MPN Voice

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Patches missing eyebrow hair

Dovme profile image
18 Replies

Noticed this morning that l have lost small patches of eyebrow. Wandered if anyone else has had similar on Hydroxycarbamide? Seems to be only my eyebrows. I will get it checked seeing haematologist but curious others had similar experience

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Dovme profile image
Dovme
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18 Replies
hunter5582 profile image
hunter5582

Two possibilities. 1. HU does cause alopecia. 2. Iron deficiency can also cause alopecia.

If you have no prior issues with alopecia prior to HU, then it is reasonable to think that would be the cause. Not a certain thing though.

FYI - I also have lost a fair bit of my eyebrows and also other body hair. In my case due to iron deficiency related to PV treatment. Also lost most of the hair on my head. That is due to OLD syndrome. Oh well, good thing I like a buzz cut anyway.

Dovme profile image
Dovme in reply to hunter5582

I had the hair on head or old syndrome fairly young late thirties Lol. No history of alopecia but l suspect your correct it’s probably linked to HU. I will get it checked sooner if it continues

Thanks for the reply Hunter

Also at your next visit to doc, ask them to check your thyroid levels, vit B12 and ferritin. Under active thyroid and low levels of B12 and ferritin ( your iron store) can all result in hair ( eyebrow ) loss, usually the outer part.

Dovme profile image
Dovme in reply to

Thanks Debra l will get those checked. I did wander if it might be iron levels too

clubdino profile image
clubdino

If the hair loss is mostly the outer third of your eyebrows it has a strong link to thyroid issues.

Dovme profile image
Dovme in reply to clubdino

Thanks it s kind of in the middle of the eyebrow and in two small patches

clubdino profile image
clubdino in reply to Dovme

Interesting that its only the eyebrows and not your scalp first. I see you plan on following up with your doctor...I saw that vit d deficiency and iron deficiency could cause it. MPN patients are more likely to be vitamin d deficient. Also, people with darker skin tones are much more likely to be vitamin d deficient. Definitely worth getting tested for.

Dovme profile image
Dovme in reply to clubdino

Yes he was going to check my Vit D levels for Covid reasons

I checked other Thyroid disease symptoms but it is so far only my eyebrows- l have no other as far as l can tell. Seeing the haematologist in 10days if it gets worse l will get an early appointment

Wyebird profile image
Wyebird

I lost all my eyebrows before diagnosis. Mum mum lost hers too and she hasn’t got an MPN.

Dovme profile image
Dovme in reply to Wyebird

Yes it could be unrelated. That’s why l thought l ask to see if others have had similar- thanks

Wyebird profile image
Wyebird

It’s horrid though- actually I would rather use loss of eyebrows as a result of meds than genes. Maybe then people would actually realise that having an MPN is a major illness.

Quercus53 profile image
Quercus53

Dovme, get 'em tattooed on, lasts about a year and nobody will know!

Dovme profile image
Dovme in reply to Quercus53

It’s not that bad - looks like l am trying to be cool a line across my eyebrow . I will get it checked first but yes if it gets worse

Quercus53 profile image
Quercus53

They actually look amazing , very natural, especially if you go for the ombre style.

MaggieSylvie profile image
MaggieSylvie

I'm not on Hydroxycarbamide and I have lost patches of eyebrows, particularly the outer edge. They say it's to do with the thyroid.

jointpain profile image
jointpain

My wife has very little eyebrow hair all her life, diagnosed with MF 30 months ago though we suspect she had an mpn all her life.

Dovme profile image
Dovme in reply to jointpain

Think it’s one of these conditions that can be due to many things.

I will get it checked

Dovme profile image
Dovme

In case others have similar issues and find my feedback helpful. l saw my haematologist the eyebrow patches are due to HU. It doesn’t seem to have gotten any worse or affected other areas since my last post

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